u/Victoreonnnn

Hi everyone, so for background I have had 5 laparoscopies and also my right ovary and appendix removed. This is not my first rodeo and in fact this is honestly me waving the white flag. I’ve been struggling since I was 14 with sharp pelvic pain. I was diagnosed with PCOS when I was about 18-19 and I thought taking care of that would solve the pain issue. However it didn’t, not even removing my right ovary or appendix has solved this problem. I am in debilitating pain on a very consistent basis to the point where I genuinely cannot do things I enjoy outside of home activities. I throw up from how bad the pain is and have even almost felt like I was going to faint from a breakthrough pain. I’ve tried norethindrone, Apri, torodol and tylenol every 6 hrs, yoga, stretches, hot baths, over the counter pain patches and balms, but nothing works. I have given up on going to the ER for this even if it’s 10/10 pain because I was told “it’s not our job to treat this.” And just haven’t felt comfortable going back since. Usually at the ER the IV pain meds even if it’s just IV torodol does help take the edge off at least. I haven’t experienced being pain free for more than a few days at a time and even then when I say pain free I just mean my pain is under a 5. I was seeing a specialist who wanted to do a hysterectomy and I had one scheduled however POTS complications and having to wear a heart monitor for 2 weeks made it so I wasn’t able to have the surgery and I was having second thoughts anyways regarding the surgery. I am not really interested in hormonal options because I have fragile mental health and MyFemBree gave me horrible suicidal ideation and obviously that’s not something I want to deal with on top of the things mentally I am working on in therapy and with medications. So I’m really just at a loss with what to do given the complexity of the situation I guess. I’m going to be adamant about the hormonal side effect concerns and also just try to advocate the best I can given I’ve been dealing with this for almost 16 years at this point.

TLDR; what questions should I ask the new specialist I am meeting with tomorrow given that I’ve had 5 previous surgeries and tried different methods for pain relief and ultimately have had no relief?