u/ObtusiWatusi

Needing scripture. Every time I actually depend on my husband to cook a meal or help clean the house, I’m met with some sort of fit that causes an argument. I have multiple autoimmune diseases & I started my period today, so I’m in pain on the heating pad, trying not to bleed everywhere. The same stuff that overwhelms him is the same stuff I do day in & day out w/o throwing a fit or arguing or making some kind of scene. And I’m in pain most days because of the crippling autoimmune diseases I have. Sundays are for Christ, not arguments. God knows I’m angry this morning. I need scripture for what I’m going through. Most days I wish I were more like my husband, but today I wish he were more like me. God bless all of the moms out there, raising children in these kinds of homes. We do not get the luxury of throwing a fit, we just do what needs to be done. I pray we raise boys who break this cycle & girls who understand their worth enough not to tolerate this.

It’s not electrical!! A single load smells like I poured fish oil all over it. It’s awful! I wash my organic cloth pads & our underwear together on a sanitize wash w/ Biokleen Bac-Out AND Biokleen detergent, both enzyme products. I’ve never NEVER had them come out smelling anything but clean. Ever. I’ve been doing this for 6yrs. The only thing I did differently was I washed some of my swim suit bottoms in w/ the load. So idk if it was a combination of the iron & chlorine or what, but I have washed the load twice, at different temps & the smell wouldn’t come out. The pads, ironically, have no smell at all. The rest smells like a fish pond or fish oil. Has anyone else found a way to get the smell out??? I’m willing to soak them in whatever at this point because it’s making me nauseous & uh, we need clean underwear.
I took everything out individually & it’s DEFINITELY the swim bottoms that I bought from Amazon (made in china). Idk if it was some sort of chemical reaction or what. They stank up the entire load except for the natural fibers.

Has anyone had any success w/ nicotine patches?? I’m reading all kinds of stuff about how it can help w/ POTS, nervous system, long covid, & inflammation & stuff. I’m curious but nervous to try it without asking. I’m super light weight & don’t know if it would make me throw up or cause more issues than it’s worth. I have alot of inflammation & nerve pain though.

Blood tests only show that I have disease & inflammation. We both suspect P.A. but rheumatologist said that since I don’t have bowel issues like diarrhea, he can’t label it. He says it’s a gut disease. 🤷🏼‍♀️ This is my 3rd rheumatologist & my 4th round of testing. Honestly, I give up. He’s the only 1 willing to treat me without a label, so I will take what I can get. He has me on hydroxychoroquine & upped my dosage. He claims this will help w/ the inflammation & fluid retention. I’m here to get info from others who have Psoriatic Arthritis. What’s it like, how do u manage it, things to avoid, meds that are better than others, etc. I have managed the oozing scalp sores w/ medical cannabis, but I’m hoping that the higher dose of the med I am on will take care of the rest of the symptoms I’m having. I’m just very uneasy about taking prescriptions. Especially 1 that can potentially poison me the longer I take it & the higher dose I am on 😅

My child’s breath has smelled sickly sweet for 2 days. I am the diabetic, but I’ve been trying to loosely monitor him. He’s 9yo with Arfid, so his diet is a huge concern. Today, day 2 of the fruity sour breath, I decided to grab his fasting blood sugar. His fasting blood sugar was 117. I need some sort of validation or a calm down talk cuz I’m panicking. I called the pediatrician & my endocrinologist & left messages. They will not get back to me for over an hour. I’m a freakin wreck right now. Somebody talk to me. I cannot fathom a life where my child with Arfid has diabetes.

Scrolling through posts, I feel like I’ve found the right group to ask in finally. I’m trying to surprise my husband. We have owned a Traeger for a few years, but tbh… it sucks & we’re bout to put it on the curb. Is it possible to find something that smokes, grills, & has a flat top to cook breakfast on? Or maybe a flat top attachment? Or am I going to have to buy something separate? Or is it 1 of those situations where I will find all-in-1, but the quality will be poor? This brand is new to me, but I’m impressed w/ some of the posts I’ve seen. Just a wife looking to surprise her husband w/ something better. Might be searching for the impossible, idk. 🤷🏼‍♀️

Is there a home where we can go to be cared for? Because I’m literally tired of trying to live in a society that i am not compatible with. I can’t function. If my body isn’t in pain or swollen, I am extremely tired & just want to sleep all day. I am a burden. Where do people who are a burden go? Because although I am only 34yo, I feel like I belong in a nursing home. It feels like I’m just suffering until I die. I can’t afford maids, I can’t afford a chef, I can barely afford the BS they call healthcare. I’m just kind of done trying to participate in a society that is not built for people like me. I can’t even work & yet I can’t get any kind of disability because doctors can’t figure out what I have. You have to name it to see if the gov’t agrees that u can’t work. Even tho I have not worked in over a decade. I just want to go somewhere where I can live at the pace my body allows me to. 💔

I shouldn’t have to plead for my life every single time I need my insulin or supplies refilled. I pay FL BCBS $1,100mo to have to fight for my life & they barely cover anything anymore. Where can I order cheap Fiasp insulin & Tandem pump supplies from? So that I can work out a way to get off away from these crooks we call insurance companies.

I shouldn’t have to plead for my life every single time I need my insulin or supplies refilled. I pay FL BCBS $1,100mo to have to fight for my life & they barely cover anything anymore. Where can I order cheap Fiasp insulin & Tandem pump supplies from? So that I can work out a way to get off away from these crooks we call insurance companies.

Looking for a local company that builds playgrounds for schools that would be willing to help out a special needs school. The company would need to be able to do everything, from planning to installing the equipment.

1 of the things that makes me flare up very badly is coffee 😩😩 This past week, I’ve needed all the coffee & energy drinks I could get & I have 1 more day to survive. What helps y’all quiet down a flare up?? My joints are so swollen that I’m having a hard time walking. Just to clarify tho, I’m not usually irresponsible like this. I gave up everything that causes me flare ups, but this week needed coffees. I tried alternating between the energy drinks & that may have offset some of it, but my gaaawsh. Is there something I can do at home or buy from the store that can help alleviate this?
*I’m not asking for judgement because nobody walked my shoes this week. I just need legitimate tips for flare up.

When does Sunburn have sales on flower? I loooathe the parking, but when I have an autoimmune flare up, their flower has worked best. I need sales tho. Broke girl summer started last month 😅

Rheumatologist called back & left a worrisome voicemail. I called back 16x over a span of an hour before getting somebody. They called just to tell me that my rheumatologist said that autoimmune diseases can’t cause a pericardial cyst, but he wants a copy of the echocardiogram…. I said “That’s funny cuz I looked into it online & it says Rheumatoid arthritis & SLE can cause it. Why does he want a copy of the echocardiogram if autoimmune diseases don’t cause it?” She was just “relaying the message”. I mean, why tho? It sounds like he doesn’t believe I have 1 & he’s trying to see if I’m lying if he doesn’t believe they’re caused by Autoyadayada. All I’ve done is keep this dude in the loop & now I feel like I’m being gaslit.

I wanna learn cello so bad! Unfortunately I have autoimmune diseases that have affected my hands. They are weak & often numb & occasionally they spasm. Does this mean playing the Cello is out? Or do they make something for handicapped individuals to help hold strings? I feel like this would be so therapeutic for me. I’ve always loved the sound, but my passion was recently renewed when I watched Music of the Heart.