u/HeroOftheMoon0

I've been struggling with it my whole life, but lately, since I have to travel by taxi more often is unbearable.

I've tried not eating before the trip, eating before the trip, laying down, watching my phone, watching the window, eating gum, taking medicine for nausea. The only thing that seems to work is sucking on mint candy, but the second the candy is gone the nausea is back. I saw there were special glasses for that, but those wouldn't work on me because only one of my eyes work

Does anyone have any advice? I'm running out of options, and it feels very bad

Hi. I had been asking for the last year if anyone with a pituitary adenoma, or specifically a tshnoma like me had strong lower back and leg pain, and I did get a few people saying yes but no one knew what it was. So I think I might have found out.

I had gamma knife in December and the pain is way better, some months are worse, but apparently it's part of recovery. Anyways, I had a lumbar MRI to check if there was an issue there and the doctors found spondylolisthesis, which apparently is when: a spinal condition where one vertebra slips forward over the bone immediately below it, so it causes lower back and leg pain. Apparently there are different types like traumatic or degenerative, and since I know my tshnoma was causing osteopenia and basically most muscles/bones/cartilages in my body to deteriorate because of the central hyperthyroidism, it makes a LOT of sense that'd be the case

My neurosurgeon says level 1 and 2 can be treated with a corset and level 3 or 4 might need surgery. Basically that's what I found, if anyone with this type of tumor is trying to find the root of the pain might be that.

That's kind of it. I hope this can be of help to someone

Hola, me estoy recuperando de una enfermedad que me daba mucho dolor, así que solo usaba un par de zapatilla tipo sketchers ya que eran muy suaves.

Ahora puedo usar zapatillas normales y, aparte de las suaves, solo tengo un par azules y un par antiguo que tiene los detalles rotos.

Asi que el otro día estaba en una tienda y vi unas crema con rojo oscuro y otras blancas con verde petroleo. Quise comprarlas pero pense "deberia gastar dinero en eso cuando ya tengo zapatillas? Cuantos pares debería tener?"

Trataré de acortar eso. Tengo 27 y estoy recuperándome de un tumor cerebral. El tumor causaba descalsificacion, hipertiroidismo intenso, diabetes insidipida, etc. Basicamente todo mi cuerpo estuvo desgastandose por años. Al principio mi familia decía que era floja, que algo estaba mal conmigo y me trataban un poco mal. Las noticias del tumor cambiaron eso y fueron mas empaticos y me apoyaron mas. Pero yo tuve que hacer toda la investigación sobre mi enfermedad y pelear con los doctores ya que era muy raro

Me operaron el diciembre pasado, radiocirugia estereotactica. Basicamente ina dosis radiacion q actuara achicando el tumor entre 6 a 12 meses desde la cirugía. El tema es que... con mi familia esa "recuperancion" esta siendo terrible. Primero mi mamá insistió en tener a mi abuela en nuestra sala cuando tuvo gripe. Nos contagiamos, mi cerebro se inflamo y los sintamoas regresaron. Al 3er mes me cai porque mi mamá puso el recogedor donde le pedi que no lo dejara porque soy parcialmente ciega de nacimiento y ya me habia tropezado ahi dos veces. Me di en mi pierna lastima y estuve adolorida 72 horas seguidas.

Y ayer, los perros de mi abuela, con ka que reniego todo xq siempre se meten a mearse sus perros a mi casa y ella lo niega (yo los vi) o solo lo minimiza. Pues se mearon en mi pasadizo, me resbale y me di en la pierna de nuevo

Carajo osea... sobrevivi un tumor cerebral xq yo misma me salve investigando el tema por 2 años... y ahora no puedo recuperarme por tonterías insignificantes que no deberian pasar... los perros no son mios pero si yo cierro la puerta mi abula la abre con su llave y la olvida asi. Es dia de la madre y yo estoy en mi cama. Sin poder salir con mi mamá por el dolor. Teniamos planes, íbamos a ir de compras mañana y por esos miseros perros mi recuperación se fue al diablo de nuevo... es que estoy tan enojada

I recently heard a very small song on facebook that went "I grew up in a home where my opinion didn't matter, please don't ask me to choose. sorry I'm so indecisive, I was raised to do as I was told"

And something just clicked in my head. It's always been so hard for me to make choices. I don't have a favorite color, or a favorite movie or food. I prefer following orders than leading, and whenever I'm faced with a decision like buying this or that piece of clothing, going to this or that place my head short-circuits and I can think about the good and bad things of each choice for days and there's no answer. I always hated that part of myself, and tried to do better, but never understood why I felt like that

The song gave me a hint. When I was born, my mom got sick, and everything revolved around her sickness... and my disability. It didn't matter if I wanted my mom home by Christmas, she needed to be in the hospital. It didn't matter if I wanted to play volleyball, she couldn't do sports and my disability made it too hard for me. My grandma constantly told me my mom had enough on her plate, to not add to her stress, so I made myself little. If we couldn't buy a toy, if I couldn't watch a movie because I had light sensitivity, if I couldn't g out alone because I wasn't independent because of my disability, if my mom couldn't spend any time with me because she was sick and tired. I didn't have any choice. I could cry about it all I wanted or be upset. But things were like that since I was born. So I just had to accept it and go along.

Do you think that's why it's so hard for me? To make choices now?

Hi everyone! I'm 27F. Fully blind in my right eye, -15 myopia in the left one. Something I've been struggling for a long time is doing my make up on my right eye. The let one is already hard to work with because I have to be super close to the mirror, which doesn't leave space for some pencils or brushes, but the right one seems almost impossible. I have to do a set up where I place my phone camera to my blind eye to try to see what I'm doing, but it's still very hard

So I wanted to ask if anyone knows a hack, maybe a way to position small mirrors or something like that, so I can make this task easier for myself