I’ve got NASH and F3 fibrosis. has anyone who’s about the same get any like low blood sugar symptoms like dizziness when standing, shaky, eyes a bit weird and not focusing fully with occasional double vision? I’ve been having these for about 6 months on and off and I put it down to my blood pressure or thyroid but both are quite good now levels wise and it’s still happening. thank you 😊
Finally after a year and half of waiting and hearing tests, appointments and constant ear infections and tonsillitis my 3 year old little boy is finally having his surgery tomorrow.
I just wanted some ideas on great meals and snacks for them to have the weeks following surgery?
Also how was recovery? Did anyone sleep in the same bed as their toddler for comfort? He sleeps in his own bed in his own room but someone told me to let him sleep in my bed.
thank you for any advice 😊
Finally after a year and half of waiting and hearing tests, appointments and constant ear infections and tonsillitis my 3 year old little boy is finally having his surgery tomorrow.
I just wanted some ideas on great meals and snacks for them to have the weeks following surgery?
Also how was recovery? Did anyone sleep in the same bed as their toddler for comfort? He sleeps in his own bed in his own room but someone told me to let him sleep in my bed.
thank you for any advice 😊
Finally after a year and half of waiting and hearing tests, appointments and constant ear infections and tonsillitis my 3 year old little boy is finally having his surgery tomorrow.
I just wanted some ideas on great meals and snacks for them to have the weeks following surgery?
Also how was recovery? Did anyone sleep in the same bed as their toddler for comfort? He sleeps in his own bed in his own room but someone told me to let him sleep in my bed.
thank you for any advice 😊
My 31 weeker is now 21 months and has a history of baby eczema due to being premature. This morning she was just normal. Did have eczema on her skin but nothing like this. She’s come home from her childminder like this. I’m going to take her to the drs tomorrow regardless just want reassurance I guess that waiting and taking her tomorrow is fine. she seems fine I’m herself. I guess she’s had a runny nose and a bit of a sneeze the last few days but that’s it. She’s eating playing smiling drinking Etc. But it does look like a little blistery when you zoom in and I’m a massive worried due to her being premature. thank you 😊
I think I might be in the wrong group. I see alot of posts where people are either mocking or complaining of most of the posts on here. I’m not really sure what haematology is. I thought it was about bloods and maybe others did too and that’s why there’s the posts. This is just a genuine post in case I’ve got the wrong idea so i know where to go. Worst thing is if you’re worried and people are harsh or mean in the comments Etc. It is bloods or specific bloods?
Our little girl was born at 31 weeks at a good weight of 3lb. She was actually fine and should have been kept in longer. But at 22 weeks my blood pressure starting going to heights of 192/150 regularly so I was put on lots of blood pressure medications and monitored. i had about 5 Hopsital stays between 22 weeks and 30 weeks when I was admitted permanently. I was being monitored every other day towards the end and signed off work from about 26 weeks. My blood pressure kept rising and protein in my urine but normal blood work. I also had diabetes with the pregnancy and between 20 weeks and 31 weeks my blood sugar was either sky high at 20+ or under 4. Mostly under 4 no Matter what I ate it just kept dipping. Eventually they said it was most Likely placenta issues and we need to get her out. Also as they were worried I would stroke out with how high it was climbing. I ended to having her at 31 weeks and she was fine. Placenta was fine. I felt a lot of guilt as she couldn’t eat for the first two weeks even tube fed she rejected it. She could breathe on her own from day two but no milk and she also developed a blood infection from her long line. I felt awful that my baby was suffering because they were worried about me. We realised when she was about 8-9 months she had some excess fluid around her skull too due to being premature. Another thing I could have saved her from. She was barely talking and she was struggling to use her right side hand and legs wise.
she is now just turning 20.5 months 18 months corrected and she’s finally got her teeth coming through and she can can talk. It’s very basic still like mama and car or what sounds like car but shes trying. She has always been very strong and happy but her brain development I was a little worried about as she would just come over to you and touch you if she wants you or points at things rather then talks so this is amazing. I was so worried she would struggle because of my health issues etc. I’m super proud of her. She’s a force to be reckoned with now she’s found her voice.
