u/CooperHChurch427

Does anyone find it weird when addicts and doctors presume if you take non opioids you aren't in "true pain" and don't have chronic pain?

Admit please remove if not appropriate. I'm just frustrated.

I had a really weird Twitter argument come up. For context it was a person essentially claiming opioids are natural and long term use causes dependence and not abuse. That they've been recommended methadone and saboxone as alternatives to prescription opioids.

Now I kind of saw this as actual addiction level issue I tried to explain the statistic of long term use, alternatives, and why opioids are fantastic short term but shouldn't be used long term besides as a last resort. I only say this because I literally had spinal cord injury and live with CRPS and chronic daily headaches, and only manage the pain through intense PT and OT I did at an out patients AMPS clinic, and I take cymbalta and very low fuse dose gabapentin.

I just found the whole conversation weird simply because my CRPS support group we all universally hate opioids and because we are all working, we can't use them. Some of us do have intrathecal pain pumps, spinal cord stimulators, and one actually resorted to amputation in order to get off of opioids.

So I found that the person was drug seeking. I only saw this behavior once and with one of my old classmates who constantly was trying to get me to give him gabapentin to "help his pain" after his doctor cut him off. He later overdosed on laced heroin in the bathroom my senior year of highschool.

Like I'm not denying that as chronic pain patients we don't have needs for different treatments, but I found the displaying of the risks particularlly bizarre including how they acused me of faking being injured to make a point (I wish I was faking because wouldn't have trouble swallowing, issues urinating and constant nerve pain).

That said I did once have a doctor who said my pain was mental trauma, and blatantly ignored the mri of my neck where you could see swelling in my spinal cord. I asked a doctor in the ER for 3 days of pain meds and a CT and he refused because it was just a broken nose. I had a lefort 2 fracture, C3 to T2 fractures, broke 6 ribs, and had a lacerated kidney and spleen. Yeah, literally you could see the scaring on later imaging, and remodeling on later MRIs and Xrays.

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u/CooperHChurch427 — 4 days ago

How often do you run out of work?

So I have worked in manufacturing and logistics. So far my current job the workflow is low. Most of my coworkers say it can be very, very boring, so bring a book to work. I primarily work around circuit board fabrication and lasers and optics. In terms of safety, the most that might happen is a fire or someone spilling IPA and maybe being stupid and looking into a laser or catching their shirt in our single unguarded belt grinder.

How common is this? The company I work for reported 1 recordable last year and the safety job is kind of young.

Granted my coverage is all of Florida so most what my job consists of is driving between job sites throughout the year and doing compliance training and writing up near miss reports. I work in the defense industry now and I even find it to be bizzare how people go to work early and leave early, so half the time I end up sitting in my office for an hour with absolutely nothing to do.

My boss jokingly said that this is a job that you prefer to have no work because it means you are doing things correctly when you have systems in place.

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u/CooperHChurch427 — 5 days ago
▲ 6 r/FND

[CONTENT WARNING] Neurologist just walked back my FND diagnosis again! Anyone keep going through this cycle?

So I just want to know if anyone else is going through the same thing. I was diagnosed in 2015 with FND just 3 weeks after my brain injury because my symptoms were getting worse, and then as I healed it just got less. Then after COVID it got worse. Well, last month I literally just woke up covered in hives head to toe, and my neurologist officially thinks I do not have FND but have some sort of autoimmune disorder that may be attacking my motor nerves causing my tremors and weakness in my hands and feet especially aggravated by heat.

In all these years I have never had:

  • Seizure-like episodes
  • trouble speaking

I have had movement problems but I also had a spinal cord injury when I was injured in 2015 and from what I understand when there's some regeneration and new pathways forming, weird stuff can happen. However I've never had dissociative seizures or movement issues.

My biggest issues is muscle fascilations and weakness, and my symptoms have been stable.

It also doesn't help that I have kidney damage which can cause muscle cramping and fatigue.

