u/cowboy_like_meee

Hello all I’m 23 and have health issues my whole life but in the past year have been loosing my ability to walk from what I now know is tethered for syndrome. I was diagnosed with heds as a child and at 15 had a major health decline. I had a spinal hematoma and csf leak from a spinal tap and was very sick and had awful chronic back pain. I was mainly homebound for around 3 years due to how much I was struggling health wise. I eventually improved after my hospital stay and went on to live a “normal” life with chronic pain. However, In the past 2 years I’ve lost my ability to drive, much of my independence, and most of my life is now in my home due to nerve pain and mobility struggles. I have been experiencing progressive leg weakness, clonus, hyppreflexia in my lower limbs, bladder issues, debilitating nerve pain in my lower back that shoots down my legs over the past 2 years. I’ve had spine issues a lot of my life but nothing to this degree. My surgeon thinks I was born with tethered cord due to other issues I had like delayed walking and I was born with lumbar scoliosis. I also had chronic utis and was on a low dose antibiotic as a toddler which we think is related.

After almost 2 years of declining medically I have been diagnosed with tethered cord syndrome and am awaiting surgery. (I’ve also had my appendix out, gallbladder, and was diagnosed with endometriosis in the past 2 years) I have a lot of anxiety over the outcome of this surgery. It will be out of state. I’m not expecting symptom’s to be reversed but hope to stop the progression and help my pain. A few people in my life seem to think it will be a fix all when I know that’s not the goal. But I feel so much pressure. I think it’s hard for able bodied people to understand why I’d want such a big surgery to still end up being disabled if that makes sense.

I’m having a lot of anxiety about my life’s future is very reliant on this surgery. I also have been having symptoms progress and truly fear may sit and never be able to get up again. Or a small injury could be my backs breaking point. It’s hard to relate to a lot of people my age when I feel like people are worried about partying not worrying about when they might take their last steps or the risks of spine surgery. I don’t know how to express these fears without just making people uncomfortable so I tend to keep them to myself other than talking about pain. And I don’t blame them but I envy how care free people get to be. At the same time I’m also thankful I have answers and a plan for action. I also am thankful that despite my condition being debilitating it could be a lot worse. I know I am lucky to able to grieve the ability to drive as many disabled people have never been able to drive. I have a lot of fear, hope, and just a hard time connecting with others during this strange time in my life.

Surgery will be in early September and out of state. I am pretty nervous but also know this is the step I have to take. I am just looking for support! Loosing mobility is a lot to process as well as the expectations from people who don’t understand the condition to basically be “undisabled”

Hello all I’m 23 and have health issues my whole life but in the past 2 years I have been progressively loosing my ability to walk from what I now know is tethered cord syndrome. I mainly use my wheelchair or cane to get around my home + when I am able to leave. I was diagnosed with heds young and at 15 had a major health decline. I had a spinal hematoma and csf leak from a spinal tap and was very sick and had awful chronic back pain. I was mainly homebound for around 3 years due to how much I was struggling health wise. I eventually improved after my hospital stay and went on to live a “normal” life with chronic pain. However, In the past 2 years I’ve lost my ability to drive, much of my independence, and most of my life is now in my home due to nerve pain and mobility struggles. I have been experiencing progressive leg weakness, clonus, hyppreflexia in my lower limbs, bladder issues, debilitating nerve pain in my lower back that shoots down my legs over the past 2 years. I’ve had spine issues a lot of my life but nothing to this degree. And my bladder issues are so much worse. My surgeon thinks I was born with tethered cord due to other issues I had like delayed walking and I was born with lumbar scoliosis. I also had chronic utis and was on a low dose antibiotic as a toddler which we think is related.

After almost 2 years of declining medically I have been diagnosed with tethered cord syndrome and am awaiting surgery. (I’ve also had my appendix out, gallbladder, and was diagnosed with endometriosis in the past 2 years) I have a lot of anxiety over the outcome of this surgery. It will be out of state. I’m not expecting symptom’s to be reversed but hope to stop the progression and help my pain. A few people in my life seem to think it will be a fix all when I know that’s not the goal. But I feel so much pressure. I think it’s hard for able bodied people to understand why I’d want such a big surgery to still end up being disabled if that makes sense.

