▲ 0 r/BRCA

Looking forward to RRSO in 10 days and meeting with breast surgeon next month

It seems strange to be looking forward to these, but I am. I will enjoy the time off from work and hope to get some projects at home done too, and complete an online course. Anyone else ever feel this way?

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u/First_Chipmunk_6891 — 5 days ago

What’s it like before and after?

I have had a severe high frequency loss in one ear all my life. Used to be above 3000 but a few years ago it moved to above 2000hz. Basically
I don’t know any other way. Has anyone had normal hearing in both ears and then developed this loss as an adult? Is it a big impact? Do you feel uncomfortable? I use hearing aids for work but not home relaxing. I do prefer two even though my good ear is just on the threshold of slightly mild. Just curious.

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u/First_Chipmunk_6891 — 8 days ago
▲ 4 r/BRCA

I will have my ovaries and tubes out and possibly uterus before the end of this month

She said I can decide to keep my uterus and scale it back if I want, but she is reserving time for both. I am 54 and I am so worried what they will find!!!

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u/First_Chipmunk_6891 — 14 days ago
▲ 3 r/BRCA

After a RRSO, uterus removal and DIEP mastectomy do you have chronic pain?

I am looking at doing all of this and I am wondering if I will ever feel healthy, and like myself again once it is all done. I am praying they don't find cancer in any of the pathologies.

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u/First_Chipmunk_6891 — 19 days ago
▲ 2 r/BRCA

Anyone decided to keep your breasts after getting the risk analysis?

I have a genetic risk analysis appointment coming up in about a month. I am not sure what I want to do as of right now.

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u/First_Chipmunk_6891 — 1 month ago

Will chatGPT and Reddit replace close friendships?

I can share all I want about myself and my thoughts, and give relatively little. No obligations and no compromises.
What am I missing?

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u/First_Chipmunk_6891 — 1 month ago
▲ 1 r/BRCA

Right now I want RRSO for ovaries, and high risk surveillance for boobs.

I am 54 and last week just found out I have BRCA1. I am willing to do RRSO but the mastectomy seems very invasive and just too much. I had a mammogram and ultrasound today, and my boobs are all clear, nothing abnormal.

After having RRSO, do your feelings about mastectomy change? Like, it could seem more reasonable? Right now it seems like too much, when I can have surveillance every 6 months.

I am also wondering about a lifelong dependence on prescription horomones, once my ovaries are gone. There's no other way for my body to have horomones, is there?

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u/First_Chipmunk_6891 — 1 month ago

Here’s my latest Apple hearing test

I’ve still got some normal hearing in each ear but it’s wildly asymmetrical. My left benefits from an aid a lot. The right is just a supporting role, like an additional backup speaker. Anyone else have an Audiogram like mine? I just got full generic tests back and there was no cause found.

u/First_Chipmunk_6891 — 1 month ago
▲ 3 r/BRCA

How to tell sister, spouse and parents? Teen daughter?

Hi all, newly diagnosed BRCA1+. I just found out last week. I got a mammogram immediately and I am waiting on the results. I made a deal with myself that once I get these results, I will begin to tell my family.

Any advice on how to tell family members? My sister is 47. My daughter is 15. Parents are 78 and 80, both healthy, no reproductive cancers. Husband is healthy but overweight and hypertensive 56 year old guy.

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u/First_Chipmunk_6891 — 1 month ago

Didn’t wear my hearing aids today

Today I wasn’t wearing my hearing aids, and I heard my daughter say she wanted a math book. It turns out that she wanted a Mac book, not a math book.

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u/First_Chipmunk_6891 — 2 months ago

Was this ablism?

I was at a class today for my job. There were nine other people
attending, and two facilitators. I wear hearing aids, the kind that have clear wires going into your ears.

One of the facilitators asked me a question, and I answered her, and then she reached right over my hands and took over my laptop. She starred searching for info about her question on my laptop, without asking me. I thought it was super condescending and rude. Am I wrong?

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u/First_Chipmunk_6891 — 2 months ago

Genetic testing didn't give me an answer

I had extensive genetic testing done and the result is that they still don't know what caused my hearing loss. I have a right ear that goes moderate to severe/profound, starting above 2000. My left ear has some mild loss. When I was 5, I had moderate starting above 3000 in the right only. So, it has progressed very gradually over time.

I did not think of myself as hard of hearing most of my life, and I still can function pretty well without hearing aids in some situations, like being at home with family, or spending the day by myself. But after a few days, I miss wearing hearing aids and put them in anyway. If I have more dynamic or noisy situations, hearing aids are a must, especially for work. I only got this pair about 6 months ago and I really do need them.

So, I am hard of hearing, but without a reason why...anyone else not know why?

