u/TheGentleComeback

What does this mean?

Diagnosed with the following today, due to Spondylolisthesis and Bilateral Pars Defects:

Myofasical pain
SI Inflammation
Nerve root inpingement
Facet medial pain

Can someone please explain this in like a visual way? Where does this all start? What do I need to treat as the root cause?

reddit.com
u/TheGentleComeback — 4 days ago
▲ 12 r/PMDD

Who else just found out about PME? Do I even have PMDD?

I was diagnosed with PMDD at age 19, now 6 years ago. I have been in medical menopause since and not willing to come off because of the suicidality I used to experience the week before my period. In the last 6 years, I found a mental health medication that works and my mental health is great but I don't know if that just from the Effexor OR from being on Effexor and Lupron.

How the heck am I supposed to find out now if I actually have had PME all this time and would be fine not on Lupron?? I know I could try coming off the Lupron but if I found out after 2 weeks that I do in fact have PMDD then I would be waiting weeks for Lupron to start working again when I restarted it.

reddit.com
u/TheGentleComeback — 6 days ago

What are your doctors doing for complex pain?

I am 26 and have had pain since before age 10.

Today I was diagnosed with the following as a result of mild spondylolisthesis with bilateral pars defects:

- Myofasical pain
- SI Inflammation
- Nerve root inpingement
- Facet medial pain

All conservative and medication options have been eliminated. (Please don't comment telling me to try Pilates or physio)

Spine surgery consult recommended.

Cane and/or walker not advised due to possible increase of pain long term.

Not a candidate for RFA due to my age and multifaceted pain.

Doctor is willing to try a SI joint injection and epidural steroid injection when I can take a week off work incase it makes things worse. He has very little belief it’ll actually help because of the type of pain I have.

Referred for a bracing and gait assessment.

Has anything actually helped that maybe hasn’t been considered yet?
Physiatry? Specialized PT? Bracing? Surgery? Different injections? Anything?

reddit.com
u/TheGentleComeback — 7 days ago
▲ 4 r/backpain+1 crossposts

What are your doctors doing for complex mechanical back/leg pain?

I am 26 and have had pain since before age 10.

Today I was diagnosed with the following as a result of mild spondylolisthesis with bilateral pars defects:

- Myofasical pain
- SI Inflammation
- Nerve root inpingement
- Facet medial pain

All conservative and medication options have been eliminated. (Please don't comment telling me to try Pilates or physio)

Spine surgery consult recommended.

Cane and/or walker not advised due to possible increase of pain long term.

Not a candidate for RFA due to my age and multifaceted pain.

Doctor is willing to try a SI joint injection and epidural steroid injection when I can take a week off work incase it makes things worse. He has very little belief it’ll actually help because of the type of pain I have.

Referred for a bracing and gait assessment.

Has anything actually helped that maybe hasn’t been considered yet?
Physiatry? Specialized PT? Bracing? Surgery? Different injections? Anything?

reddit.com
u/TheGentleComeback — 7 days ago

I’m 26 and have severe PMDD that responded extremely well to Lupron + norethindrone add-back. I’ve been on Lupron since 2020 continuously.

I just had an appointment with my OBGYN and she told me there is very little research on patients being on GnRH agonists this long, especially starting this young. She’s now consulting with a reproductive endocrinologist because they’re trying to figure out the long-term risks vs benefits of continuing treatment.

My PMDD was debilitating before Lupron, so stopping it is not a simple option for me. I also have not tolerated estrogen add-back well in the past.

My OBGYN specifically wanted to know what other specialists are doing in cases like this, so I’m wondering:
- Has anyone else been on Lupron (or another GnRH agonist) long-term for PMDD?
How long have you been on it?
- What monitoring are your doctors doing (bone density, labs, cardiovascular risk, etc.)?
- Are your doctors comfortable continuing it long-term?
- Have any of you eventually moved to oophorectomy/hysterectomy?
- If you couldn’t tolerate estrogen add-back, what did your doctors do?

I’m especially interested in hearing from people with severe/refractory PMDD where standard treatments failed.

Not looking for medical advice — just trying to understand what approaches other specialists are taking because my doctors say there’s very little guidance for cases like mine.

reddit.com
u/TheGentleComeback — 16 days ago
▲ 7 r/PMDD

I’m 26 and have severe PMDD that responded extremely well to Lupron + norethindrone add-back. I’ve been on Lupron since 2020 continuously.

I just had an appointment with my OBGYN and she told me there is very little research on patients being on GnRH agonists this long, especially starting this young. She’s now consulting with a reproductive endocrinologist because they’re trying to figure out the long-term risks vs benefits of continuing treatment.

My PMDD was debilitating before Lupron, so stopping it is not a simple option for me. I also have not tolerated estrogen add-back well in the past.

My OBGYN specifically wanted to know what other specialists are doing in cases like this, so I’m wondering:
- Has anyone else been on Lupron (or another GnRH agonist) long-term for PMDD?
How long have you been on it?
- What monitoring are your doctors doing (bone density, labs, cardiovascular risk, etc.)?
- Are your doctors comfortable continuing it long-term?
- Have any of you eventually moved to oophorectomy/hysterectomy?
- If you couldn’t tolerate estrogen add-back, what did your doctors do?

I’m especially interested in hearing from people with severe/refractory PMDD where standard treatments failed.

Not looking for medical advice — just trying to understand what approaches other specialists are taking because my doctors say there’s very little guidance for cases like mine.

reddit.com
u/TheGentleComeback — 16 days ago