u/EconomicsNo8843

Hey everyone! I’m making this post just so that somebody can hopefully learn from my experience and spread awareness. I got out very lucky when after a kidney infection I retained fever like symptoms. But every time I checked my thermometer it said that my temperature was only slightly elevated. At the time I used an armpit thermometer with no clue at all that those do not work as well.

Bottom line… I asked someone to buy me an ear thermometer which did show that I indeed had a fever. At this time a few days had passed and I was VERY lucky with the timing as my CRP levels only started rising when I was again admitted to the hospital. Luckily they managed to treat the infection and I’m now at home.

If I had not bought that new thermometer with a higher accuracy then things could’ve turned out very differently.

Stay safe everyone, and please if you don’t trust your symptoms call a doctor and go to the hospital. It can’t hurt getting checked🙏🏼❤️

So I’ve noticed that my anxiety spikes during the day… and then around 9PM it suddenly drops. It makes me enjoy the night better and inadvertently stay up late. Until like 3AM. Because at least I don’t have as much anxiety and can somewhat enjoy life. But then… sleeping is really bad since I get nightmares and have nocturnal panic attacks. So is being awake during the day… and then the whole cycle repeats itself.

Hey guys,

So I don’t know where to start… I’ve always been a bit prone to panic and anxiety. I’m a high achiever and expect a lot of myself. Maybe that’s where it all went wrong. Covid actually gave me a break and reduced my symptoms for a good while. Not having to worry about society 24/7 and having to go places helped me “reset”.

Then… last year I tore my ACL, had surgery, and had a panic attack on the operating table because I chose not to be fully sedated (smart me). Afterwards, during my habilitation I got extreme panic attacks and developed anxiety that became so bad that I didn’t dare going to the store, because if I did, the walls seemed to move into me. I was dizzy and so afraid. Health anxiety and GAD made my life a literal fight. Everyday became taxing because I knew I had to expose myself in order to get better. From forcing myself to go to the gym while being extremely afraid, to even getting through a day of work without isolating myself in the bathroom for twenty minutes. I was slowly getting better and my knee as well. Slowly I started doing the thing I love again, such as football and climbing. The gym became less of a liability and I could finally sprint again.

Sadly, currently I feel like I got pushed down the ladder I spend a year long climbing and honestly feel even worse. A few weeks ago I got a UTI that spread to my kidney. They found out it isn’t working anymore due to the fact that it’s apparently been obstructed all my life. The pressure in my kidney build up, and the obstruction caused the infection to linger. Hospitalising me twice over, the second time being the scariest as I almost became septic. A drain that runs straight from my kidney into a catheter saved my life… and I’m now awaiting to get called up for surgery to completely remove the kidney. Thank the Gods my other kidney is working super well and has practically already taken over all the work for years.

Anyways… I’m so afraid. My entire body is in fight and flight. I’m barely able to relax unless I’m drawing. I’m afraid of the immediate and of the long future. I don’t want to go through another surgery, especially one so major… but I simply have no other option. Then… I’m so afraid of my recovery. I so badly want to become the person again I was before tearing my ACL. But right now I’m losing progress on my rehab as well…

I can barely sleep and feel like something very dangerous is around the corner. I have nightmares and sometimes my breathing is completely off which makes me panic even more thinking I’m going to have a heart attack or something.

I’m only 25 years old… and just want to live and enjoy my life. Please has anyone gone through something similar and made it through? I don’t want this anxiety anymore, or the panic attacks.

If you’ve taken time to read through this… thank you so much… I literally don’t know what to do anymore except reach out to people who may have gone through something similar. I am in therapy but my psychologist seems not as involved anymore as in the beginning. Especially since the stuff with my kidney :(

Much thanks and may everyone recover from this. I wouldn’t wish anxiety or panic on my worst enemy🙏🏼❤️

Hey everyone, I guess I just need to rant. I feel really alone right now in what’s been happening in my life.

