u/hatter4tea

Has anyone else had issues with their student loans this semester since the big bs bill? I had accepted mine and at first they showed up in my pending financial aid, then they weren't and now only my Pell went towards my tuition leaving a good chunk for what is owed with now because my student loans didn't go through. I also had to do ANOTHER MPN which I thought was supposed to be good for 10 years? Please tell me its not just me.

Does anyone know where I can get wool socks for kiddos? My daughter needs A LOT of them for school. Thanks!

I just found out I have Celiac. Not from a doctor, but from paperwork from my feeding tube pharmacy that supplies my formula and fresh tubes. Nobody told me I had Celiac disease.

I had gone months not being able to eat anything without getting violently ill, throat closing up, rashes everywhere, the whole 9 and now I understand why. But this got to the point where I hit a state of failure to thrive according to my bariatric teams standards even though I am still "overweight" but I wasn't absorbing *anything* at all. Now that I have a J-tube it's better but I still can't eat more than a small handful of GF snacks before getting the same sick feeling.

I want this to end and I want to be able to eat again and not have to rely on 20 hours of feedings but its just so painful and makes me so sick even with GF. Has anyone else been in this position? I'm miserable and any guidance right now would be appreciated. Much love to yall.

Is there an estimate on when Spirit will be opening this year and if we'll get it again in Mck? I am having Halloween withdrawals (I've been incredibly sick this year and my mental health needs it.) Plus my 4 year old is **obsessed** with Spirit and so I'd like to see when the estimated opening date is.

I was just recently diagnosed with Celiac disease and I wanted to know places that are Celiac friendly. Thanks in advance.

I need tips, advice, anything because I am losing my mind.

I have EDS induced esophageal dysmotility to the point where I rely on a j-tube for nutrition. But I *want* to eat regular food. So so badly. But every time I try, it makes me super nauseous or feels stuck in my throat.

Has anyone else dealt with this? What have you done in order to eat real food and not just relying on the feeding tube? Any help and advice here is welcome.

I am allowed to eat for fun/comfort **if** I can tolerate it and lately I cant tolerate anything. Not even water. It's horrible.

I'm not sure if I need advice, or just want to get this off my chest but this has been such a wild ride.

TLDR; I have Wernicke's Encephalopathy from esophageal dysmotility and have to do Thiamine and TPN and I am looking for support from others who have been through the same thing.

Ive had issues with my hEDS being like over the top since I was a teenager (id dislocate joints easily, had surgeries because of it, bad heart, the whole nine.) Now, since December, I've had bad issues with my epilepsy as well and it just compounded and got worse. I went from being active and working my dream job to sleeping most of the day and having to use all of my mobility aids: wheelchairs, walkers, cane, waiting for AFOs, I have a shower chair, etc. All because my body just.. stopped on me.

Most recently I was in the hospital for 10 days, then I had a couple more appointments to figure out more what was going on. I was getting so sick every day since April and we didn't know why and it was exhausting and confusing, and making me have seizures every day.

They found out I have Wernicke's Encephalopathy due to malnutrition. Now, I had a gastric bypass in October, but I was doing really well with it. I was taking my vitamins and protein. But it wasnt holding. So while I was in the hospital, they put in a port in my chest and started me on high dose Thiamine and TPN. It's to the point where i can barely eat anything without being sick because my esophagus has decided it doesn't want to work.

I feel tied to my TPN now that I'm home and I'm just exhausted. I just wanted to know of there was anyone in the same boat as me that can offer some support and maybe help ease my anxiety over all of this.

As the title says I am currently admitted receiving treatment for Wernicke's. I was originally diagnosed with FND until I dived downhill and fast, and my bariatric team (I had RNY October 2025) got suspicious of malnourishment and it turns out its full blown Wernicke's. Ive been dealing with issues for months, like since December or January when I went into Status epilepticus and the symptoms lingered and got worse and worse. I still have no appetite and am nauseous all day every day and I have ataxia and tremors.

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Will I ever make a true full recovery? Ive been receiving B1 and PPN until I get my PICC line tomorrow and then I'll get TPN for at minimum 6 months, and i am miserable. The only way I am able to even eat a little bit is with cannabis and I cant have that in the hospital so I've barely had any calories since being admitted other than what I've gotten from the lipids and ppn. I just want to get better and be normal, will I ever be there again?

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Thanks.

I was originally diagnosed with FND a few months ago after a few bouts of epileptic emergencies and got all the supportive care in place. Then I got progressively worse and fast.

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I started vomiting, I developed ataxia, I started stuttering, etc. My neurologist dismissed me as they do when youre diagnosed with FND. Now I'm not doubting that I have FND but I am at the same time.

