u/Adept_Refuse3413

I'm not saying that's true, this sucks, but does anyone just feel like theres no way anyones experienced these symptoms this bad? I feel so selfish saying it, but it's hard to wrap my head around the fact that sometimes life is just this bad, and that other people seem to have it better. Of course the grass is always greener on the other side. I know people go through worse than me, way worse, I definitely don't have the worst case of POTS in existence and I feel very fortunate that some days I can function (not fully but I can regardless), and theres a lot of people with this who just can't. It's not like genuine disbelief that other people aren't going through similar or even worse, it's just like my brain has a hard time processing it when I'm at the peak of my flares. Mostly feels like no one could possibly know what I'm going through. I feel so selfish regardless, does anyone understand what I mean? or am I just a bad person?

It's so exhausting, I go a month feeling okay then flares restart and I feel like they always start with an off feeling. Like my head feels weird and spinny, my appetite gets lost, I get nauseous, head feels heavy, I stay super tired, then I feel like shit for months, then I feel like I'm getting better, and it repeats over and over. The off feeling just feels worse than a lot of other stuff because it's so hard to explain even to myself. It's a scary feeling to me and I hate it sm.

* Genre/s: All!!
* Goals/expectations/commitment: Active members only please, you don't have to be on all the time just semi active.
* Writing/experience level: Any experience level, we're here to grow and learn more!
* Meeting place: Discord
* Max size: Right now everyone 18+ is welcome, after we gain an active community I'm going to turn invites off.

https://discord.gg/wMKZdGJg3

* Genre/s: All!!
* Goals/expectations/commitment: Active members only please, you don't have to be on all the time just semi active.
* Writing/experience level: Any experience level, we're here to grow and learn more!
* Meeting place: Discord
* Max size: Right now everyone 18+ is welcome, after we gain an active community I'm going to turn invites off.
https://discord.gg/MK9RRPXZD

Hey! I just started a Discord server for writers and readers of all genres and I’m looking for people who want to help build an active and supportive community!

It’s open to everyone and we have many spaces where you can share ideas, get critique, get help, etc. If it sounds interesting to you, just dm me or respond and I'll dm you the link.

I just made a server, and it's not too active right now and would love some more people to discuss with!

Hey! I just started a Discord server for writers and readers of all genres and I’m looking for people who want to help build an active and supportive community!

It’s open to everyone and we have many spaces where you can share ideas, get critique, get help, etc. If it sounds interesting to you, just dm me or respond and I'll dm you the link.

I have awful anxiety with medicine and rn have a migraine that's progressively getting worse and worse. It's been on and off for 7 days now, so my doctor prescribed me sumatriptan. Everything I've read on reddit makes it out to be awful so I was wondering the likelihood of all these bad side effects. I'm desperate for relief from this migraine and no otc medicine ive tried will touch it.

(Just a little vent)

