Alternatives?

Do we know if there are ANY alternative treatments to Dupixent or are we forever going to be stuck with injections?

I’m not talking about switching to another biologic injection for eczema and I’m not talking about steroids since taking those long term would ruin your organs.

Is there any hope of a pill or cream or something that works as well as Dupixent that doesn’t take the form of an injection?

— (Personal context below)

I’m really struggling to continue my injections. So far I’ve done 5.
For context I have CPTSD and earlier this year (January) I went through some intense medical neglect & trauma that I still have flashbacks from.

The raw pain of the Dupixent injection is so similar to some of the traumatic pain I experienced earlier this year that I regularly end up breaking down into tears and flashbacks just thinking about the pain I have to endure.

I’ve found that the only way I can cope is to burn my skin with ice packs till my stomach goes completely numb and red. I barely feel the injection at all but the burns tend to hurt almost just as much as the injection normally does (somehow it’s more bearable mentally).

It takes roughly an hour everytime for me to accept my fate and endure the injection that takes maybe 1 minute to actually do.

I have noticed significant improvement on the medication and I am forever grateful that I’ve seen improvements but there has to be a better way.

If I and many other adults using this medication regularly have similar episodes to mine, how do we expect children to cope? How is this truly the best form of treatment?

reddit.com
u/IHave_Okay — 5 days ago

Going to a hotel next week.. (looking for advice)

(Seeking advice)

So I’m going to be staying in a hotel with my boyfriend and boyfriend’s mum next week for 3 days.

To me this is contamination hell. I’ve started preparing myself for “gross” by shoving clothes into my suitcase without caring what it touches to desensitise me a bit but all these clothes will be washed probably several times before next week.

I hate the idea of sleeping on a mattress thousands of other strangers have and sharing the same sheets thousands of strangers have. Sharing a room thousands of strangers have. The dirt and contamination is doing my head in and I’m terrified of having a breakdown.

I plan on zonking myself out on quetiapine (I use it for anxiety) to try to control it a bit but I’m aware it won’t be enough.

Any advice for coping? I really need to be mentally present for those 3 days since it’s important 💔

Thank you!

reddit.com
u/IHave_Okay — 9 days ago

UV Germ Kits (image may be triggering)

So every few months these kinds of products keep popping back into my mind on how they are probably some of the WORST things to buy someone.

For those that don’t know there are these science kits that have powders or other substances that you rub on your hands and then shine UV light over. The UV reveals where the powder has bound to germs and therefore shows you where you should focus on washing your hands.
(Image attached)

Sure as a science gift for an especially curious person it might be nice, but using it for example as an education tool for a young child just screams disaster to me.

“Let me coat your hands in this stuff that will reveal all the germs on your hands and until all the germs are gone you have to wash your hands!”

I get what it’s trying to do. It’s trying to teach kids how to be hygienic and aware of their own germs and how to clean themselves properly.

I just think if you use this kit too much or even once with a certain kid they might not feel completely clean until they use the kit to reveal where their germs are. It just worries me how many kids have started developing contamination OCD thoughts because their parents thought it would be a cool thing to show them.

Trust me I am SURE these kits have done good for certain families and people. It genuinely sounds like a really cool concept! I love science myself and if I didn’t have contam OCD I would probably find it pretty cool. However if someone were to buy me this as a gift I would genuinely cut them off forever and immediately throw it out or donate it.

Please share your thoughts below because like I can’t be the only one that thinks this right?

u/IHave_Okay — 10 days ago

Is there any meaningful benefit to upgrading?

Hi all! I have the free version right now but am willing to upgrade to premium if there’s a meaningful difference between the free version and the paid version.

I’ve seen the little blurbs of features yet I felt like it was pretty minimal in showing what’s actually beneficial to upgrading. Especially since I don’t use AI for my own personal reasons and most the features seem to just be upgrading Guava’s AI.

Can anyone vouch for how much better the premium version is?

reddit.com
u/IHave_Okay — 18 days ago

Guava’s AI Assitant. Is it locally hosted?

My question is basically the title. Does Guava rely on big AI data centres (bad) or does it locally host it in their own company building/office/etc?

