Not to jinx it but my infection markers have come down to 103 from 138 and Blood is 63 came down from 67 so need some blood but it’s not as big of a drop as before. So everything is looking better now

Seems like my body runs on spite

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u/razorsharpblade — 15 hours ago

Stuck at 39*c and infection markers came up from 50 to 130 in one night this is so annoying. Nothing grown in blood cultures, nothing from X-rays, ct scans, pet’s. It’s so annoying. They are doing virus scan now after 3 weeks of staying and not getting better

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u/razorsharpblade — 2 days ago

Just had a bmb and they couldn’t get any marrow out and had to take some bone my god ow. Haha anyway why couldn’t they take/get any marrow

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u/razorsharpblade — 4 days ago
▲ 16 r/texts+1 crossposts

Not sure what he was on about

This was on a post that was about “every country that won a World Cup is on this planet, he got mad because the picture I used had the usa pointing towards the camera (it was just a good picture)

u/razorsharpblade — 5 days ago

Temps ahhh

So I’ve been admitted about 4 weeks ago, and they still haven’t found a source

I relapsed 4 months after sct and been on my second course of giltartinib to bridge me to my lymphocyte infusion my last bmb was diluted but it suggested 5% cancer.

But now I’m in hospital for temps and infection but there has been no source I’ve had every scan for everything and nothing, nothing is growing in my cultures.

Now they are talking about removing my Hickman line and due to trauma from cannulas i cannot have them so I need to have a picc asap

But my infection markers have been hovering around 38 not going down or really up. And since I have no immune system anything gets me.

So I’m thinking could it be inflammation or bone marrow. The doctor says it can be the cancer or giltartinib but they still want to get rid of my Hickman just in case.

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u/razorsharpblade — 7 days ago

I hate fevers so much this is my 3rd week stay after being admitted for a fever, had a good 48 hours no fever and said I should go home today, guess what happened boom 38.8 fever out of nowhere

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u/razorsharpblade — 15 days ago

Can giltartinib cause neutrophil count to plummet

So I’m on my second course of giltartinib and before it relapsed and I got on giltartinib I had high neutrophils now I have none is this just a common side effect

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u/razorsharpblade — 17 days ago

Will we need to unplug and disable the steam index before launching the steam frame as the steam os vr option automatically launches index. Or since it’s standalone we won’t need to touch the index and can leave it alone

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u/razorsharpblade — 20 days ago

Well they might of found the bug that’s giving me fevers, tho the bug is the tiniest it can be and took a while to grow so they are so confused if it is even the reason

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u/razorsharpblade — 21 days ago

Don’t need a second bone marrow biopsy, they expected it to be diluted due to giltartinib, and from what they see it is 5% cancer which is good

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u/razorsharpblade — 25 days ago

With the frame and machine launching together it’s made me question if streaming games from the machine to the frame would be possible aswell

Most likely yes but for those with low grade pcs could this be an opportunity for people who aren’t tech oriented to have more powerful systems at hand to play steam games

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u/razorsharpblade — 1 month ago

Bone marrow done

Just did it and it was weird, you know how you’re supposed to feel the pulling in your legs and then a rush, I didn’t this time it was weird, and apparently slow draw of it

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u/razorsharpblade — 1 month ago

As I predicted

Last post I said I was admitted for a high temp and that they will most likely do my bone marrow biopsy early just for lols, and the specialty nurse just came in and asked if it would be alright to do my bone marrow biopsy today a week in advance, I’m fine with it but I knew that they would do this, they book me in for a specific date and it’s always been the week before XD

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u/razorsharpblade — 1 month ago

Update

Just been admitted due to a fever but good news the doctor in clinic said there was no leukaemia cells in my blood recently due to the giltartinib, but he said depending on how long I’m admitted they might just pull the biopsy up to this week lol. Always impatient we get a date but oh nah we will just do it now instead lol I’m joking but it’s funny to be booked in for a biopsy but then the week earlier they just do it cause why not

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u/razorsharpblade — 1 month ago