I guess it started last year… I am an athlete and always performed sports on a high level. Especially my football (soccer). Then I tore my ACL and my world turned upside down. Girlfriend broke up with me right before I was going to have surgery. Then what happened was one antagonising year of rebuilding my strength and confidence. I suffered from panic attacks and developed a general anxiety disorder. I just didn’t trust my body anymore and somehow became afraid of getting a heart attack. Because each time I would get a panic attack my heart would go crazy and I would get all these crazy symptoms. I couldn’t work properly because of my knee and mental health… and I still needed to finish my master’s thesis as well but couldn’t muster the energy nor time for it.

I really tried my hardest to crawl out of that abyss, and I believe I am confident that I did. Then a few weeks ago, shit hit the fan, again. I got a UTI and by coincidence they found out that my right kidney isn’t working anymore because it’s been obstructed all my life due to a congenital condition called UPJ Stenosis. The infection spread to that kidney and I spend a week in the hospital. I am still recovering… now have a drain from my kidney that saved my life from the infection and waiting to get surgery to have the kidney removed.

I honestly feel at a loss. I’m afraid and feel nothing like the person I was. I have lost a lot of weight due to the stress and antibiotics and I can see all the hard work I put into the gym wasting away before my eyes.

I know that other people have it worse and I’m sorry for the rant on this forum, I just didn’t know where to post anywhere else.

Once again, sorry for the rant but I just don’t know what to do…

Hey everyone,

I posted here a few weeks ago when I was admitted to the hospital a second time following a UTI that spread to my kidney and got trapped there due to UPJ Stenosis. I had a follow up appointment with the doctor and was very relieved to hear that although they gave me the diagnosis of Urosepsis at the time, it hadn’t spread to my blood and likely was an advanced UTI with early systemic reactions.

I recovered fairly quickly after my kidney was drained with a tube.

A week or two have passed now since then and my energy levels are… weird. In the morning I feel VERY energised. Almost more so than before I was helped in the hospital, only to crash later in the evening and feel absolutely lethargic. I want to go on walks to get at least some cardio in before I am having the kidney removed surgically in a few weeks… but, I can’t seem to muster the energy to do it. I’m a really active person who’s been a football player all her life and also recovering from an ACL tear still that I got surgery for last year. I’m afraid that if I don’t move I will lose everything I worked so hard for.

I’m really grateful that I made it out of the hospital the way I did. Because I know how much worse it could’ve been especially since my CRP levels spiked in the 300s on my worst day.

What also doesn’t help is that I’ve developed severe health anxiety since my last surgery, which was the ACL. I’m in therapy for it but this experience has pushed me down the ladder I was climbing. Now I’m so afraid again, for the upcoming surgery, for experiencing something like this again or worse…

I struggle with insomnia because I don’t want to miss a minute before going to have surgery. But also because I struggle with nightmares almost every other night.

I miss my life before all this and wish that they would’ve noticed my stenosis long before this infection. It ruined my kidney to the point where it’s 0,6% functional. Well… at least my other one has already taken over and appears to be very healthy. Which once again, I’m grateful for.

Sorry for the long rant, I hope you are all doing well and I can’t imagine having actually gone into sceptic shock because my experience was already quite awful. Sending lots of love and good wishes for everyone’s health.

So I am wondering… has anyone experienced something similar? How long does it take for energy to return to normal and is it common to get those “spikes” of energy only to later crash?

Hi everyone!

I have a question regarding working out with a Nephrostomy Tube. I got one placed two weeks ago after I needed to get treatment in the hospital. It turns out I have UPJ-Stenosis and my kidney has apparently lost its function over the 25 years I’ve been alive. I need it removed in a few weeks. Luckily I’ve healed since the infection and am now awaiting surgery. I asked my doctor if I can workout in the gym with the tube and she said I can do slight leg workouts (as long as I keep the weight low and restrict myself to machines) and arms. But it does tell me in the folder that I can’t lift above 5kg… it seems contradictory.

I just had my first workout again and it felt kinda uncomfortable. No hurt but still… it’s weird having a tube coming out of your body and living with a catheter.

Does anyone else have any experience with this or advice?

Hope you all have a good day❤️🍀

This is my second day in the hospital, I’m not admitted to the ICU but they do believe I have Urosepsis. I feel generally well except have a low appetite, my fever sometimes spiking and a high heart rate (tachycardia). It’s the last thing that worries me the most, it won’t go down and I keep having fever spikes. I’m really afraid my body is not responding to the antibiotics…