Thank you for your input!

reddit.com
u/IHave_Okay — 18 days ago

How I reduced my pain today

Hello everyone! Firstly I want to say thank you for everyone’s suggestions on pain management for me. Your support means the world.

Next I want to describe how I managed to reduce my own pain with the medication incase someone else is in a similar boat and needs some reassurance and help.

1- I took the medication out of the fridge and applied Emla (numbing cream) to the injection site which I chose to be my stomach (5 or so cm away from the belly button) 1 hour before the procedure.

(Numbing cream in my experience doesn’t help however it’s a peace of mind optional precaution to take ! But yeah it doesn’t really do anything).

2- After the 1 hour was up and all the preparations had been completed I applied an ice pack to the injection site for at least a few minutes until my skin in that area went completely numb to the cold (I fucked around with this for at least an hour because I was scared).

3- I had a trusted person (my boyfriend) inject the medication into my abdomen and timed 15 seconds after the final click before removing the needle. (This is done to ensure all medication is out of the injector and into your body).

Comparatively. My thigh felt like a straight shot of general anaesthetic (excruciating for me) even with numbing cream. Meanwhile my stomach with the ice pack felt like a friend who had pinched a bit too hard for a bit too long.

For any needle haters or chronically ill people with pain receptor overactivity this is definitely a thing to try! (I have fibromyalgia for reference ^-^)

Any questions are welcome! (Please provide a TLDR for long comments)

reddit.com
u/IHave_Okay — 20 days ago
▲ 4 r/PainManagement+1 crossposts

Pain Reduction for Injections?

TLDR: Extremely painful medication via injection doesn’t respond to numbing cream. What else could I use?

Hello everyone this is my first post and first time hearing about this sub so any help would be greatly appreciated!!

So I recently started Dupixent. It’s a self-injectable medication used to treat my eczema. The problem is it is EXTREMELY painful for me and I have to do it every two weeks.

My pain receptors are differently built due to my fibromyalgia so if you’ve had this injection and it “wasn’t that bad” please keep in mind I have a disability that heightens my pain receptors. I’m also a minor.

The way I would describe it is it’s like local anaesthetic for me which the last time I had to have that caused intense medical trauma and PTSD. This means sometimes even just thinking about the pain from this unrelated medication (Dupixent) can induce full body flashbacks for me.

I’ve tried emla (a numbing cream) which I’ve used without issue many times before. It don’t do shit in this case. I believe the medication itself is what hurts the most, NOT the needle which means ANY numbing cream won’t do anything in this situation.

I’ve considered possibly asking for a green whistle or a prescription for the green whistle due to the intense trauma this whole process puts me through I’d rather not be present.

Does anyone have any suggestions for what I could use that could maybe alleviate the pain?

If you write a long response please provide a TLDR. Long posts can overwhelm us. Thank you!

reddit.com
u/IHave_Okay — 1 month ago
▲ 2 r/plural

Processing Trauma (Advice seeking)

Hello plural people

My psychologist has made it very clear how important processing and understanding my trauma is to me. I’ve discovered recently just how influential unprocessed trauma is in my life.

My life has been very hard. I’m battling with a lot right now and hoping that beginning to truly process my trauma will help.

We are severely traumagenic and considering the diagnosis of DID (we are in the process of being diagnosed).

I’m assuming it’d be best for my system for me to talk to higher ups within my system more often and have meaningful conversations with my protectors as well (past & present) on what they went through that I don’t remember well.

I’m scared this will go poorly and just make me more terrified of things I already fear and possibly make my mental health worse.

Do any fellow traumagenic systems have tips on how to approach this kind of thing within their system?

Please note if you write out a lengthy response please provide a summary, long posts can be overwhelming for us to read, ty 💜

reddit.com
u/IHave_Okay — 1 month ago
▲ 0 r/plural

Let’s create a new term for Endogenic Systems (be civil.)

Hello all! Before you rush to assumptions let me start off with I am endo neutral. I believe there are good hearted individuals identifying with the endogenic term!!

Disclaimer: I will not entertain anti-endos in the comments nor discuss the “validity” of endogenic systems. If you don’t like this topic please scroll on.

TLDR: Endogenic systems don’t identify with CDDs and therefore we should seperate them from the belief that they do with new labelling. This may help at least some anti-endos become more willing to understand endogenic experiences.

