u/IndustryFar3816

So guys hi , I'm 19 m having retinal blood vessel inflammation problem . So basically life doesn't feel like living it all feel like a survival run on prednisolone pills. The problem seems aggressive and hasn't been improved with pred and doctors have said to come after 1 month and seems to change the treatment if I don't respond well. How do you live a normal life with this problem , also unfortunately my best corrected visual acuity in the affected eye is 6/24 with metamorphopsia (distorted/warped vision) so i basically can't use the affected to read if I try I will end up with headache so I'm jus surviving and crippling in fear about my other eye. It all happened unexpectedly and I didn't know that I will be worrying about eyesight ever in my life it is 2:47 am now Here in India. So how do I live a normal life without trembling about the flare ups I'm so grateful for the vision I'm left with but equivalently I also concern about my other eye which actually helps me on everyday task now else I'm actually done for.i was studying in uni but I'd taken a drop year suggestively to treat my vision first which I don't have bit of confidence that it will improve . How do you live a normal life having a sense lesser than others ? How to escape this reality ? . I have came across many post where many of our guys has this 5+ years damn this problem is so so concerning. I couldn't sleep nowadays I have a possibility of losing my quality of life which actually occured to an extent also fear I might actually lose total ability to read , I need this ability cause I have to graduate yet and I can't adapt to screen readers like software. so far through this journey I'm mentally f*cked up . and I'm the class topper , so I feel like I'm nerfed in a very brutal way . This is such a mess even though there are lot of support there doesn't seem to an escape ,sometimes don't feel like it and wanna end it all. so yea wad living a greater life doing coding building projects , watching series but nowadays simply lost interest in doing so , I'm unable accept this life mainly due to my age and what I'm currently doing. If this problem had a bit later in my life like some 50 or 60 I wouldn't even complain about it. people of my age enjoy their lives while I wait on opd for my doc visit. I feel this downhill of my life is so so personal I simply don't wanna live anymore but I won't end myself yet this life seem is top absurd. so that's all about the vent. sorry for posting frequently. thank you

Hi friends, so due to retinal complications my vision in left eye is mostly down and it causes distortion . So it affects my daily life tasks which includes coding and some other stuffs. is there any easier way to occlude disturbing vision . I would to Like to try out what people call occlusive lenses yet I don't had any prior exp on lenses. Currently wearing a patch but it draws too much attention and it is also disturbing to wear all time so not considering it much . I would definitely go for occlusion lenses tho if it is actually worth it . Also please put the product link fellas .

So long story short need help to buy product which is attention-free and easily equipped. Kindly help out guys, thank you !

Hi I got diagnosed with RV May of 2026 actually it was symptomatically presented during April but it wasn't correctly diagnosed at that time. So yea I still has this is there an endpoint to this I'm so fkin tired of steroids and other additional pills.

I'm 19 only , hope there is some mercy for me I'm sick of this life like what is the thing causing this vroski 😩 doctors couldn't find it so im on trial or error medication now like if this heals this might be the cause like that bro well whatever 🥲. Also there ain't specific subreddit for RV so I'm posting here. Damn this condition is too sickening .

Also mine did some damage to vision like caused metamorphopsia, this thing even created migraine so I use patch when working.

Anybody had RV Please share your story and also what caused yours .

Hi friends I'm Indian CS major want to connect with Indian tech folks from this community . Mainly wanna talk about challenges in IT .

Hi I'm 19 M I'm used to be a competitive coder but since the unfortunate event of losing my functional vision in my OS , I jus bedrot these days . Any tips on how to find a new life. I started studying CS from 2024 it was all good until Apr of this year my vision in OS dropped significantly. So nowadays I hate to look on computer screen since I have distorted vision , even the blurriness is ok the distorted part is unacceptable one like cuh wat we perceive is ain't real . So yea guys also I'm from India country which quite doesn't give damn about people's hardship like mostly yet there are ppl who help. I jus wanna know what job yall do , I'm trying to jump from CS to any other career which feels safe and good for my eye. THANK YOU!

So hi guys I'm a 19 m functionally monocular means only good vision in one eye jus wanna connect with people who are also monocular . Sorry If im breaking any rules , I jus needed to vent my hardships with someone who also faces similar situations.

Nanri!!!

So hi I'm 19 m , I recently become functionally monocular due to uveitic complications so therefore my binocular vision is just straining . The main problem is I skipped 1 month of university because of the above stated condition. I feel isolated and different now so it is a bit challenging life than I had before when I was good . So how can I overcome this challenging life and adapt with my new normal ? Anybody here has my same experience how do u get along with friends again I feel too different now .also I was at home from jun 5 and still Here . Yesterday went to uni to discuss regarding my absence so the positive part is the staffs seems supportive tho . I don't wanna skip uni but it also feels challenging to face a loss of sense . Now I'm at home to avail some of my medications then I'm deciding to board to my uni to pursue my studies coz I don't feel like skipping an important part and I only have 2 years left so I guess I can overcome it. So Anybody who become monocular or was monocular during your university time could you share your experience on how did you tackle them coz you know its jus crazy but i still feel grateful of what i have yet i dont feel complete with this life. I was watching series before (when i dont had these condition) happily but nowadays i dont feel like doing anything tho i just bedrot all day and sometimes i go thru mental breakdown so thats y im venting here. Thank you...​

Hi guys does anybody got new floaters from use of prednisolone?