I’m having a lot of anxiety about my life’s future is very reliant on this surgery. I also have been having symptoms progress and truly fear may sit and never be able to get up again. It’s hard to relate to a lot of people my age when I feel like people are worried about partying not worrying about when they might take their last steps. I don’t know how to express these fears without just making people uncomfortable so I tend to keep them to myself other than talking about pain. And I don’t blame them but I wish I could be care free how other people get to be. At the same time I’m also thankful I have answers and a plan for action. I also am thankful that despite my condition being debilitating it could be a lot worse. I know I am lucky to able to grieve the ability to drive as many disabled people have never been able to drive. I have a lot of fear, hope, and just a hard time connecting with others during this strange time in my life.

Surgery will be in early September and out of state. I am pretty nervous but also know this is the step I have to take. I am just looking for support! Loosing mobility is a lot to process as well as the expectations from people who don’t understand the condition to basically be “undisabled”

Hey all I’ve ordered from this website many times. I use edibles to help with chronic pain. I’ve never had an issue until this past order. It says it was delivered on July 23 but it’s not at my neighbors or in my mailbox. The tracking says it was left if in mailbox. What should I do? I contacted them at the text number and left an email. I also filed the USPS investigation for the package.

Does delta8 resellers customer service reply? I am worried about not receiving my order which was expensive.

Hello all! I am 23 and have a lot of health issues throughout my life. I’ve had various surgeries since I was a kid. I’m currently waiting for surgery for tethered cord syndrome that has made me mostly homebound due to my severe pain and mobility issues. Webkinz has been something consistent that I look forward to even on hard days! I love this community and how caring everyone is! I’m not as active on this reddit but I want to be more often!!! I love playing the games, seeing the monthly challenges, and my room is very decorated with webkinz merch! It might seem silly but it really does bring me so much happiness! When I am in the hospital away from my pets I have pets on my webkinz that are named after them so I can still take care of them while I’m away 🤍

Last month I won a Pride giveaway on here and got the transgender box and it truly made my whole month :,) I love this community so much! If anyone wants to be friends on webkinz my username is kittylovezz and I love sending gifts, playing games in the tournament, and trading!

I also would love to know if anyone else who is disabled, deals with chronic illness, or mental health struggles find comfort in webkinz!

I am 23 and homebound from my spinal issues. I have lost my ability to walk normally in the past 2 years and use a wheelchair a lot of the time. Otherwise I use a cane. I’m awaiting spine surgery currently.

I feel like so much of the advice for trans men or trans masc is working out. I get why but it’s said so often that it makes me dysphoric not being able to work out. I do physical therapy exercises and that’s the most I can handle. Every single post about wanting to pass better involves working out. I also feel like the trans men community can be ableist even when it’s not on purpose. I get dysphoria using mobility aids which makes no sense since anyone can be disabled. But I think it’s because of the constant rhetoric in those spaces being work out, stand a certain way, present yourself confident, which I try to do the best I can but I can’t do nearly as much.

It’s not a huge deal at all but it’s just something I think about and have talked about with other trans friends. Being disabled in an already marginalized community it can be hard to find others I relate to!

Does anyone else struggle to relate to “normal” peoples daily complaints? I’m 23 and deal with debilitating spine nerve pain that impacts me everyday. I use a wheelchair and am preparing for spine surgery soon for tethered cord syndrome.

I sometimes wish when people complain about stuff in their daily lives that I could have those worries. I struggle to not wish I could worry about going out plans and such or even daily complaints like driving in traffic. My worries are about how I will be able to care for
Myself, how to manage my bladder throughout the day, and preparing to have major spine surgery. I know the grass isn’t always greener and I try to not to compare to often but sometimes I just feel that way. I feel like people don’t often realize the level of independence they have in their complaints which isn’t something they should have to worry about. But it also just how it makes me feel as someone who is mainly homebound from severe chronic pain. I wondered if others relate at all.

FTM 23 years old he/him - Hello all! I have been on T since I was 19.

To make a long story short I have tethered cord syndrome (and many other spine/ health issues) and have had many surgeries due to my physical health. I will be getting surgery for tethered cord in September as Ive been losing my ability to walk and have severe back, leg, and bladder issues. In the past 2 years I’ve lost the ability to wear a binder at all. My neck and back nerve pain is just to severe and it worsens it. I have dysphoria over my chest but I truly cannot stand physically to wear a binder it makes my debilitating nerve pain worse. I spend most of my time in bed and at home.