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Now I'm in the hospital until at minimum Monday when I can get either a PICC line or a port because I have Wernicke's Encephalopathy and malnourishment. If I didnt have my bariatric team that pursued this and had I not listened to them, I could have either died or completely lost fucntion of my mind.

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Just want to put that out there.

I was originally diagnosed with FND a few months ago after a few bouts of epileptic emergencies and got all the supportive care in place. Then I got progressively worse and fast.

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I started vomiting, I developed ataxia, I started stuttering, etc. My neurologist dismissed me as they do when youre diagnosed with FND. Now I'm not doubting that I have FND but I am at the same time.

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Now I'm in the hospital until at minimum Monday when I can get either a PICC line or a port because I have Wernicke's Encephalopathy and malnourishment. If I didnt have my bariatric team that pursued this and had I not listened to them, I could have either died or completely lost fucntion of my mind.

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Just want to put that out there.

I did everything right, now I'm admitting waiting on the PICC team to come and get me set up so that I can start TPN. Im already on Thiamine and Potassium (evil combo) but I'm tired of getting sick from eating. Im tried of having to fight to get the TPN. Im tired of forgetting what I'm saying mid sentence.

PAY ATTENTION TO YOUR BODY AND MIND. PLEASE. It could save your life.

I (29f) have a serious neurological disorder that causes a lot of symptoms and a lot of pain. My neurologist is stuck in the "its all in your head" mindset with this disorder, and kept saying she wanted me to have a psych consult. Plot twist! Ive been in psych for years and even my psych team thinks its something else and said its not in my head lol. (It technically is because neurological but not psych).

Now my neurologist is in my chart messing with everything including the way my epilepsy is, the serious stuff that happened with my epilepsy over winter, and another serious neurological disorder I have all because there was a inaccurate thing put in there. Because if I say it, it's immediately wrong. I had to message her and tell her that the EEGs for the reason I was in 4 comas was in this place, and that the inaccurate thing was during the year I was pregnant with my kid and hadn't even become a patient of the hospital they claimed I went to.

I am pissed.

AIO for wanting to go off on this doctor after being her patient for years and her knowing better, and wanting to get a new neurologist? And just feeling overall hurt?

Hi,

My daughter is starting TK this fall at Laurel Tree and I was wondering if anyone could give me any info on what to expect from a parent's/grandparents perspective on what I should get her to prepare, like I know she'll need warm clothes, rain boots, a raincoat, and stuff for weather, but how do they do lunches there? Do I need to pack one for her each day, or just pack her snacks?

Is there anything I should know that you wish you did that might catch me off guard? She is autistic and we chose Laurel Tree iver Dows not only because of the way they learn and do their schooling (she *thrives* on being outside and with hands on learning vs basic academics) but also because its a much lower student teacher ratio.

Thank you!

Has anyone with ataxia and daily seizures had to be completely put under anesthesia to have a tooth pulled? I have ataxia that worsens with anxiety and I am terrified of the dentist and I was told that I have to go to the university hospital that diagnosed me to have the tooth surgically removed. Has this happened to anyone else? To have to hav a tooth surgically removed because their brain wont let their body have a single moment of being still?

I, 29f, recently met a group of people locally to me and we were planning on hanging out at a park near me. We also had plans to have a summer party at my house next month (this is important information) and I thought it was going well until the park plans. I had arrived at the park and told the group in our group chat that I was getting parking as I have to get handicap parking since I am in a wheelchair.

For context, my chair weighs about 50+ lbs and my husband has to get it out of the car for me. That was when the person who started the group moved the meeting spot to an inaccessible area. So naturally, I was upset but because I had my daughter as well, I just stayed at the normal park then went home. Then I messaged her and told her it wasn't a good fit and told her why.

This wasn't the first time she did controlling stuff. When it came to the party, she tried to pull the inclusivity card and said it had to be only vegan food being served and I said I would do vegan food outside and have separate options that were non-vegan inside. She said "well I'll just stay outside then!" Like what? Make it make sense.

She was against me having this party at my house from the get go, and as soon as I called her out after the park incident, she immediately jumped to take over the summer party, like I knew she would. Then her and other people were making ableist comments and I ended up calling her out on everything. I called her controlling and ableist and told her that she cant control everyone. AITA?

I checked my weight this morning and damn near fell over with joy (cant jump due to my disabilities) because the scale said 199. I haven't been under 200lbs since my late teens/early 20s and I turn 30 this year.

I had the surgery Oct 14, 2025, and I had lost ~55lbs pre-op. I have had to revert to soft/purees again due to a hernia, but I am okay with that, but it sure does feel great to have lost over 120lbs over the last year, even with all of the bumps in the road. And I am grateful for such a supportive community. 💜