u/halcyonnsky

I'm not dying right this second to the ER can't help. The urgent cares won't handle anything more complicated than strep. It takes months to see my PCP and days to get a response through messages. So what do you do when you need some help? When you're going through a really horrible flare up and need to be seen or need some medication or something, there's nowhere to go. I'm so incredibly frustrated, I don't want to do this anymore.

**ETA- I probably should have included that I use the VA which is why seeing my pcp is so complicated. It's free though and I can't afford to pay for a different doctor. I haven't been able to work consistently in 4 years because of my illness so I'm kind of stuck. I also live in a rural area so my options just aren't great to begin with.

So I have a couple diagnosed health issues like SVT and dysautonomia. Recently some of my symptoms have gotten worse. I deal with a lot of weird things like random shooting nerve pain, numbness in hands and feet, dizziness, muscle weakness, fatigue, and probably 100 other things. Now I know dysautonomia can do all of that but it has never felt like the whole picture to me. I've had a lot of tests run and they all come back normal. I stumbled on B6 toxicity today and it seems like it really could be contributing. I have been drinking electrolyte drinks and before that, energy drinks that all have B6 in them for almost 10 years. There's not much in them but if this really is cumulative then it's possible it's really having an impact. I'm not able to get a blood test to confirm but I will stop consuming any extra B6 and see how it goes. I know it can take a long time but it's worth trying.

I have diagnosed SVT and dysautonomia but I have symptoms that don't really line up with either of those that are debilitating. I haven't been able to hold a steady job in 4 years since I got COVID and developed these issues. I've had so much blood work done and several other tests and they're always normal. It makes me feel insane and I'm sure my doctor thinks I'm crazy too. Like I don't want to be sick. I don't want anything to be wrong with me. I want to work and be normal. But I'm so tired of not knowing what's going on and therefore not being able to treat it. We just did more blood work last week and I got the results and of course, nothing. Which yay, I don't have Addison's disease! But wtf is wrong then?? I'd hate to give up when it could be something that has some sort of treatment but damn, I don't know what else to do.