So onto tape. I am diagnosed with MCAS and have issues with skin reactions. I react to most trans tape, KT tape, and I’ve tried hypo allergenic tape from Amazon. All break me out in hives :/ and I can’t put tape over it after one day because if I put tape on hives it gets so much worse and spreads over my whole chest and abdomen.

I have kind of just been wearing baggy shirts and using band aids to tape down my nipples. I react to the bandaids but I am mainly homebound due to my pain and mobility issues from tethered cord so I only do it when I go out for appts and such.

I feel embarrassed at doctors appointments saying I’m trans and I have very long dark body hair but don’t bind my chest. I wish I could explain but I don’t even want to get into it as I’m already uncomfortable sharing I’m trans even if it’s obvious. My chest isn’t huge but it’s definitely not nothing and is noticeable if I don’t try to hide it.

If anyone has any advice for how to conceal my chest in a more comfortable way maybe outfit advice or certain tapes to try? It’s okay if they don’t work out but I really want a way to bind. I also just wanted to share in this community because I feel like it’s a strange issue to have with being trans. Top surgery isn’t anywhere soon in my future due to my health. I’ve had 4 surgeries in the last 2 years and none to do with being transgender 😭 and going on the 5th LOL!

Hello all I’m 23 and have health issues my whole life but in the past year have been loosing my ability to walk from what I now know is tethered cord syndrome. I was diagnosed with heds as a child and at 15 had a major health decline. I had a spinal hematoma and csf leak from a spinal tap and was very sick and had awful chronic back pain. I was mainly homebound for around 3 years due to how much I was struggling health wise. I eventually improved after my hospital stay and went on to live a “normal” life with chronic pain. However, In the past 2 years I’ve lost my ability to drive, much of my independence, and most of my life is now in my home due to nerve pain and mobility struggles. I started using a cane again around 2 years ago (I used one and a wheelchair at 15) in the last year I’ve needed a wheelchair due to my legs getting much worse. I have been experiencing progressive leg weakness, clonus, hyppreflexia in my lower limbs, bladder issues, debilitating nerve pain in my lower back that shoots down my legs over the past 2 years. I’ve had spine issues a lot of my life but nothing to this degree. My surgeon thinks I was born with tethered cord due to other issues I had like delayed walking and I was born with lumbar scoliosis. I also had chronic utis and was on a low dose antibiotic as a toddler which we think is related. I’ve tried every form of conservative management including multiple round of PT, steroid injections, multiple meds including opioid, discussion of spinal cord stimulation. I feel surgery is my best and only option to stop this progression which is very painful to watch go by.

After almost 2 years of declining medically I have been diagnosed with tethered cord syndrome and am awaiting surgery. (I’ve also had my appendix out, gallbladder, and was diagnosed with endometriosis in the past 2 years) I have a lot of anxiety over the outcome of this surgery. It will be out of state. I’m not expecting symptom’s to be reversed but hope to stop the progression and help my pain. Some people in my life seem to think it will be a fix all when I know that’s not the goal. But I feel so much pressure. I think it’s hard for able bodied people to understand why I’d want such a big surgery to still end up being disabled if that makes sense.

I’m having a lot of anxiety about my life’s future is very reliant on this surgery. I also have been having symptoms progress and truly fear I may sit and never be able to get up again. It’s hard to relate to a lot of people my age when I feel like people are worried about partying and not worrying about when they might take their last steps. I don’t know how to express these fears without just making people uncomfortable so I tend to keep them to myself other than talking about pain. And I don’t blame them but I envy how care free people get to be. At the same time I’m also thankful I have answers and a plan for action. I also am thankful that despite my condition being debilitating it could be a lot worse. I know I am lucky to able to grieve the ability to drive as many disabled people have never been able to drive. I have a lot of fear, hope, and just a hard time connecting with others during this strange time in my life.

Surgery will be in early September and out of state. I am pretty nervous but also know this is the step I have to take. I am just looking for support and venting about my mixed feelings! I’m in a pain flair right now and have been stuck in bed the past few days and just have been thinking about surgery more as it gets closer.