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u/First_Chipmunk_6891 — 2 months ago
▲ 1 r/BRCA

Just found out I have BRCA1

I had genetic testing for something else and I found out I have this. I am 53 and my daughter is 15. My mom just turned 78 and she has had some minor bouts with skin cancer but doing very well. My sister is 6 years younger than me, very healthy.

I don’t know what to do. I don’t want any surgery, but I need to talk with doctors, I know.

I’d like
To start taking turmeric every day.

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u/First_Chipmunk_6891 — 2 months ago

Color correction after brow transplant

I had an eyebrow transplant about 2 years ago. They took well and I have to trim them regularly, but I still have old powder brows underneath that are grey. They don’t really look polished or very good. I would like to get a color correction and touch up to the shape. However, I am concerned that titanium dioxide is what caused me to gradually lose all my natural brow hairs. So, I am looking for someone who will
use pigment that does not contain titanium dioxide. Please let me know any advice, thank you!!!

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u/First_Chipmunk_6891 — 2 months ago

First Family trip to Grand Canyon

We just got back from our first family trip to the Grand Canyon. My 15 year old daughter didn't think she would like it, but she really enjoyed it.

We stayed at the Squire Inn, which. was nice, but I hope to go back and stay in the park to see the stars. We didn't use the pool enough to justify staying there again. She did use the gym facility.

The lines were not too long for anything. We noticed that food was very expensive both in and out of the park.

I hope we will go back and do more next time. My husband didn't want to hike Bright Angel trail because he is a clumsy guy and his gut was telling him don't go. So, we walked the Trail of Time. Maybe next time, we could bike the rim.

It's an amazing place. I'm very thankful for it, It is real.

By the way, the wifi was not a problem anywhere in the park we went, nor in Tusayan. It did cut out a little bit on the Desert View Drive, but other than that, we had strong access all the time.

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u/First_Chipmunk_6891 — 2 months ago

Invisible disability and underachievement

When I was in kindergarten I had a moderate hearing loss in one ear. I got no accommodations for it and really wasn’t aware I needed them.
When I had my hearing tested in my 20s, the loss had become severe high frequency in one ear only. I still was not aware that meant much.
In my 30s I tried a hearing aid and used it on and off.
Now 53, I have mild loss in my better ear and finally wear 2 hearing aids and accept that I have a a hearing impairment. There are sounds I can’t hear without the aids, like some of the summer insects, a shower behind a closed door, busy conversations in noisy spaces, to name a few. I have one ear that is significantly impaired and the other is mild, so the aid on that side brings back soft sounds I would otherwise miss completely.

In my life i have been an underachiever, overwhelmed, both in my career and as a family member and as a friend.
I am excited about the future but I
am also very disappointed in my past.
Can anyone relate?

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u/First_Chipmunk_6891 — 2 months ago

I have a mild hearing disability

I’ve got severe high frequency loss in one ear, and some mild loss in my other ear. I wear 2 hearing aids. I’ve had the severe high frequency all my life, but the mild loss in my better ear is more recent.

I will be wearing hearing aids for the rest of my life. I’m 53.

I feel like I have a disability for ADA rights, but functionally, the hearing aids give me access to almost everything that people with average hearing have. It’s still not as simple as putting on glasses and the rest is done. There’s still some times when I need to use strategies or improve the acoustics of a space where I work. Sometimes, in a place with noise or poor acoustics, I do need to pay attention to where I sit to optimize being closer to what I want to hear, conversationally. But I feel like I manage those things better and better all the time.

So, that is my hearing difference. I sometimes get anxious about people seeing the little wires coming out of my ears. I worry that it looks strange. I worry they might think I should not be wearing them, since some people know me well and know I can hear fine in the simple situations where I see them. They haven’t see me withdraw when things get noisy or complicated, or ask for repeats and then not even understand the repeat, which was very frustrating.

Do you think that hearing aids with little wires in your ears, that go behind your ears, make a person look strange? Or are they just a little detail that no one will focus on for long?

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u/First_Chipmunk_6891 — 2 months ago

About 6 months into wearing RIC hearing aids

I have been wearing hearing aids since about March. I feel like I am really starting to adapt to them more and more, to the point where they feel like part of me that belongs there.
I’m starting to care less if people notice them. These are not my
Grandfather’s hearing aids. They have AI adjustment, Bluetooth, volume control from an app on my iPhone, are rechargeable, and just about never produce feedback.

They also allow me to hear a lot better than without them..

The wires are so thin and sleek. The behind the ear part blends in with my hair and I usually have some kind of cloth covers on them to protect them. I can tuck them into headbands if I want, but I don’t need to.

They are my hearing aids.. for
the rest of my life I will be wearing hearing aids.

It’s just amazing!!! This technology would have been unthinkable just 20 years ago.

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u/First_Chipmunk_6891 — 2 months ago