Non-TLDR:
Our system is traumagenic and we encourage learning and education on things we don’t understand personally.

I used to be against endogenic systems for probably the most common reason endo systems have heard. “It’s invalidating to OSDD & DID traumagenic systems.”
I’ve since come to learn MOST endogenic systems DO NOT identify with or claim to have OSDD/DID or really any CDD at all.

Due to the fact most anti-endos I’ve seen have this belief or thought process we should seperate endogenics from OSDD & DID terminology for a positive change.

Since endogenic systems do not associate themselves with these CDDs I feel it would only be beneficial to make a NEW term for endogenics to seperate them from the belief that they’re claiming to have OSDD & DID. I believe this might help traumagenics and other antis to be more willing to understand the phenomenon.

As I am not endogenic I would really appreciate feedback in the comments.
Be civil and treat everyone as people. Please discuss your talking points clearly and acknowledge your opinion may differ from someone else’s. Let’s debate properly, not devolve into arguments.

reddit.com
u/IHave_Okay — 1 month ago

Would anyone want lower grade attacks?

Getting burnt out from my detailed half/full bodies is anyone happy to recieve lower effort attacks? I’ll still try to put my all into them but I’d like to attack people that aren’t expecting 5 star gold medal right now 🥹

(I’m Team Tragedy, FF okay!!, my AF; https://artfight.net/\~IHaveOkay )

Examples of my higher effort attacks so far are attached just to show off my art style if anyone wants art like this :3

u/IHave_Okay — 1 month ago

I Got A 0.3% Event..

Hello Pocket players! Let me start off with a TLDR.

TLDR; I pulled the same 1 star shiny rarity card 3 times in a row and the best odds of this happening is 0.3%.

So to start off I have ONLY pulled this shiny Slowbro from Everyday Wonders, it’s my ONLY 1 star shiny card (I do have 2 star shinies) that I’ve since pulled 3 times.

My last card pull I got a special 6 card pack in which the 6th card will always have a 68.180% chance to be a 1 star shiny card with each respective card having a 6.818% chance to be picked.

I’ve gotten this one card 3 times. I’ve rolled this one 6.818% chance 3 times in a row.

Doing the math the BEST odds (assuming every pack I’ve pulled one in has been a 6 card pack because I don’t remember) is 0.3%, it could be lower.

I’m wasting all my luck on being the unluckiest in this game. Thank you for reading.

u/IHave_Okay — 1 month ago
▲ 5 r/plural

Is it possible to have collective amnesia with DID?

For some context we’ve identified with the OSDD label for around 4 years now since we discovered our system since we “didn’t have amnesia”.

Well we do actually. The way it works though isn’t “typical”. EVERYONE has the same memories. Everyone forgets and remembers the same things. Now this means we have chunks of our life we just don’t have as no one can inform me on what happened.

We have lost days, weeks and months of our life and we sometimes honestly feel like we have the memory of a goldfish considering the amount of times we forget entire conversations the second they’re over.

We try our best to log everything so we can’t forget it and this amnesia barrier also makes us incredibly vulnerable to awful people as we don’t remember the red flags to look for or we don’t remember the abuse someone we know did to us.

I cannot stress how often parts of our life are just gone from memory, this could also be impacted by our ADHD and fibromyalgia which is why it might present differently?? I’ve never really heard of a DID system having every alter retain the same memories as eachother. Usually you hear about one alter having one set of memories and another having other memories.

Even though we’ve been in this space so long we still assumed DID had to be “alter A has these memories and alter B has those memories” and/or complete blackouts of time loss between fronts instead of clear communication and collective forgetfulness.

I’m actively trying to pursue a diagnosis with my psychologist, any tips would be wonderful.

reddit.com
u/IHave_Okay — 1 month ago

Tip for Love confessions & Proposals (& a Mii editor warning)

Hi all!! Not sure if something similar has been posted here yet however I wanted to share some tips I’ve picked up on while playing the game.

For full context I’ve been playing Tomodachi Life since its 3DS release for YEARS and learnt how to manipulate certain mechanics that thankfully have still transferred over so this tip will also work for its 3DS counterpart!!

