u/geckoxthree

Essentially I’ve been getting these episodes for years- it consistently has been: I get up, I stretch, I get an intense headache and lose all or most of my vision. My heart pounds, sometimes my chest hurts. Often I feel like I’m having a seizure or jerking motions, although after experiencing an episode my boyfriend said I was not moving at all. I have to find a place to sit as the symptoms get worse, in case I faint, which has happened twice but years ago.
Heat tends to make my symptoms worse. While I can do active things like biking, some things like driving become more challenging. And after biking, I am knocked out for hours: I do 20kms regularly but yesterday I did 10km and I was out for the rest of the day. It was only 5 pm when I got in.
I went to the doctor and she said anemia or migraines, but this just doesn’t sound right to me.
Has anyone experienced anything similar to what I’m experiencing?

edit: my boyfriend’s mom who is a nurse suspects that vvs is something I could be experiencing.
my episodes are getting worse; i usually get them several times a week but in just two days this week I got 4, and this is full blackout; not even counting all of the times that I got a bad pounding headache or partial vision loss from stretching.

Essentially I’ve been getting these episodes for years- it consistently has been: I get up, I stretch, I get an intense headache and lose all or most of my vision. My heart pounds, sometimes my chest hurts. Often I feel like I’m having a seizure or jerking motions, although after experiencing an episode my boyfriend said I was not moving at all. I have to find a place to sit as the symptoms get worse, in case I faint, which has happened twice but years ago.
Heat tends to make my symptoms worse. While I can do active things like biking, some things like driving become more challenging. And after biking, I am knocked out for hours: I do 20kms regularly but yesterday I did 10km and I was out for the rest of the day. It was only 5 pm when I got in.
I went to the doctor and she said anemia or migraines, but this just doesn’t sound right to me.
Has anyone experienced anything similar to what I’m experiencing?

edit: my boyfriend’s mom who is a nurse suspects that vvs is something I could be experiencing.
my episodes are getting worse; i usually get them several times a week but in just two days this week I got 4, and this is full blackout; not even counting all of the times that I got a bad pounding headache or partial vision loss from stretching.

Essentially I’ve been getting these episodes for years- it consistently has been: I get up, I stretch, I get an intense headache and lose all or most of my vision. My heart pounds, sometimes my chest hurts. Often I feel like I’m having a seizure or jerking motions, although after experiencing an episode my boyfriend said I was not moving at all. I have to find a place to sit as the symptoms get worse, in case I faint, which has happened twice but years ago.
Heat tends to make my symptoms worse. While I can do active things like biking, some things like driving become more challenging. And after biking, I am knocked out for hours: I do 20kms regularly but yesterday I did 10km and I was out for the rest of the day. It was only 5 pm when I got in.
I went to the doctor and she said anemia or migraines, but this just doesn’t sound right to me.
Has anyone experienced anything similar to what I’m experiencing?

edit: my boyfriend’s mom who is a nurse suspects that vvs is something I could be experiencing.
my episodes are getting worse; i usually get them several times a week but in just two days this week I got 4, and this is full blackout; not even counting all of the times that I got a bad pounding headache or partial vision loss from stretching.

I'm travelling within Canada on Sunday, and I bought a power bank. Just now wondering though if I'm even allowed to bring it on the flight? I tried searching up a bit but couldn't find anything useful, so just hoping someone else knows.

This is the powerbank: https://www.amazon.ca/INIU-Portable-Slimmest-10000mAh-Charging/dp/B0DCHVGS2S/ref=sr_1_2_sspa?sr=8-2-spons&sp_csd=d2lkZ2V0TmFtZT1zcF9hdGY&smid=AR1T6THSKR9XB

we were not long distance for four months, now we're back at it again and it is proving to be SO hard.

I guess the matter at hand is currently that he has 3 younger brothers that adore him. I'm really struggling because my love language is quality time - texting isn't quality time. We text throughout the day. What really makes me feel connected is calls. Back in September he was at a different school where we were always on call ; and of course, this isn't sustainable when he's at home.

He transferred to my university, so now we get to be together all the time during the school year. He left yesterday morning. Of course he spent time with his family and was exhausted when he got back, so we didn't call. Today we texted about what these next 54 days would look like. It is hard, because he doesn't seem super eager on setting a time to actually sit and call. Which, is totally fair. And I get him for close to 8 months of the year

I just feel so conflicted; on one hand, these nightly calls are so important to me, whether it's 30 minutes or an hour, just something so I can see him and hear him. But at the same time there's the other extreme I'm feeling, where I don't even want to tell him about any of the bad stuff that is happening (such as a close family friend getting cancer again, or my own health issues) or ask him to spend any time with me, at all.

I'm just looking for ways to cope with such strong, conflicting emotions. It is hard, because I'm the one who got to stay, and now the house feels so quiet and everything reminds me of him. I've been keeping busy, but when there's that downtime, this is how I'm feeling, and I just want to be better for him.

tldr; really needing connection with my boyfriend, but also since I have him for nearly 8 months of the year here I feel bad for taking him away from his family to call, etc., even feeling bad for wanting to do stuff with him if he isn't busy anyway. Just looking for ways to deal with such conflicting emotions.

How do you guys cope? This semester he transferred to my uni.. we have been tg every day since January 1st.

Worth noting, one of my best friends moved away last week, and the other has been saying I'm being too much for trying to hang out every so often. Now I have like, one friend left here. I'm having a rough patch with health and my family, and it just feels like once he's gone it's going to be so lonely. I wouldn't have felt this way 3 months ago, I had my 3 friends to keep me company but now everything is so different. I'm not a person who enjoys having many friends either.

I literally haven't been able to sleep at all tonight because I'm just thinking of how he's leaving on Saturday.