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u/CooperHChurch427 — 5 days ago

Sharp Bp-70c31 keeps flipping inside of paper.

We have this printer for my church to print bulletins and it sucks. After swapping computers it suddenly keeps flipping the inside page of our bulletin. We keep trying different settings and it does the same thing over and over again.

Any idea how to get this to print like a book?

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u/CooperHChurch427 — 5 days ago

Anyone else have kidney issues due to this?

I'm asking because I recently had a second round of blood work within a year. I told my doctor that I was having very cloudy urine seperate from UTIs (I get them a lot due up urinary retention from a spinal cord injury). She thought it was odd, did a UDS, and my UTI was clear but I had high protien, high creatine and my crp was higher than normal.

I did a full workup last may and my doctor did a comparison and my kidney function is down 10%. I looked at my older bloodwork and between 2017 and 2019 my kidney function was stable, and the same in 2020.

So far the only possible thing that can cause it is cymbalta. I take supplements but in very controlled dosages and none are known to cause kidney damage.

My new nephrologist says I jumped from Stage 1 to State 3B kidney disease in a year.

I probably have alport syndrome which causes kidney disease which is why I've been closely monitored.

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u/CooperHChurch427 — 5 days ago
▲ 1 r/Denim

Best jeans for women who need to squat and stoop at work a lot?

Hey everyone, so can I have some recommendations for some jeans that work in a industrial environment? I'm an EH&S professional so I end up under things quite a lot during site inspections. So far the only jeans that work are Levi's and AE. However I abhore American Eagle as their quality has gone down the drain, I have an old Size 4 that's identical in size to their newer size 6 and my new pair started wearing out within a week.

So I need some jeans both with give that will hold up well. I've been pretty impressed with the Levi's I bought, but they're expensive. Kirkland Signature is good, but for some reason their jeans are stiff as a board.

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u/CooperHChurch427 — 5 days ago

I despise when vegans act like anyone can be vegan even with health disorders...

I recently had a person on r/DebateAVegan who was asking for sources on why a person with GP6D Deficiency Syndrome and Chronic Kidney Disease can't be vegan. I literally couldn't provide them with research articles because I literally live with the disorders. I have GP6DS and Alport Syndrome, both cause Chronic Kidney Disease. My diet if I optimized it would look like a low FODMAP diet, and all I'd be able to eat would be rice and chicken. My biggest triggers are mostly plant foods and highly processed meats, and not to mention I have gastroparesis because I had a spinal cord injury in 2015 so my diet has to be made up of a lot of small meals throughout the day, and if I was vegan I'd literally have to be eating non-stop all day.

I literally had to consult a Medical Doctor who's sole job is to design diets around hematological diseases and metabolic disorders, and had to take into account my Kidney Disease. So I have whole list on my fridge of foods I have to avoid at all times, foods I can have a moderate amount, and foods I can have a limited amount of, all outlined in grams. The list has over 200 foods on it that I am to avoid or limit, at the top that I am not to eat: almost all beans, we leave out hummus and falafel but they are on my limited food group, that also includes soy products, blue berries, eggplant, anything with sulfites, menthol, and simple carbohydrates.

If I tried to eat as a vegan, I'd literally die of starvation. I swear vegans are all secretly eugenicists, because if they got their way, 400 million people would die, and it's super common in Kurdish, Greeks, and Egyptians, and has been found in India in large amounts as well.

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u/CooperHChurch427 — 10 days ago

My friend won't apply for disability but refuses to work. I feel bad for her grandmother because she's reliant on just her income...

So I'm going to be really honest. I know there's a lot of individuals who are chronically disabled who work, and those that can't. However it's kind of frustrating seeing my friends family struggle to afford property taxes and food. Currently my friend is dealing with a whole bunch of weird side effects, and at this point, I'm on the fence of believing if her symptoms are as bad as they are and if she's just malingering. I seriously want to believe her, but it's hard to take her seriously as she says she can't work but can play on her computer for hours at a time, but can't look at her phone because it's too bright. Like, I get she gets severe migraines, I really do. I personally have been living with a persistent daily headache for over a decade and have lingering symptoms regarding my spinal cord injury.

