u/DiligentHold365

My sons 780g pump had a critical error last week. Refurbished pump came on Monday we set it up, etc.. Tonight, ANOTHER critical error on the new pump. So frustrating. Any others have repeated critical errors? He's had a Medtronic pump for 10 years and we've/he's liked it most of that time, however, customer service has been horrendous these last couple years. I know all companies have pros and cons, but zero fun, Medtronic. ZERO fun.

The error code was 3, same as last week. Critical Error, internal...something. In short, remove/replace.

My sons 780g went kaput last night. (I won't go into Medtronics horrific customer service). I did save his old 670 for situations just like this. However, he's on the Instinct sensor now, and I didn't have any G3 transmitters that would connect to the pump. Being sensorless isn't the end if the world, I know, lots of people do it, but he's a teen boy and...that's it...he's a teen boy... Anyway, I wondered if we could get a script for just a Libre sensor to get us through until the new-ish pump ships. We could, did, and had it called into Costco. I knew we'd have to pay out of pocket and was prepared to spend around $200-$300. Guess how much 2 sensors were...$60. Sure, it doesn't connect to his pump for automode, but damn, still. Medtronic shipping has been abysmal, so we ONLY get TWO sensors a month (if they remember to ship) and we have *zero* stockpile in the case of a bad sensor, losing sensors, or a malfunction during insertion, etc.. ​Having access to a reasonably priced safety net is a big ol' sigh of relief. Even as our son agrs out of our care, this could still be a good option for him. Maybe this is common knowledge, but in case its not, I definitely wanted to share.

*I know $60 isn't a reasonable price for a lot of people and don't want to minimize the cost of caring for a disease you didn't ask for. ​

I have a friend with YOPD. She doesn't like to post in groups or seem like a burden (she's not, obviously) so I think she minimizes symptoms *greatly*, even to her care team. She started the Vylave pump, but after a couple days experienced signifigant side effects that were too much for her to feel comfortable continuing with the pump; anxiety, severe depression, extreme fatigue and weakness. They didn't test her Vit. B6 or B12 prior to placing the pump but she does run low-normal. Since CL decreases those values, I read that the pump and continuous stream of meds can deplete those *a lot* quicker, especially since she was already at baseline. ​​It's been almost a week since she stopped using the pump, and seems to be having significant symptoms of low B6. she already had labs (waiting for B-vitamin results), and sees her primary today. Her neuro is at a conference and will contact her upon his return. I know she restarted her oral CL, but the fatigue and weakness is beyond anything she's experienced, and currently has to use a wheelchair to manage any distance. I was just wondering if anyone had a similar experience post pump use, and how did they treat it, or how long did it take to feel better. Or, if you have any tips I can share with her that offer a glimmer of hope and/or assurance. I've told her *not* to minimize symptoms, and hope she listens, but unfortunately I think she feels terrible enough to let it all out.

To note: she did go to urgent care yesterday, but vitals were good. Most labs were good, slightly low TSH and low ALT. nothing overtly pointing to a new or urgent diagnosis.

Double note too, she wouldn't want her experience to dissuade anyone else from trying the pump, as everyone's experience is different and the pump has been life-changing for some. ​It just wasn't something that worked for her.

I did a light search, but came up with only time sensitive review info...

I CAN go into the regular Amazon page to submit reviews? Without issue? I don't have to wait until they appear in my Vine review list?

I found a few things recently and my review period ends in 5 days. I'm at 97% now waiting for a bigger delivery today. None of my deliveries require extensive testing, like pillow covers, wall protector, etc.. I'd rather not wait until the drop in *actual* vine review queue.

edit to add: sh$$, review is in 4 days.

Anyone start with a random, itchy, burning, stinging facial rash (also the same symptoms in your throat and mouth) that came, then went after a few days...then came again a couple months later? This is the second rando zero explanation rash I've had. And my face skin feels like office carpet. I also had a series of painful tiny whiteheads. The itching, and also pins and needles feelings has me losing my mind. I took 2 benadryl last night and a Zyrtec this morning, but zero relief so far. ​Even my tongue feels this way. No new products or detergents, no allergies including seasonal, and my lotions are vanicream,​ and cerave. ​And I'm 48, so maybe hormonal?

I had an ovarian embolization with 17 coils placed in June 2025. Did super well for a while, but recently (for a few months) started getting lower leg and toe pain, bilaterally. I wonder if it's a collatetal flow (a Google guess) from the embolization? I have a unique anatomical variation with 3 right renal (vs. 1), one of which drains into my rt ovarian vein (vs. Vena cava)...or something. My pelvic pain is coming back, too. Just wondering if anyone else experienced any adverse venous issues in addition to the PCS.

My IR doesn't have an office, just does procedures in a large hospital an hour from where I live, so can't call. I talked to my regular PA and she ordered a lower leg US, but that's far out, as well. Plus, took *FOREVER* for anyone to acknowledge PCS and had lots of imaging that read as "normal." ​

Anyone have PCS? I had an ovarian embolization with 17 coils placed in June 2025. Did super well for a while, but then started getting lower leg and toe pain, bilaterally. I wonder if it's a collatetal flow (a Google guess) from the embolization? I have a unique anatomical variation with 3 right renal (vs. 1), one of which drains into my rt ovarian vein (vs. Vena cava)...or something. My pelvic pain is coming back, too.

My IR doesn't have an office, just does procedures in a large hospital an hour from where I live, so can't call. I talked to my regular PA and she ordered a lower leg US, but that's far out, as well. Plus, took *FOREVER* for anyone to acknowledge PCS and had lots of imaging that read as "normal." ​

I had a long post typed but then there was a friendly reminder posted at the bottom of my text telling me not to ask this or that...all of which I was asking 😂

It's a long story, but the gist of it is if I'm trying at-home remedies like increased salt intake, electrolyte drinks etc., how soon do you, if you do, see some symptom relief?

Mere curiosity and don't know if anyone would want to answer...

Those getting big ticket items are you ordering a lot regularly? *Before* being offered higher value items, did you already have a high ETV? Was it after you just became gold?

I've been in for a year (Gold for 6 months), and when I first became gold I was offered a name brand robot vaccum in my RFY, which I did order (for $450 ETV). Previous to that order I had total ETV of $55.

It's been crickets since :) I was hoping the vaccum would open the houseware floodgates, but alas, still crochet hair and clip-on bangs. ​I don't order a lot anymore as I'm in bed by 9-10pm CT and typically miss the brunt of the drops, but was just curious as to the experience of others.