u/VomitInMyVans

▲ 1 r/cfs

cfs and heatwave survival?

Hi! I am wondering how yall manage heatwaves? Last year i kept suddenly seeing only black. Spent the whole day at the pool that was my only way to cool down - i cant do that anymore due to mcas and the chlorine and also seasonal allergies being REALLY bad. So now i gotta stay at home and i'm terrified bc the first heatwave starts TODAY😳🙂

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u/VomitInMyVans — 1 hour ago
▲ 4 r/POTS

How to survive heatwave?

Hi! I am wondering how yall manage heatwaves? Last year i kept suddenly seeing only black. Spent the whole day at the pool that was my only way to cool down - i cant do that anymore due to mcas and the chlorine and also seasonal allergies being REALLY bad. So now i gotta stay at home and i'm terrified bc the first heatwave starts TODAY😳🙂

reddit.com
u/VomitInMyVans — 1 hour ago

what brakes not to get???

i heard something about people getting their thumbs hurt when self propelling but couldnt understand what type of brakes causes that issue? can someone explain please?

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u/VomitInMyVans — 16 hours ago

how long does a fitting take? (First wheelchair, custom)

Hii!! I have a fitting for a custom wheelchair next week and was wondering how long it roughly takes? some people on youtube said 3-4 hours and i was kinda shook!
I'd love to know cause i have cfs (fatigue) and i'd love to be prepared lol.

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u/VomitInMyVans — 18 hours ago

social media ppl in wheelchairs??

Hi!! What are some content creators you watch that are in a wheelchair? i'd like to work on my internalised ableism and someone recommended i watch youtubers etc. in wheelchairs :) Thanks!

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u/VomitInMyVans — 5 days ago

Anyone else dealing with inner ableism? how do you work on it?

Hi! I have ME/CFS and wanna ask my doc for a wheel chair and when i tell you my inner ableism makes me almost cry thinking about asking for a 🦽. Like i feel ashamed and as if i'm faking it and all that. EVEN THO i dont feel any like negative emotions towards others in wheelchairs. BUT ME?

Are there any tips or maybe books about this that you would recommend? or podcasts? :)
I wanna work on this asap.

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u/VomitInMyVans — 5 days ago

Hi everyone!

I finally managed to get an appointment with a new psychiatrist. It's in exactly three months.

I am not sure how to prep. I tend to just say "i'm fine" or forget 90% of what i wanted to mention when i'm nervous - so i figured i'll make a list of all symptoms? But here's the thing, i have depression, anxiety, social anxiety, emetophobia with ocd tendencies, panic attacks, health anxiety, suicidal thoughts,... list is hella long & i feel like this would be overwhelming for the psychiatrist if i write all of my symptoms down? Or is this a good way to prep for the appointment?

And if a list is good how should i do it? digital? On a piece of paper? print it? in a journal? Ahhhhhhhh i'm so nervous/ excited lmfao.

reddit.com
u/VomitInMyVans — 17 days ago

Hi everyone!

I finally managed to get an appointment with a new psychiatrist. It's in exactly three months.

I am not sure how to prep. I tend to just say "i'm fine" or forget 90% of what i wanted to mention when i'm nervous - so i figured i'll make a list of all symptoms? But here's the thing, i have depression, anxiety, social anxiety, emetophobia with ocd tendencies, panic attacks, health anxiety, suicidal thoughts,... list is hella long & i feel like this would be overwhelming for the psychiatrist if i write all of my symptoms down? Or is this a good way to prep for the appointment?

And if a list is good how should i do it? digital? On a piece of paper? print it? in a journal? Ahhhhhhhh i'm so nervous/ excited lmfao.

reddit.com
u/VomitInMyVans — 17 days ago

I tried restarting it too. It's the red mario edition switch. It stops when i plug in headphones (i never used any before). But it doesnt disappear at all.

u/VomitInMyVans — 20 days ago
▲ 8 r/cfs

I cant take breaks rn, cleaning, kitty at the vet, lots of driving, shopping for the cat etc. So hella stress. I already felt my body be at its max like yesterday and today i did all that stuff i just said. So hopefully by tomorrow everything should have settled- how do yall prep for an incoming crash? because i know i will have one after this. PLUS next week i got TWO really important doctor appointments that i waited months for. So i somehow have to like survive those too, lol.
yikes. Any tips?

reddit.com
u/VomitInMyVans — 21 days ago