Hello all I’m 23 and have health issues my whole life but in the past year have been loosing my ability to walk from what I now know is tethered cord syndrome. I was diagnosed with heds as a child and at 15 had a major health decline. I had a spinal hematoma and csf leak from a spinal tap and was very sick and had awful chronic back pain. I was mainly homebound for around 3 years due to how much I was struggling health wise. I eventually improved after my hospital stay and went on to live a “normal” life with chronic pain. However, In the past 2 years I’ve lost my ability to drive, much of my independence, and most of my life is now in my home due to nerve pain and mobility struggles. I started using a cane again around 2 years ago (I used one and a wheelchair at 15) in the last year I’ve needed a wheelchair due to my legs getting much worse. I have been experiencing progressive leg weakness, clonus, hyppreflexia in my lower limbs, bladder issues, debilitating nerve pain in my lower back that shoots down my legs over the past 2 years. I’ve had spine issues a lot of my life but nothing to this degree. My surgeon thinks I was born with tethered cord due to other issues I had like delayed walking and I was born with lumbar scoliosis. I also had chronic utis and was on a low dose antibiotic as a toddler which we think is related.

After almost 2 years of declining medically I have been diagnosed with tethered cord syndrome and am awaiting surgery. (I’ve also had my appendix out, gallbladder, and was diagnosed with endometriosis in the past 2 years) I have a lot of anxiety over the outcome of this surgery. It will be out of state. I’m not expecting symptom’s to be reversed but hope to stop the progression and help my pain. Some people in my life seem to think it will be a fix all when I know that’s not the goal. But I feel so much pressure. I think it’s hard for able bodied people to understand why I’d want such a big surgery to still end up being disabled if that makes sense.

I’m having a lot of anxiety about my life’s future is very reliant on this surgery. I also have been having symptoms progress and truly fear I may sit and never be able to get up again. It’s hard to relate to a lot of people my age when I feel like people are worried about partying and not worrying about when they might take their last steps. I don’t know how to express these fears without just making people uncomfortable so I tend to keep them to myself other than talking about pain. And I don’t blame them but I envy how care free people get to be. At the same time I’m also thankful I have answers and a plan for action. I also am thankful that despite my condition being debilitating it could be a lot worse. I know I am lucky to able to grieve the ability to drive as many disabled people have never been able to drive. I have a lot of fear, hope, and just a hard time connecting with others during this strange time in my life.

Surgery will be in early September and out of state. I am pretty nervous but also know this is the step I have to take. I am just looking for support and venting about my mixed feelings!

Hello all I am 22 years old. I was diagnosed with heds at 3 years old I was sent for genetic testing for failure to thrive, short stature, and delayed walking. I have had health issues my entire life. As a kid I would have to explain to doctors what my condition was and they always had never heard of it. My geneticist was one of the only people who understood my condition.

I’m so so happy more people are able to recognize symptoms and get diagnosed. I genuinely think that is a great thing. But it’s upsetting some medical professionals simply believe heds is not real because of apps like tiktok.

Prior to the past 5 years I had never been asked if I was self diagnosed. In the past 5 years I have been asked in the ER “if I diagnosed myself from tiktok” and have been so judged before even being examined. At this ER trip I literally ended up with my appendix out. Once they found the appendicitis the tone changed and I was completely taken seriously. I’ve had multiple surgeries related to eds. I’ve been bed bound from a spinal hematoma and csf leak. Multiple hospitalizations. This isn’t something I’m doing for sympathy and most people with eds I’m sure relate. I want to do more and want the life I thought I’d have. I wish more medical professionals took the time to sit down and really learn about these conditions. It makes me feel like the script has completely flipped. I was the one explaining my condition and now I’m the one being questioned if I even have a diagnoses. Or if you mention eds/pots/ mcas together they immediately assume you doctor shopped or are self diagnosing. This adds even more issue when I have several other conditions like scoliosis and endometriosis (as do many people with eds). I feel nervous to even bring up all my conditions together. I never used to worry about this. I am on the more severe end of how heds can present especially in relation to my spine so I can imagine it’s even worse / more of an issue with less severe presentations. does anyone else relate to these feelings?

Disclaimer if it’s not clear this is not in anyway the fault of people spreading awareness and more people being diagnosed. It’s the fault of the medical system and certain providers choosing to label us all as psychosomatic when there is a very small percentage of people “faking”

I just wanted to update and say thank you so much for the support and input it means more then you know :,) over the past year I’ve been loosing my ability to walk due to spine issues. I’ve tried everything PT, so many meds, steroid injection, etc I have nerve pain from my lower back shooting down both legs that has significantly worsened. I have bladder issues and now my reflexes are hyppreflexic. I have an appointment for tethered cord soon to discuss surgery. I’ve felt so alone and the support here means so much.

