Traveling with chronic illness and agoraphobia
I have been struggling with agoraphobia for the past 6 months and it's been horrible.
I'm 29 years old and I've been diagnosed with some debilitating conditions - endometriosis, large fibroids, PMOS, hypothyroidism and ME/CFS. These conditions give me significant daily pain, severe fatigue, nausea, appetite fluctuations and anxiety. It's gotten so severe to the point, that I just don't want to go out at all. Not because I'm afraid of the outside world. I'm afraid of not being safe. Of embarrassing myself. Of being judged. Because it has happened before and it led to severe anxiety or panic attacks as the result.
Prior to these conditions, I was a fairly ''healthy'' person, but always had anxiety. It never stopped me from doing anything though. I still travelled, studied for Master's degree, went to gym, had a rich social life, was able to eat anything. As soon as I got sick, I was suddenly unable to do any of this. Or even if I tried, it resulted in my body experiencing severe flare ups or crash outs. I realized, that I can no longer function the way that I do, which caused my mental health to spiral. I developed agoraphobia and severe health anxiety. I also have severe emetophobia and since I'm battling daily nausea from my conditions, it's been hell.
My support system is different too. My family doesn't really understand how I feel. They also got used to the ''old me'' that was so strong and healthy and could do anything. Ever since I got sick, they can't grasp this new version of me and we often have disagreements. And the battle becomes lonlier. I start feeling like a burden, I feel tons of guilt, I shed so many tears because when I ask for help, for a talk, for reassurance, I feel like I'm asking for too much.
So I found my people online. I have four wonderful best friends overseas. Who listen to me, we call on a daily basis, we play games, we open up about the hard things, celebrate victories. And we are all around same age, having struggles of our own. When we talk, my mind shuts up a little and I feel a little more human and included.
Therefore, I'm coming to a thing I gotta face soon. Travel. My first travel since getting this sick. And I'm contemplating if I should go or not. My agoraphobia is screaming that being away for 4-5 days from home, is horrible. Sleeping in another room when this one feels so safe right now, sounds horrible. What if something happens to me and no one can help me? I'm from a country that barely knows these conditions and the country I'm traveling to, even less. What if I get sick there? What if I get severe panic? What if I burden my parents even more and ruin their vacation? But at the same time, I don't wanna stay home and be alone by myself. I want to make memories with them but I'm too scared.
Another issue is, we won't have Wifi, just mobile data. And I need to talk to my people. They make me feel sane and seen. I want to talk to them if it gets rough and I'm scared I won't be able to. My mind has been going haywire on a daily basis and it's still more than two weeks until I gotta make that decision.
I don't know what to do. I just feel so trapped and so scared.