u/ForeverTheHero

The end of September will mark 5 years dealing with this chronic illness that robbed everything from, but I see the light at the end of the tunnel. I was so sick first couple years could barely leave the house mainly bed and couch bound. Had trouble opening my eyes. Extremely tired mentally, physically and the worst PEM imaginable. Difficult speaking and couldn't stay awake to save my life. Couldn't think or read at all really. Loss of internal monologue for almost first year. But fast forward almost 5 years, and I'm 95% recovered! I'm in grad school thriving (and I go in person) and frequently hike. Able to read, watch movies and TV shows (couldn't tolerate these for 3 years). For almost 2 years I just accepted I was doomed to a life of suffering. I have come so far in my recovery journey and hope that everyone here in this sub will eventually recover. No one on this planet deserves long covid or ME/CFS for that matter.

Things I have done to heal:

1. Extremely gentle reintroduction of activities, physical and mental . This was probably the biggest thing. Just very slowly and carefully adding more stimulus in and painfully recalibrating my baseline higher. Extremely difficult. Like running into a brick wall thousand of times hoping you'll break through. DISCLAIMER: be very cautious with this as there is very high likelihood you could get worse. I had to experiment and failed so many times got set back many months. Don't do any graded exersise at all throw out the whole idea of anything "graded". Just take things so slow.

*NOTE: I do not endorse brain retraining or any of that quackery. Anything with a price attached to it is malicious especially with how much we have had to suffer.

2. Tru niagen - 300 mg

3. Red light therapy 2x a day

4. Zyrtec 24 hr

5. Lots of professional full body massages with calm, serene environment.

6. finding hobbies compatible with my baseline so that I can find some fun despite the misery.

To give you perspective, for first 2.5 years every single day of every month on my calendar could be marked as "Extremely tired/no capacity" and now I can no longer mark that on any days. Most days are "excellent" and make only a couple that I'd mark as "slightly decreased capacity". Overall I can do everything I did before I got like this with exception of flares once or twice a month.

Don't ever give up on your recovery and remember that you are all the real superstars!

As soon as I am completely healed I am getting a Rolex with the Latin phrase "Superavi impossibile" engraved on the back as a present to myself. It means "I prevailed over the impossible."

I’m curious about how many tti victims were homeschooled at one point. There seem to be similar tendencies among parents who homeschool and send their children to tti schools; that is, inconsideration, narcissism, and religious fundamentalism.

Left my iPhone 17 in living room on table all sounds off and do not disturb and all apps closed, and two family members heard a man talking and asking questions on it for about 20 seconds. Voice very muffled but sounded American. Was in bathroom when this happened.

It took me a while to get the 100 coin star for tiny huge island and tick tock clock and I finally got to see yoshi but now I feel disappointed tbh

I'm electrical engineer 7 years now mainly managing various projects and other boring paperwork that ends up being scratch paper because no one actually cares about it. I've always thought GIS looked interesting, and I am currently working towards data science masters. Would it be possible to transition into GIS fields or would I need additional education like ESRI certs? Thanks!

Azula treatment from Ozai is very similar to golden child in narcissistic family structures. Often the gold child is envied due to receiving their parent’s love and acceptance, but that comes with significant mental health burdens down the road as its often dependent on their performance and how well they can reflect their narcissistic parents image. Golden children often don’t receive sympathy like scapegoat children and I think that has something about to do with why people won’t feel sorry for Azula.