u/Exotic-Low812

It’s 10pm, my daughter is going to bed and I got a cold glass of sanpellegrino, it must be that time again!

Woke up on time today.

Had a bath and watched some YouTube

Walked to the train. My legs were cramping pretty bad but I did the usual - ignored it and just kept walking.

Got a seat on the train and read dragon ball z the whole way (dragon ball z kicks ass)

Had a few meetings at work today, and got a bunch of stuff done, can’t go into specifics.

At lunch I walked up and down Granville street, had some pretty bad symptoms at this time, mostly eye stuff and confusion / depersonalizations.

Went to the comic store and bought one of those huge berserk tomes for myself and a comic for my kid.

Got an Italian sandwitch, I ate half and saved half for
My wife.

Did a meditation and worked the rest of the day.

Left work a half hour late - already slipping into my old habits …

Meditated on the train and limped home.

Had diner with the family and read my girl her new comic, it had way to much dialogue and had to bail half way through. My wife read the end to her

Gave my daughter a bath and then we read dragon ball z together.

Gotta do my nighttime meditation and then it’s bedtime.

Kind of a boring day, but honestly boring is kinda nice.

I suck at meditation, I am committed to improving but it’s super unnatural for me to just “do nothing”.

Does it get easier as you keep going?
Is it something one can even improve at ?

Photo of Mu because she always comes to meditate with me.

Back to work today,

I slept in, fuck it’s 10am I start work at 10am (at latest)

Get up to have a bath, the burning hot water helps my cramped up muscles, I have 2 a day.

Noticed I that I didn’t fall over when I got out of bed!

Start work,

Hand was cramping making work a bit difficult but I ignored it and just pushed through, it worked!

Got a short doctors telehealth appointment.

I tell her about my diagnosis, she tells me I need to start CBT asap. I book in with my friends councillor but he’s out of town until the end of the month.

Worked through lunch because I slept in so I wasn’t hungry and then took a break at 3 when I got what I was working on finished.

Took a walk.

Ran into my neighbour walking his dog and told him my crazy FND story, he told me that he had a similar episode when he was my age, no formal diagnosis but similar. He laughed and joked “I’m glad your just insane and not dieing”

We both laughed, he’s right.

I proceeded to walk to the shop at the edge of the park, I’m doing pretty good let’s see if i can push this and walk to the big stair case about 2km away.

I make it the 2km!
I push my luck.

I walk down the staircase (see attached picture) it’s around 100 steps.

I’m still doing ok by my vision is starting to tunnel. Ignore it.

“Fear is the mind killer” I think to myself

I proceed to walk about 3 more km up hill and off road.

Make it home and wrap up the work day when the family gets home from work / school.

Wife makes dinner and my kids throwing a fit, I give her a hug and it calms her down a bit

We all eat dinner.

Now I’m laying in bed watching rug rats reruns with my family and typing up this journal.

Going to have the second bath here soon and then maybe read the rest of one piece book 7.

I’m not “better” yet but I’m going to get better soon.

I refuse to give another inch, there are to many people that rely on me, both at home and at work.

(38m)Hey guys, what sort of FND compatible hobbies do you have, or how have you changed your approach to existing hobbies?

A lot of my hobbies involve a lot of dexterity.

My main hobbies are:

When not flaring up:

Miniature painting

C++ programming

Composing music

Hiking

Going out with my daughter

When flaring up:

Reading manga

Playing video games usually with simple one stick controls (dynasty warriors mostly)

Shopping (retail therapy)

Watching the xfiles

Laying in my hammock in the park

Doomspiraling

Watching movies or reading books with my daughter

Wasting time on Reddit

What about you? What do you guys do for fun in your free time?

There is also a large mural on the ceiling but I didn’t take a photo of it because there were people sitting under it and I wanted to respect their privacy

Don’t really make music just scavenge around the city looking for stuff to hook together

Had to cut the jam short, my daughter got hungry