u/Impossible-Number-60

I’m curious if this is a common phenomenon. I went gf at the end of 2024 for gerd and started eating it again last fall. I didn’t suspect celiac at all at the time or even NCGS. I realized after eating gluten again I’m even more sensitive to it than I was before. My meds quickly stopped being effective, stomach issues worsened, chronic pain worsened, dysautonomia/POTS worsened just a week or so after eating gluten again. Maybe I just lost my tolerance for it? I spent most of my 30 years prior eating gluten daily, had some issues off and on some of them chronic but they never seemed to be effected so dramatically before.

Disclaimer: I have already switched back to a GFD and am working on eliminating wheat from my home altogether. I will be speaking to my doctor about this and seeing if celiac testing is right for me.

I’m curious if anyone here has an experience like this. I’m not super educated about celiacs, never been tested, and I suspect I just have non celiacs gluten sensitivity. In recent years I’ve had worsening chronic conditions, dysautonomia, cervical spondylosis, hormonal imbalances, weight gain etc.

I decided to go gluten free a year and a half ago because I developed gerd and a worsening histamine intolerance. When these issues let up a little I incorporated it back into my diet. Everything seemed okay at first, but slowly my chronic pain and inflammation worsened, I also, for the first time in my life, could not tolerate potatoes in any form after a few weeks. I cut gluten back out of my diet and am able to eat potatoes again. I’m not sure if it was a coincidence or if gluten sensitivity can cause more food intolerances.

The last time I got an A1C test was about a year ago and it came back as 5.6%. At the time I didn’t realize how close that was to actual pre-diabetes and I was not educated by the provider about it at all. I suspect it’s because I live in an area where diabetes is extremely common and they’re used to seeing values much higher.

I have been diagnosed with both dysautonomia and cervical spondylosis which have both worsened in recent years and been aggravated by Covid. I now heavily suspect my Spondylosis, which is just a blanket term for arthritis and other degeneration issues, and dysautonomia are directly related to my (potential) insulin resistance and reactive hypoglycemia.

I’m attempting to cut carbs slowly but I’ve found the calorie drop and false lows really aggravate my dysautonomia, which causes adrenaline rushes, palpitations, hot flashes etc. I feel like I’m in a low when my blood sugar is a steady 90–115 throughout the day. Does anyone here have any tips for adjusting to lower (not low) carb and tapering off of sugar? Any advice is welcome.

I should say I do have a glucose monitor and check my blood sugar frequently. I’ve found a carb heavy meal will spike my blood sugar to the 150s within an hour and often drops back to 100-110 in another hour. These ups and downs have been hell. I also have a histamine intolerance, I suspect mast cell issues too, and my food options are so ridiculously limited.

Curious if anyone here has carotid sinus hypersensitivity? I suspect I could have this. I use a neck massager on my neck and shoulders because I have cervical spondylosis and extreme tightness in those areas. Have also had pretty bad whiplash in the past. I noticed recently almost every time I’m using the massager on my neck my heart rate goes down into the 40s and will go back up when I remove it from the neck area. After researching this phenomenon it could also explain my hypotension. Definitely not touching my neck with an at home massager anymore and will be speaking to my cardiologist about it.