Hello all I am 22 and disabled from spine issues that currently leave me mainly homebound. I am awaiting potential surgery. My pain is nerve pain and pretty constant. Worsens a lot with sitting and walking I lay down most of the day. I’ve had health issues my entire life and have been on more meds than I can remember. As a teen my health began to decline. Because of a combo of meds I was on (tramadol caused the reaction for me) I got serotonin syndrome which was traumatic. Serotonin syndrome was so terrifying. I have never been so not myself or have hallucinated other then this episode. I also was going through withdrawl from the meds and it was genuinely such a dark time. Eventually from the hospital I was able to come back from that state. But it was so scary and took a bit of time.

I am currently having withdrawl from lyrica and it is bringing up old memories. I hate having to be controlled by medicine :( I feel so lucky to have access to it and have dealt with the grief of needing meds the rest of my life pretty young. But something I still struggle with is the fear of reactions or withdrawal. It’s hard to explain to people who aren’t on meds how terrifying it is. This withdrawal will be over soon and isn’t nearly as bad but I just hate dealing with this. I don’t think of the serotonin syndrome often anymore but when I’m reminded me it scared me knowing meds can do that to a person.

It’s also frustrating explaining reactions to every single doctor. For some reason since I have had an anaphylactic reaction to fentyal that has been seen as drug seeking? When I am asking to not have it not asking for anything stronger? Also have had serotonin syndrome questioned because it’s “so rare” while I was a teen on 5 meds that upped my serotonin and had to be hospitalized for it. Does any one else deal with this frustration? It’s hard just waiting for time to pass by until my body is able to recover. It’s hard having doctors not be empathetic to reactions or fear of starting meds due to past reactions.

Hello all! I made a post about products I like for chronic pain and asked for some suggestions! I am going to order some of the products in the U.S.! I really want to try the magik CBD line. I’m planning to travel out of state for a specialized surgery consult and wanted to get them as a treat for myself! Is there anyway in the U.S. to get the magik line? I couldn’t find it at all on eBay and tried to order from the lush UK site but it wouldn’t ship to my address. I’m guessing the UK website doesn’t ship to the US. Does anyone in the UK take orders + an extra fee for helping it? if I can’t get it it’s not a big deal but I would love to try it! I use CBD everyday and feel like it would be the perfect product in my nighttime self care routine! I love how helpful and kind this community is 🫶 Lush has been a source of comfort while I have been stuck at home from my back!

Hello all I am 22 and currently mainly housebound due to spine issues I am awaiting surgery for. One of my favorite parts of my day at home is getting to have a nice Epson salt bath. I use a lot of lush products that help me feel a little more myself. Here are some of my favorites for pain / that I just find comforting :)

After massage bar - this was the first product I thought of! I love the cooling feeling and magnesium. I use this on my lower back and thighs. I like to pair this with a CBD topical balm I have! My favorite for muscle cramps!

Deep sleep bath bomb - this is one of my favorites for flare days! I love the scent and that is has magnesium and Epson salt.

Any of the perfume sticks! I keep one on my bedside and love to freshen up with them. I prefer lightly sweet and cleaner scents! I would love to try the temple balms!

Sympathy for the skin - I love how light this lotion is! It sinks right into my skin which is nice for getting into bed without that lotion feeling. I really enjoy this product! The scent is lightly vanilla but not very strong if I’m having a migraine.

I would love to try co mingle I think it would fit this list great but it not available currently :( I also would LOVE to try to uk CBD line I wish it was in the U.S.!!!

This is just what I thought of off the top of my head! Please share any products you like that help manage chronic conditions 🫶

CW - discussion of ableism with in disability spaces.

Hello all I am 22 years old and am disabled from spine issues. I use a wheelchair and cane. I use mobility aids fulltime due to my mobility issues. I have connected with some people in the chronic illness community which I am so greatful for. I want to say I have overall had great experiences and this is a specific frustration for me. I have met people who don’t struggle with mobility issues and have dealt with chronic illness who have said ableist things to me. Or don’t seem to understand certain struggles. I know everyone deals with different issues but it’s hard to figure out where to fit in sometimes. I also am not trying to lay out “who has it harder” I don’t believe comparing is productive. I fully believe in invisible disabilities (I was invisibly disabled most of my life until my spine impacted my ability to walk). I believe everyone who has a disability visible or not is disabled.