Yet, I want to work. I literally am in a job that depending on the day can be literally just sitting at a desk at day doing paperwork all the way to doing very physical work.

So I find it hard to understand why she refuses to either find part time work or even apply for disability. She's almost 30, hasn't worked since 2019, and doesn't even have her learners permit. So she's reliant on everyone for transportation.

I also feel concerned about her fiancé, because I feel like he's struggling to hold down a job because his sleep schedule is completely the opposite of hers. She sleeps 16 or more hours a day, and usually is up so 3 or 4 AM. Currently he's the only source of significant income to the household and I've helped him afford groceries to feed them.

Like I'm not sure if she's begun malingering out of fear of her symptoms getting worse with work, or if her symptoms are more somatic now. I want to believe her, I just struggle to see it. I don't want to minimize her struggle because I know what it's like to be medically gaslit for years.

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u/CooperHChurch427 — 12 days ago

Why did my car insurance jump over 200 dollars a year with no tickets or claims.

So we have state farm which in our area is the cheapest option available. Our policy dates back to 1967 and has only had 6 claims, one the car was side swiped in 1976 and then in 2015 where I had to make a claim against my parents car insurance for being in a school bus accident where the driver of the vehicle that hit us was uninsured and the district was under insured. The two other incidents were in 1974 and 2004, one was a tbone by a driver who went through a red light and the other was a minor accident caused by a driver who had a stroke and hit us.

Not a single claim we had was ever determined to be at fault and we've only gotten 3 tickets ever, and only one was required to be reported to our insurance because a driver backed into my brothers car when he was 17.

So why would it randomly jump with so few claims and only one reportable ticket from a decade ago, and pretty much two accidents were freak accidents, in one case the stroke and then a rogue donut.

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u/CooperHChurch427 — 14 days ago
▲ 13 r/TBI

Anyone else have dents on their head?

I'm asking because I have a huge dent on my head where the bone is slightly thinner. It's where I fractured my skull and it's about 4 inches long. Doctor said it's pretty common. I also have other more small dents on my face and forehead as I had a partial Le Fort 2 fracture.

I was told If I ever get my very large sheath repair they'll probably plate it.

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u/CooperHChurch427 — 14 days ago

So this might break this subreddits rules, I'm not sure though. A couple of years ago my friend began to experience debilitating migraines to the point they couldn't really function. Now I'm pretty sure the migraines are real as I know what it's like to have them. However they've chewed up multiple specialists like I've never seen. I'm inclined to believe them, but at the same time, I think they are malingering due to their history of CPTSD and borderline personality disorder. Either that or it's become somatic. I feel like they're trying to one up me which sounds really weird coming from me. For example, I have just generalized anxiety disorder, but I have severe chronic pain, daily headaches, neuropathy and arthritis. These are my reality that I live with. I'm not afraid to ask for help with them, but I feel like my friends blowing everything out of proportions.

For example they had ICH which is extra fluid around the brain, which would explain the migraine. After it resolved they now have hearing sensitivity.

I just feel like they're getting worse so doctors believe them.

I don't want to not believe them because I know what it's like to be medically gaslit. My nuerologist took one look at me thinking I was malingering even though I was walking around with facial fractures, a brain injury and a broken neck. Then I had a different nuerologist diagnose me with FND before rejecting the diagnosis in favor of possible MS or some sort of autoimmune disorder due to my arthritis rearing it's ugly head with a rash. Being gaslit sucks, but at one end, I want my friend to get the proper help they need as I feel they are inadvertently hurting their partner and grandparent at the same time.

I just don't know what to do. They very much remind me of my friend who has Bipolar and schizoaffective disorder.

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u/CooperHChurch427 — 18 days ago