Before being diagnosed I was in the doctor in hospital so much clueless to what was going on with me. I felt awful constantly and thought I was dying. By the time I was done with just doctors and the medical field, and just accepted it doesn't matter what was wrong with me and brushing it to the side as anxiety I went to what I said was going to be my last doctors appointment I go to for this. They had wanted me to come in weekly due to so many symptoms yet it felt like even though all the doctors acknowledged I had so much going on with me, none cared. So whenever I went to this appointment that I almost cancelled I was very shut off and just told him I didn't see the point in me being there. He acknowledged my concerns even though I was kind of rude about it just due to me being so over everything, yet he was still kind and explained to me why he thought I should come back every week. He then brung up POTS himself without me mentioning anything. He asked if I thought I had it, and I told him no but it was mentioned to me before by an ER DR. He wanted to do the poor mans tilt table on me the same day and after the results he was confident enough to diagnose me same day, schedule the official tilt table to double confirm his diagnosis and make sure he's not mistaken. For the first time I truly felt like I wasn't the only one fighting for answers for me. My therapist works in the same building and I had an appointment with her directly after to which she told me she thought I should also continue following up weekly so I said I would in the case that he's the only DR I see. (I go to a doctor with residents so who i see isn't always consistent) I see him as much as I can with his schedule because he's pretty busy and normally booked. He has given me print off details of multiple conditions that he thinks I have or has diagnosed me with or thinks I share symptoms with but might not meet the criteria for me to learn more about. (which I'm also pretty sure he wrote these himself) Second appointment though he noticed that I have dermatographia and many symptoms of MCAS. He immediately ordered labs, and started me on a trial of h1 and h2 blockers and is pretty certain I have it. He said he hopes my allergist diagnoses me based on clinic and not labs because he's just very certain I have it. (I have tons of symptoms of it and he wasn't so certain the first appointment he thought but was still pretty sure but he said the thing abt allergist most recent appointment) He also referred me to neurology for my migraines (possible vestibular migraines) and vision blackouts that no one was taking seriously and told me to (no joke) "take tylenol" which i told them didnt help btw. This doctor has genuinely given me so much hope in the medical field, and all my medical mysteries aren't solved and I'm scared for when he leaves in June and if I will even be able to get another appointment with him before he leaves. He also got an appointment scheduled for me to get a cancerous looking mole removed (which im so nervous about appointment is next week.) He's just an amazing doctor and I don't think I'll ever to be able to find a doctor that even remotely matched how great of one I have right now. It sucks so bad. Just needed to vent, because I was in full tears over this and needed a distraction over my mind. I feel stupid crying about this and being so upset but it just sucks.

Edit: sry for bad grammar im so tired and i dont feel like fixing it rn

Before being diagnosed I was in the doctor in hospital so much clueless to what was going on with me. I felt awful constantly and thought I was dying. By the time I was done with just doctors and the medical field, and just accepted it doesn't matter what was wrong with me and brushing it to the side as anxiety I went to what I said was going to be my last doctors appointment I go to for this. They had wanted me to come in weekly due to so many symptoms yet it felt like even though all the doctors acknowledged I had so much going on with me, none cared. So whenever I went to this appointment that I almost cancelled I was very shut off and just told him I didn't see the point in me being there. He acknowledged my concerns even though I was kind of rude about it just due to me being so over everything, yet he was still kind and explained to me why he thought I should come back every week. He then brung up POTS himself without me mentioning anything. He asked if I thought I had it, and I told him no but it was mentioned to me before by an ER DR. He wanted to do the poor mans tilt table on me the same day and after the results he was confident enough to diagnose me same day, schedule the official tilt table to double confirm his diagnosis and make sure he's not mistaken. For the first time I truly felt like I wasn't the only one fighting for answers for me. My therapist works in the same building and I had an appointment with her directly after to which she told me she thought I should also continue following up weekly so I said I would in the case that he's the only DR I see. (I go to a doctor with residents so who i see isn't always consistent) I see him as much as I can with his schedule because he's pretty busy and normally booked. He has given me print off details of multiple conditions that he thinks I have or has diagnosed me with or thinks I share symptoms with but might not meet the criteria for me to learn more about. (which I'm also pretty sure he wrote these himself) Second appointment though he noticed that I have dermatographia and many symptoms of MCAS. He immediately ordered labs, and started me on a trial of h1 and h2 blockers and is pretty certain I have it. He said he hopes my allergist diagnoses me based on clinic and not labs because he's just very certain I have it. (I have tons of symptoms of it and he wasn't so certain the first appointment he thought but was still pretty sure but he said the thing abt allergist most recent appointment) He also referred me to neurology for my migraines (possible vestibular migraines) and vision blackouts that no one was taking seriously and told me to (no joke) "take tylenol" which i told them didnt help btw. This doctor has genuinely given me so much hope in the medical field, and all my medical mysteries aren't solved and I'm scared for when he leaves in June and if I will even be able to get another appointment with him before he leaves. He also got an appointment scheduled for me to get a cancerous looking mole removed (which im so nervous about appointment is next week.) He's just an amazing doctor and I don't think I'll ever to be able to find a doctor that even remotely matched how great of one I have right now. It sucks so bad. Just needed to vent, because I was in full tears over this and needed a distraction over my mind. I feel stupid crying about this and being so upset but it just sucks.

Edit: not fixing it rn sorry for the awful grammar im so tired