My strange leg pain
I am going to describe this pain in as much detail as I can to see if I can finally find someone who has felt it. For as long as I can remember I have had episodes of leg pain usually 1-2 times a month (weekly at worst, at one brief point 4-5 times a week). I have only ever been able to describe it as a migraine in my entire leg. It is almost always just one leg but the pain doesn’t appear in one side more than the other. The pain has equal chances of being in the right or left but almost never both at the same time. The pain starts all the way up at my hip and goes down into my ankle. It was thought to be growing pain until I reached 18, then we thought it was early stages of restless legs but it did not occur more at night, it was usually during the day.
I started going to specialist after specialist each more confused than the last. They taken a few gallons of my blood and played with my nerves but all tests are normal. I then found out that this can be a symptom of endo (which I had been suspected of having since I was a teen). While not perfect it’s the closest I’ve gotten to a description of the pain. I am on consistent birth control and have been since I was around 16 so I don’t have a period every month. I can’t say my cycle affects it cause I don’t really have a cycle. I got diagnosed with the surgey a few months ago and have not had the pain since. But it came back today.
Another thing people find strange is the only relief I can seem to find when the pain is at its worst is getting my leg as close to my body as I can make it. I often lay where I’m practically doing the splits (painful leg close to my head), or like a turtle where I just kinda curl into a ball, if I’m having to sit in a chair I have the leg up on the chair (however this does not help much). So really the only relief I can get is testing my flexibility to the extreme for a few hours.
Has anyone else had this? like it might not be endo, I might be just blaming endo but genuinely I have nothing and the doctors have even less.