When the love bubble shows up SAVE THE GAME FIRST!!

Saving the game before activating the problem saves it in its database meaning if you close and reopen the game the bubble will still show up (so will other Mii problems/actions).

I believe there’s some slight variation to this but I could be wrong, I think I’ve seen some Miis suddenly gain problem interaction prompts when they didn’t have them before but I was too focused on the love thing I don’t remember.

This gives you INFINITE tries to get a confession or proposal to work out especially if you make a mistake during the proposal minigame, quitting and restarting will give you another attempt at it.

Now for the warning in Mii editing.

Changing the gender of a Mii for whatever reason REMOVES ALL ROMANTIC RELATIONSHIPS.
Saving and resetting the game DOES NOT SAVE YOU.

For whatever reason after changing a Miis gender even if you DON’T save the game after it has an auto save feature and that change is permanent until you change it back. So that marriage you spent a long time building is WIPED and you have to start from the start. I learnt this the hard way after realising I could make trans Miis, figured saving the game beforehand would undo any mistake and realised that precious marriage I had setup was GONE.

Instead of changing the gender please try to change the pronouns, that won’t remove romantic relationships!!

Thank you all for reading, I’m open to answering any questions in the comments!!

reddit.com
u/IHave_Okay — 1 month ago
▲ 7 r/plural

How to recognise gained sources?

Hi all! Host of a traumagenic fictive heavy system of 250+ or so here.

So basically our system doesn’t fuse alters like ever.. we’ve known about our system for about 5 or so years now and we have a low split tolerance. In the first few months of acknowledging our system our brain freaked out and split 20 people a week /hj

On top of not fusing our alters also don’t gain new sources. We’ve met and been friends with some people that have like 20 sources individually from completely different medias. We don’t do that? Instead we have “duplicates” of the same person just from a different source in their universe.

Because this is an experience we don’t have I really want to educate myself on what it’s like so I can either hopefully help my headmates in processes of fusing/gaining sources or even recognise if it happens. We’re aiming for fictional multiplicity but I don’t want to inhibit someone from fusing if that’s what that alter wants to do.

Questions about us are also welcome!

reddit.com
u/IHave_Okay — 1 month ago

What are the top reasons people looking for alts?

I’ve seen this subreddit appear on my timeline a few times now and the nature of it has kind of confused me a little.

I use discord DAILY and it consumes easily half of my daily hours. I haven’t heard any major controversies about the app (though I could be uneducated) and am wondering why people are looking for alternatives?

I will say discord is NOT perfect and I’m genuinely coming at this with an open mind to learn more about people’s decisions! I want to hear why you’ve decided to switch apps.

Edit; thank you so much to everyone commenting and providing some good insight. I’ve since learned about the horrendous nature of discord’s privacy issues among others. Please continue to educate me below I’m genuinely loving learning more about this.

reddit.com
u/IHave_Okay — 2 months ago

Art Themed Profile Decorations

Hi!! I’m trying to see if there’s any art themed profile decorations?

I’ve just scrolled through the shop page briefly but can’t find anything really. I think discord sometimes rotates out its decor so if anyone has a link or image or knows of the theme name for a decor piece that’d be awesome!!

The reason I’m looking is for Artfight in July. I wanna be dressed for the occasion /silly

reddit.com
u/IHave_Okay — 2 months ago

Is anyone else HATING ArtFight’s UI rn?

I’m trying to update my characters descriptions and for some reason the text has not only somehow become chunks of different sizes but also the webpage keeps almost phantom freezing. The page itself accepts movement and inputs but nothing goes through.

I can type and push buttons as much as I want but it doesn’t actually register any of that. Meaning it’s only until after I’ve already done half an hour of typing I realise the page isn’t actually reading my inputs and I have to refresh the page. Deleting all that work.

I had to switch from my phone to my iPad since I got a typing bug as well which locked my screen to be selecting text and permanently scrolling my page upwards no matter how much I tried to fight it. Switched from the Character Info to other tabs and it still did it until I refreshed the page.

This UI is killing me to use, I feel so demotivated to add or update detailed characters. Is anyone else experiencing bugs like this or is it just homophobic rn /silly.

u/IHave_Okay — 2 months ago