u/HeroOftheMoon0

I(F27) was recently diagnosed with retrolisthesis L5S1 grade 1 and osteoarthritis. My retrolisthesis was most probably degenerative due to a brain tumor that caused very accelerated metabolism. The tumor is now gone but of course the damage is done and I still cannot stay seated for longer than 2 hours or my left half of the hip and left leg will hurt for days.

Right now I'm wearing a dorsolumbar corset/brace and doing breathing exercises and reverse crunches with a inflatable ball, also lifting 1 kilo weighs, but nothing seems to do much for my pain, I used to use an elliptical but I heard it was bad for retrolisthesis so I stopped. 2 weeks ago I had to sit for 3 or 4 hours straight and my leg had been in constant pain since. the only times I don't feel pain is when I'm constantly walking, and sitting makes it way worse. So I was wondering if walking is the exercise I really need to start rebuilding the core strength and stop the pain.

I can't really just go outside and walk because I live in a rural zone and I'm visually impaired so if that is the most recommended exercise then I'd need a walking machine instead.

Most of us have big problems because of our blindness or visual impairment, but I wanna know if or what are the "small", "unnecessary" or "insignificant" things we missed on or problems we have due to it. Things that most people wouldn't consider a problem, or that you might feel bad about complaining because there are worst problems to think about.

For example, for me, it's not being able to ride an electric motorcycle. It's been my dream since I was a kid. I wanted to wear my leather jacket and ride my motorbike around and be super cool, and it's the one thing I cannot do, it's not even legal, and it hurts, it's like the one thing saying "nope. That thing about "you can do whatever you put your mind to" not for you. Don't even try, it's illegal". And it sounds dumb cause I have so many more important, bigger problems. The bike isn't a necessity, I sound so childish complaining about it. But that's how I feel. What about you?

Hi. I have retrolisthesis L5S1 grade 1. It was degenerative cause I had a thyrotropinoma which caused secondary hyperthyroidism and multiple vitamin insufficiencies. The tumor is out now, so the hyperthyroidism and insufficiencies are over but the consequences are not. So I was left with -2.0 osteopenia, osteoarthritis and retrolisthesis

I've been using a dorso lumbar brace and making soft exercises in the last 3 weeks and the pain has been way better, but definitely not gone. Before tumor removal I could barely sit for 20 minutes before a flare up, now I can last maybe 2 or 3 hours. Since it's near my sciatica, the strongest pain is right by the left side of my tailbone, and from there it irradiates to my whole leg.

This had been happening less, for the exception of a few random days this month. However yesterday I was asked to be on the computer for about 3 hours and I ended up with a flare up. I took pain killers and muscle relaxers but it's not going away, and my family had planned a trip to a nice resort tomorrow. It was the only date we could use after years of me battling illness and I didn't want to ruin it for them but I know it's gonna be at least 1½ hours in the car only to go, and I'm terrified.

Does anyone know of any exercises I could use tonight to try and ease the pain or any tips to make the trip easier for tomorrow? Please, anything is welcome at this point

I'm partially blind, fully in one eye, nearsighted in the other. I live in a rural town, a poor town, in a third-world country. We don't even one traffic light in the whole place, all the streets are uneven and blocked by people's businesses, so it's a game of constantly walking through where I'm in less dange. However danger for me has been.... barely avoided, my whole life.

I've been caught between two moving trucks in the middle of the busy road, fallen/tripped constantly on street bump, even fallen into the busy road. I contantly get hurt, and as a younger person I normalized it. My parents were the kind of people to say "you can do what anyone else" and didn't even listen to me when I asked for indirect lighting for over 10 years...

A few days ago I crossed the streat because I didn't notice a mototaxi (tuk tuk) was dragging long thick metal rods behind, meters behind. They were invisible to me and when I crosses I walked between them and they bruised my feet and ankles horribly, I tripped in the middle of the road and managed to crawl out of danger.