Hi guys I'm 19 M from India. I'm suffering from retinal vasculitis . In recent times my vision got worse in affected eye . Life was so good I.e before the retinal vasculitis after this thing my life changed upside down my vision went downhill... many pills , frequent blood rest, no remission or assurance . I'm a bright student , I had a good future ahead this diagnosis turned my life upside down I'm only going to too many hospitals here and there . I feel hopeless now, I jus wanted to end it all but I failed I tried self strangulation today but all it did was pain to my neck. I fear that I'll lose my eyesight . This disease changed my life forever . It changed my parents it killed their happiness and mines.nothing seems interesting anymore. Only thing which can make me calm is ending myself. I'm sorry if I'm sounding depressed. I just wanted to get it of my chest. Each and each every day feels like bad day.i don't know what is my life anymore. I'm unable to live this life.

Hi guys I'm 19 M from India. I'm suffering from retinal vasculitis . In recent times my vision got worse in affected eye . Life was so good I.e before the retinal vasculitis after this thing my life changed upside down my vision went downhill... many pills , frequent blood rest, no remission or assurance . I'm a bright student , I had a good future ahead this diagnosis turned my life upside down I'm only going to too many hospitals here and there . I feel hopeless now, I jus wanted to end it all but I failed I tried self strangulation today but all it did was pain to my neck. I fear that I'll lose my eyesight . This disease changed my life forever . It changed my parents it killed their happiness and mines.nothing seems interesting anymore. Only thing which can make me calm is ending myself. I'm sorry if I'm sounding depressed. I just wanted to get it of my chest. Each and each every day feels like bad day.i don't know what is my life anymore. I'm unable to live this life.

Hi guys , I have metamorphopsia and blurry vision in my affected eye due to retinal vasculitis which affects my binocular vision. So I started to work by patching that eye. But unfortunately I felt headache by using this method. Is there any way to overcome headache ? Since I can't work with binocular vision (metamorphopsia, double vision) . Anybody here only working with one eye , sharing your experience will be a great thing for me. Thank you!!

Hi guys I'm 19 M due to some retinal complications in my left eye I have metamorphopsia and poor vision ,basically lack of proper vision in that eye. So today I tried patching the affected eye and to work. When I'm into working on laptop using one eye I faced headache along with sweating . I'm confused if it is due to working only with one eye or warmer environment. Is there any ways to avoid headaches working with only one eye. Sadly I can't work without patching my brain doesn't able to overcome the metamorphopsia. I'm struggling either way now.

Guys is this a common thing ? that using one eye could cause headache . Coz im trying to join a software related work things are already hard for me . can I get adapted through the times ?.

Please share your opinion friends.Thank you!

ACE - 12
HIV , RPR - Non reactive
TB Quantiferon - 1.200 (Positive)
Mantoux - 15mm (Positive)
According to FFA it seems granulomatic .

Guys i have started on ATT on empirical diagnosis to rule out presumed TB. I also have taken CE CT , XRAY , CT Abdomen , USG guided FNAC all of these came out as normal . also im currently on prednisolone 60 mg i got a flare once ( june 25 sudden blur which i last had on may 19 it gone with my 1st injection doc didnt state what it is possibly an anti-vegf).

I dont know if i have autoimmune disease can anyone please help how to identify autoimmune markers are there any test to diagnose autoimmune disease.

Hi i'm 19M , In recent times i have been diagnosed with retinal vasculitis treating it with ATT (empirical diagnosis from several tests) maybe autoimmune cause too but doctors need to rule out infectious etiologies first for safer treatment process. due to this condition i find it really really difficult to read , see faces and the vision in that eye is feeling like everything i see through that is not real , like things feel bent and i cant even read text in phone due to macular involvement , i have a PRP coming up next week . Also im a CS major i feel like things are just over for me like life just become total upside down getting this at this age feels so overwhelming I have no one to share my feelings . what im going through each and every day feels like a bad day for me thinking of old days makes it much worser . Feels like there is no Hope for me to recover from this condition.

Also I need tips to live with what is left please help guys .

Hi guys in recent flare I had macular edema , I was only suggested to use prednisolone oral pills . But I can't catch improvement visually so it kinda makes me sad . Anybody here with posterior uveitis followed this ?

Hi guys in recent flare I had macular edema , I was only suggested to use prednisolone oral pills . But I can't catch improvement visually so it kinda makes me sad . Anybody here with posterior uveitis followed this ?