Finally the last piece of the puzzle fell into place. Opioid induced secondary adrenal insufficiency.
2 years ago I had tapentadol thrown at me after 5x staph infections and chronic back pain.
I would love to say I wish I could go back and not take that first pill. But pain is pain. And I probably would have still taken it knowing what it would do to me 2 years later.
I was on 500mg a day at one point. My doctor wanted nothing to do with tapering so I did it alone. I am stuck at 180mg.
Now my adrenals are not producing enough cortisol and I have severe loss of oestrogen, hypogonadism, FSH is through the roof. OIAI is worse for females, especially going through menopause.
Endocrinologist has never heard of this. I have read about 10 peer reviewed papers so far, and this is it.
My level in the morning is 30 nmol/L and it should be at the least 300+
My Gp sent me urgently to an endocrinologist afraid I would go into adrenal crisis. She was not interested. It’s not Addisons. It’s secondary and now I know why. The sweating, extreme weight loss, doom, agitation, muscle wasting, horrible pain in my adrenals.
The only cure is to stop opioids and wait for my hormones to recover. Alongside a bit of hydrocortisone to help my poor adrenals.
Easy right? Nope I am terrified of the suffering from opioid withdrawal. I was going slow but now have to go a lot faster.
Has anyone experienced opioid induced adrenal insufficiency? How quick did your system recover after stopping? Did hydrocortisone help a bit?
I will ask on the appropriate sub for tips with withdrawal. I just want to know I am not alone. My health journey has been so long and this seems like the final step.
This sucks…