That was scary enough, but what solution I had? After a while, this year, I almost fell into a trench. The government started redoing the roads and didn't put any warnings, I was about to step inside when the person walking besides me saw, and turn around to walk around it. I noticed and did the same, and just then I saw it. Had I fallen in there I would've broken a leg at the very least. That same day I started looking into getting a cane, and O&M classes. My family thought it was "a little too much" and made gun of my cane because "I looked actually blind"

Now I've had big problems. The last two years and a half I've been battling a brain tumor, and it did left me a lot of consequences. Osteoartritis, osteopenia, retrolisthesis, etc. But now, falling is not so... simple, falling is way more painful and dangerous for me. And lately I've noticed even with my cane, there are things I can't avoid, like when I hurt my side or arm on my blind side, on something that's high so my cane can't feel it.

Today I was about to cross the street. There were vans parked in one lane so I had to walk almost to the middle and lean even further in cause my right eye doesn't work, when I see a tuk tuk coming. I stepped back, enough to give it space, and the tuk tuk turned right, to the street mext to me. When suddenly I feel like... wind, something moving next to my blind eye, just when the tuk tuk moves right in front of me. You know what it was? A big wooden board strapped over the tuk tuk. I couldn't see it with my left eye because it was thing and I have no depth perception or my right eye because it's fully blind. I froze there. It was so close, it was centimeters or less than hurting my face, or even my eyes. What was I supposed to do? My can wouldn't have help, O&M probably neither. how, just HOW am I supposed to love in this place when every day I get hurt or put in danger *by walking 2 meters away from my house*? How do I get a job like that? Independience? And I circle constantly back and "I hate having been born" cause my mom knew it'd be disabled early on, and she accepted it. She talks about it like it was our brave miraculous story, and yet here I am struggling with every little thing because the brave miraculous story is a never ending struggle for me. This country isn't made for me, and I don't want to live this way, and if I wanna leave, I'm supposed to succed enough to get myself out? When I'm already at a disadvantage?

It makes me so angry and frustrated. I know a little people can handle their disabilities better, some seem to be able to be able to change the world for the better, or be strong enough not to be upset about ir their whole lives... and I hate it but I'm not one of them. I'm just so tired, there's not one day where I wake up and I don't hate how my life started, and how it follows me everywhere I go

I'll try to make it short. I had a friend group and we were very close. Then I got extremely sick, asked them to visit me many times, and they always had an excuse but would hang out in another house anyway. Found out what I had was a brain tumor and mentioned it, but they never checked on me, just wished me luck after the news

Only one of them reached out, the one that lives the furthest, and still came to visit me and checked on me after surgery, so I still consider her my friend.

It's been half a year after surgery and one of the girls from that old friend group, that I left silemtly right after surgery, said she had asked the other friend for my number, that she was sorry for not texting cause she was busy, and asked if we could chat again. I was sick for 2 years. She knew I was in a wheelchair and in pain with a BAD prognosis. It's been two weeks, I don't know what to answer her

I wanna say "get fucked" but I've never been that kind of person. I've felt betrayed for so long, I don't wanna see how mean that can make me. I could say "ok" then just ignore any attempts she makes to reconnect, I could ask her "if you were in my situation, would you want to continue being friends?". I feel like nothing is a good enough answer for me. It's been two weeks and I haven't answered, I want to stop thinking about this.

TL;DR "Friend" left me when I needed her the most, now she wants to reconnect and I don't know what to answer

I have very strong light sensitivity, but my parents never really realized or listened to me about it, so all of the lights in the house are direct, they only changed the small chandelier over the dinning table because I made a presentation at my institute about my light sensitivity and they felt guilty haha.

I think the only way for the lighting in my house to not hurt me is with indirect lighting. I've seen examples where the lights seem to be hidden in the edges of the ceiling. However that works I definitely can not pay to have that done on my own. So... maybe dumb question but, is there any way I can simulate it with string led lights? I bought one set and can put it on the edges of the ceiling with glue, but the leds look very strong and direct still. So I keep thinking of what I could do to kind of smooth it(? Cover it up? Like a fabric? More glue on top? Something so the led lights itself doesn't hit my eyes directly and seems more like ambiance light. Any ideas would be appreciated

I stopped talking to all of them a year a half ago. I had spent a whole year basically bed bound and in pain by that time. They knew my diagnosis was severe, it would be either a brain tumor or an autoimmune disease. I asked them to visit me basically all year long but there was always an excuse, it was too far away, my mom doesn't let me go unless it's in one car only, etc. They had come to my place before once, I had visited them twice each. I don't think I was a bad friend either, I paid for their drinks sometimes when they couldn't afford it, made plushies of their favorite characters for their birthdays or took special desserts I'd make myself when I visited. I just didn't think it was fair I got dropped the second I got sick, because suddenly all my friends dissappear with that.