There are unique challenges with using a mobility aid which I think is okay to talk about. I’ve had people on the Reddit about my condition assume I don’t support invisible disabilities having disabled parking which I fully believe they should simply based off the story I’m going to tell. It’s frustrating having assumptions made when I am simply trying to share my accessibility struggles as a wheelchair user. I have talked about struggles with the bathroom accessible stall with friends and on reddit. I had a girl laugh at me and give me a dirty look while walking out after taking her time in the stall. There is for sure a reason someone who has an invisible disability would use the stall. I really do believe this was not the case but even playing devils advocate and say she did. She still was making fun of me for waiting in a wheelchair? And i genuinely do not think it was using the stall out of need because why would you then judge someone also needing it? I have bladder issues due to my spine and cannot just use another stall when I’m in my wheelchair. I talked about it on the reddit about my condition and people who are not wheelchair users were telling me she could be invisibly disabled instead of trying to hear out my accessibility need for one second. Yes that happens. But this scenario was someone in a wheelchair needing to use the restroom and being made fun of. I don’t understand why I’m not allowed to share my struggles without it being taken seriously.

One of the comments was saying disabled people get to skip the line so why does it matter. When I don’t skip the line and my friends who use mobility aids don’t either? I don’t know why people think being visibly disabled is a great experience. People are rude, stare, act like they don’t hear you when you ask them to politely
Move, etc. I’ve also had comments about my leg tremors, how I walk (I mainly use my wheelchair now because walking is very difficult), people come up and ask what’s wrong with you. I just think there should be space for all experiences to be shared. I know all of this comes from a place of defensiveness because everyone is neglected by the medical system. Especially invisible disabilities. I think this is why when people sometimes hear others talk about their struggles they feel invalidated. When in reality we all have our own issues and that is okay to be different. I hope this makes sense I know it’s a bit rambly. Overall I wish the world was more accessible for everyone. So everyone could have their needs met. Thanks so much for reading and if you relate at all I’d appreciate finding some community. 🫶

CW - discussion of ableism and struggles of mobility aids in chronic illness spaces

Hello all. I am a full time mobility user due to severe back pain. I am currently being looked into for OTCS and it seems things will be moving in that direction. I use a wheelchair most of the time I leave the house and frequently in my home. I really struggle with walking and my foot is turned inward making it very difficult and painful.

I was talking to a friend about how hard it is to find accessible spaces and how obvious it is when people don’t consider accessibility at all when inviting me somewhere. I know accessibility is so broad and i genuinely feel like there is another barrier of access when you use a mobility aid.

I also seem to have different opinions on the accessible bathroom as a wheelchair user even though I feel like I’m pretty open minded. I think people with mobility struggles (using mobility aids or not) and other medical reasons like ostomy etc should have priority. Use the bathroom if you have a reason to use the bar, need extra space, but every condition doesn’t require the bathroom. And needing the bathroom isn’t a signal of how disabled you are. Everyone’s experience being sick is completely valid. Now this isn’t a reason at all to police people and judge people using it without a mobility aid as that’s entirely inappropriate in any situation and not my point anyway. Thats not my point at all I believe anyone who needs it should use it. I think there just needs to be an actual reason like needing the bar. On my end it feels very shitty when I’m sitting in my wheelchair waiting and a girl comes out laughing and gives me a dirty look while walking past. This is a scenario where it is obvious what is happening but when I point it out people have gotten upset in chronic illness spaces and said she could have an invisible disability. I fully agree there are invisible disabilities that should use the bathroom BUT this was obviously not what was happening here. There are a genuine percent of people who use it without considering the person in the wheelchair who will have to pee themselves otherwise. People with mobility aids literally can’t fit into another bathroom. I think everyone’s condition should be accommodated and it also is important to consider others needs and also realize there are challenges with being in a wheelchair / having mobility challenges. If you need it use it! If your condition doesn’t impact mobility / bathroom issues / or another medical reason maybe just wait for another stall!

Does anybody else who uses mobility aids sometimes feel isolated when they speak about specific struggles? I feel sometimes wheelchair users get called out for simply pointing out significant barriers they have. I fully believe in a support invisible disabilities I have many my self. I wish there was some more room for nuance. I feel on one end people diminish mobility aid struggles because it makes them feel more comfortable and on the other end people are not accepting of invisible disabilities and thing visible ones are much harder. BOTH are hard. And have different barriers. And I think it’s important and okay for people to talk about those challenges. Everyone is still disabled regardless of what access/accommodations are used and everyone should be able to share their experiences with being disabled in real life.