Then I had the official diagnosis (brain tumor) and one of them found out (let's call him M), not really because he wanted to know, but because other people asked him to ask me. He said "oh, that sounds scary, I hope you get better" and I didn't hear from him for months after, when I asked a question on our main group, I wanted to know if someone knew a route to an event, he said "hey whats up" and I said "not great but still going, tumor sucks" he said "oh yeahhh, you mentioned thattt. Well hope ur ok", another friend (let's call her x) was online on the group, in call with M, she never said anything. X and another friend started chatting right under my text and never acknowledged me. Only one of them reached out, D. D was actually the one that lived the furthest from all of us, she had been moving out of home that year and we knew she couldn't always afford to pay for internet connection so I never blamed her for not being able to chat, I did always ask about her but she was absent most of those two years unfortunately.

Well, D immediately asked how I was doing, said she didn't know I was sick and asked what happened. I told her about it and she started checking up on me almost every week, basically we'd chat whenever she got internet again. I let her know when I was about to go on surgery, and she couldn't see the message until a few days after. poor thing went crazy when she saw it and blew up my phone asking if I was okay. Turns out she permanently moved a bit closer to my home, and as soon as I started doing better, she asked if she could visit me. We've been hanging out since then, and I also made new friends online who did a lot to include me. It showed me that my old friends didn't really try since these new people who knew me for way less time put more thought and effort into helping me. I'm also 6 months post surgery and I'm almost fully healed from that, only trying to get rid of the pain caused by osteoartritis and retrolisthesis.

Anyways two days ago X texted me, said D gave her my number, which is weird bc not only are we in a WhatsApp group together but she also has my discord and Twitter and I see her active there daily. She said that she didn't know what to say, that she was sorry for not staying in contact, and that maybe we could chat again....

Tbh I want to tell her to go fuck herself. I've been so angry at all of them. They never really had a good excuse, I went through this with other old friends as well, where they'd keep saying "I'm sorry, I'm sorry, idk why I did that" or "well I was drunk and don't remember you asking for help" and in the end the friendship stayed broken anyways because the thing is, once you live through the worst thing that can happen to you, like a brain tumor for me, and you realize you're left completely alone and not one of them could spare a day to visit you, speak slower, use an app to assist you, even though you ask for a whole year, the trust is gone forever.

So now I don't know what to say to her. There's no use in telling her to get fucked. I'm tired of being aggressive, it only makes me stressed. Idk if I should tell her just "ok" and just ignore any attempts she makes at building a new relationship, which I doubt she'll even try tbh. Like idk, idk what to say. I've been ignoring this for two days because it makes me angry again and I don't want that anger to control me and show me how mean I can be, it makes me feel like I want her to suffer because she hurt me... but I don't know how to react.

What would you do? What would you say?

I stopped talking to all of them a year a half ago. I had spent a whole year basically bed bound and in pain by that time. They knew my diagnosis was severe, it would be either a brain tumor or an autoimmune disease. I asked them to visit me basically all year long but there was always an excuse, it was too far away, my mom doesn't let me go unless it's in one car only, etc. They had come to my place before once, I had visited them twice each. I don't think I was a bad friend either, I paid for their drinks sometimes when they couldn't afford it, made plushies of their favorite characters for their birthdays or took special desserts I'd make myself when I visited. I just didn't think it was fair I got dropped the second I got sick, because suddenly all my friends dissappear with that.

Then I had the official diagnosis (brain tumor) and one of them found out (let's call him M), not really because he wanted to know, but because other people asked him to ask me. He said "oh, that sounds scary, I hope you get better" and I didn't hear from him for months after, when I asked a question on our main group, I wanted to know if someone knew a route to an event, he said "hey whats up" and I said "not great but still going, tumor sucks" he said "oh yeahhh, you mentioned thattt. Well hope ur ok", another friend (let's call her x) was online on the group, in call with M, she never said anything. X and another friend started chatting right under my text and never acknowledged me. Only one of them reached out, D. D was actually the one that lived the furthest from all of us, she had been moving out of home that year and we knew she couldn't always afford to pay for internet connection so I never blamed her for not being able to chat, I did always ask about her but she was absent most of those two years unfortunately.

Well, D immediately asked how I was doing, said she didn't know I was sick and asked what happened. I told her about it and she started checking up on me almost every week, basically we'd chat whenever she got internet again. I let her know when I was about to go on surgery, and she couldn't see the message until a few days after. poor thing went crazy when she saw it and blew up my phone asking if I was okay. Turns out she permanently moved a bit closer to my home, and as soon as I started doing better, she asked if she could visit me. We've been hanging out since then, and I also made new friends online who did a lot to include me. It showed me that my old friends didn't really try since these new people who knew me for way less time put more thought and effort into helping me. I'm also 6 months post surgery and I'm almost fully healed from that, only trying to get rid of the pain caused by osteoartritis and retrolisthesis.

Anyways two days ago X texted me, said D gave her my number, which is weird bc not only are we in a WhatsApp group together but she also has my discord and Twitter and I see her active there daily. She said that she didn't know what to say, that she was sorry for not staying in contact, and that maybe we could chat again....

Tbh I want to tell her to go fuck herself. I've been so angry at all of them. They never really had a good excuse, I went through this with other old friends as well, where they'd keep saying "I'm sorry, I'm sorry, idk why I did that" or "well I was drunk and don't remember you asking for help" and in the end the friendship stayed broken anyways because the thing is, once you live through the worst thing that can happen to you, like a brain tumor for me, and you realize you're left completely alone and not one of them could spare a day to visit you, speak slower, use an app to assist you, even though you ask for a whole year, the trust is gone forever.

So now I don't know what to say to her. There's no use in telling her to get fucked. I'm tired of being aggressive, it only makes me stressed. Idk if I should tell her just "ok" and just ignore any attempts she makes at building a new relationship, which I doubt she'll even try tbh. Like idk, idk what to say. I've been ignoring this for two days because it makes me angry again and I don't want that anger to control me and show me how mean I can be, it makes me feel like I want her to suffer because she hurt me... but I don't know how to react.

What would you do? What would you say?

I've been struggling with it my whole life, but lately, since I have to travel by taxi more often is unbearable.

I've tried not eating before the trip, eating before the trip, laying down, watching my phone, watching the window, eating gum, taking medicine for nausea. The only thing that seems to work is sucking on mint candy, but the second the candy is gone the nausea is back. I saw there were special glasses for that, but those wouldn't work on me because only one of my eyes work

Does anyone have any advice? I'm running out of options, and it feels very bad

Hi. I had been asking for the last year if anyone with a pituitary adenoma, or specifically a tshnoma like me had strong lower back and leg pain, and I did get a few people saying yes but no one knew what it was. So I think I might have found out.

I had gamma knife in December and the pain is way better, some months are worse, but apparently it's part of recovery. Anyways, I had a lumbar MRI to check if there was an issue there and the doctors found spondylolisthesis, which apparently is when: a spinal condition where one vertebra slips forward over the bone immediately below it, so it causes lower back and leg pain. Apparently there are different types like traumatic or degenerative, and since I know my tshnoma was causing osteopenia and basically most muscles/bones/cartilages in my body to deteriorate because of the central hyperthyroidism, it makes a LOT of sense that'd be the case

My neurosurgeon says level 1 and 2 can be treated with a corset and level 3 or 4 might need surgery. Basically that's what I found, if anyone with this type of tumor is trying to find the root of the pain might be that.

That's kind of it. I hope this can be of help to someone

Hola, me estoy recuperando de una enfermedad que me daba mucho dolor, así que solo usaba un par de zapatilla tipo sketchers ya que eran muy suaves.

Ahora puedo usar zapatillas normales y, aparte de las suaves, solo tengo un par azules y un par antiguo que tiene los detalles rotos.

Asi que el otro día estaba en una tienda y vi unas crema con rojo oscuro y otras blancas con verde petroleo. Quise comprarlas pero pense "deberia gastar dinero en eso cuando ya tengo zapatillas? Cuantos pares debería tener?"

Trataré de acortar eso. Tengo 27 y estoy recuperándome de un tumor cerebral. El tumor causaba descalsificacion, hipertiroidismo intenso, diabetes insidipida, etc. Basicamente todo mi cuerpo estuvo desgastandose por años. Al principio mi familia decía que era floja, que algo estaba mal conmigo y me trataban un poco mal. Las noticias del tumor cambiaron eso y fueron mas empaticos y me apoyaron mas. Pero yo tuve que hacer toda la investigación sobre mi enfermedad y pelear con los doctores ya que era muy raro

Me operaron el diciembre pasado, radiocirugia estereotactica. Basicamente ina dosis radiacion q actuara achicando el tumor entre 6 a 12 meses desde la cirugía. El tema es que... con mi familia esa "recuperancion" esta siendo terrible. Primero mi mamá insistió en tener a mi abuela en nuestra sala cuando tuvo gripe. Nos contagiamos, mi cerebro se inflamo y los sintamoas regresaron. Al 3er mes me cai porque mi mamá puso el recogedor donde le pedi que no lo dejara porque soy parcialmente ciega de nacimiento y ya me habia tropezado ahi dos veces. Me di en mi pierna lastima y estuve adolorida 72 horas seguidas.

Y ayer, los perros de mi abuela, con ka que reniego todo xq siempre se meten a mearse sus perros a mi casa y ella lo niega (yo los vi) o solo lo minimiza. Pues se mearon en mi pasadizo, me resbale y me di en la pierna de nuevo

Carajo osea... sobrevivi un tumor cerebral xq yo misma me salve investigando el tema por 2 años... y ahora no puedo recuperarme por tonterías insignificantes que no deberian pasar... los perros no son mios pero si yo cierro la puerta mi abula la abre con su llave y la olvida asi. Es dia de la madre y yo estoy en mi cama. Sin poder salir con mi mamá por el dolor. Teniamos planes, íbamos a ir de compras mañana y por esos miseros perros mi recuperación se fue al diablo de nuevo... es que estoy tan enojada

I recently heard a very small song on facebook that went "I grew up in a home where my opinion didn't matter, please don't ask me to choose. sorry I'm so indecisive, I was raised to do as I was told"

And something just clicked in my head. It's always been so hard for me to make choices. I don't have a favorite color, or a favorite movie or food. I prefer following orders than leading, and whenever I'm faced with a decision like buying this or that piece of clothing, going to this or that place my head short-circuits and I can think about the good and bad things of each choice for days and there's no answer. I always hated that part of myself, and tried to do better, but never understood why I felt like that

The song gave me a hint. When I was born, my mom got sick, and everything revolved around her sickness... and my disability. It didn't matter if I wanted my mom home by Christmas, she needed to be in the hospital. It didn't matter if I wanted to play volleyball, she couldn't do sports and my disability made it too hard for me. My grandma constantly told me my mom had enough on her plate, to not add to her stress, so I made myself little. If we couldn't buy a toy, if I couldn't watch a movie because I had light sensitivity, if I couldn't g out alone because I wasn't independent because of my disability, if my mom couldn't spend any time with me because she was sick and tired. I didn't have any choice. I could cry about it all I wanted or be upset. But things were like that since I was born. So I just had to accept it and go along.

Do you think that's why it's so hard for me? To make choices now?

Hi everyone! I'm 27F. Fully blind in my right eye, -15 myopia in the left one. Something I've been struggling for a long time is doing my make up on my right eye. The let one is already hard to work with because I have to be super close to the mirror, which doesn't leave space for some pencils or brushes, but the right one seems almost impossible. I have to do a set up where I place my phone camera to my blind eye to try to see what I'm doing, but it's still very hard

So I wanted to ask if anyone knows a hack, maybe a way to position small mirrors or something like that, so I can make this task easier for myself