Hi
i‘ve just started my fitness journey. I’m on day 3 of 3 at the gym. My heart rate got up to 197 on my first day cos i’m so out of shape. I’ve been told to take it steady and slow. I’m 36 years old. Female and currently at around 14 stone. Just had two babies in the last 3 years and not lost the baby weight yet. I’ve got Pcos, thyroid issues (hashimotos ) liver disease (NASH) current kidney issues and high blood pressure averaging about 175/110. lots of medications but mostly weight loss would help a lot of it. my fitness level is probably 0 atm so any advice would be amazing thank you 😊
Hi everyone
I’m 36 and I’ve had two babies in the last three years. I’m overweight by quite a bit and just started at the gym this week. Hoping to lose about 4 stone. I don’t sleep much as my 20 month old (born at 31 weeks) is a terrible sleeper and often wakes up from 2-3am onwards. I’m noticing all my wrinkles and just how old I look 😂🤦♀️. I know sleep and weight loss will help a bit but thinking of purchasing one of these but I want to know if anyone uses them and if they really work. Thank you 😊
It’s literally so hard to get hold of the hepatology team here 😂🤦♀️🙄. I was due to have a 6 month follow up fibroscan bloods and ultrasound in March of this year. December I got a letter that it had been cancelled and I’d get another apt through. Still not heard anything and it’s June. I’ve chased it twice and was told they can’t book me in as nothing available within 8 weeks but they can’t book ahead of 8 weeks. So I’m not sure what I’m meant to do. My kidney Specalist has just written to me raising concern my ALT is getting worse. Last gp one was 135 but I don’t know what the one was at her clinic but I’m guessing higher than that. I am not like the most severe case of NASH. My last fibroscan over a year ago was KPA 5.7 and cap of 360. but in 2019 I was confirmed with stage 3 fibrosis via fibroscan and biopsy so I do have a history of more serious case. I don’t mind waiting months and months as long as I’ve got something booked in Etc but can’t as they just keep saying it’s too far in advance to book🤦♀️. At this rate I’ll be retiring by the time I get one lol. Sorry for the rant. It’s just frustrating.
Feel like my eyes are getting so much worse. Double vision, pain, nausea, headaches and dizziness so much worse. dr won’t see me for two weeks. Eye dr wont see me till 22nd June. Mri results of my head apparently take 12 weeks due to massive backlogs and specsavers won’t help me till the results are through. My eyes are +10 prescription so bad enough without all these symptoms. My contacts dry my eyes more but my glasses make the double Vision and headaches worse 😭🤦♀️. Sorry for the rant no one else understands they just say get on with it.
I’ve never had it before I’ve had stage 3 scarring before but due to NASH not drinking etc. My latest results show it’s still very fatty but no scarring. I do have bad dry eyes and double vision headaches dizziness and nausea but waiting on results for Brain MRI for not liver related things but my husband said my eyes look jaundice but he hasn’t got liver disease so doesn’t really know about these things. So thought I’d ask people who know what it is Etc.
Hi
sorry for the pictures. I’ve recently been diagnosed with dry eyes. Went to the eye Specalist for a check up after having double vision, headaches, dizziness and flashing lights. Was told I’ve got a new right eye (the eye in the pic) slight squint or start of squint. They also said they are very dry. im waiting for results from my brain MRI I had last week to rule out causes. I’ve got prism glasses in the meantime to help with headaches and double vision. i do have autoimmune hashimotos so i guess they are ruling out like MS Etc. I’ve got muscle aches and cramps and tingling with it too everywhere. but the last few days my eyes have been worse and my double vision is horrendous. Does this look like inflammation or just dry eyes? I’ve never had them before. thank you 😊
I’ve had liver disease since 2008 when I was 18 my enzymes started to be out of whack. Skip to April 2019 I had a fibroscan KPA 10.00 and CAP score of like 360 So quite bad. They did a follow up biopsy that confirmed the result was accurate. I had yearly follow ups but with a different dr as I’d moved and the new dr was awful. Basically said he only really sees patients who are need a new liver. So he wasn’t very helpful but they did repeat fibroscans that’s came down to 8 then 7. my last one was a year ago and was KPA5 but still highest CAP score. My ALT is still always high last one was 136. anyways I’ve been signed off now and they said that’s it. I’ve lost weight originally but I’ve had two children in the last 3 years so big again now. They never re-bioposyed my liver to show the fibrosis is gone just said it was cos if my KPA score. Obviously I’m really happy but I do get a bit worried it’s not been 100% confirmed as gone. I worry that I’ll get a test in the next 10-15 years and be told it was still there and is chirrosis etc. Has anyone else had a biopsy to confirm all sorted?
What diets worked best for losing weight for everyone?
im 14 stone and 5 foot so I’ve got about 4-5 stone to lose.
Ive also got pcos and high blood pressure and hashimotos/hypothyroidism so losing weight is like ridiculously hard lol.
I’ve also had Gestinal diabetes twice so high risk for developing it properly.
I’ve had line 19 moths of apts and tests so be having my last baby at 31 weeks due to preclampsia and I’m now thinking the only thing I can do is This to fix it all.
apparently my liver is doing much better now. I had a fibroscan and biopsy in 2019 that confirmed F3 and S3. My most recent fibroscan was just S3 And F0-1. Altho not had another biopsy to confirm.
most blood work is in range Altho last ALT was 134. It’s usually between 70-150.
thank you for any advice I guess I just got to sort this bit out to get all of this under control. I’m only 36 and I’ve got a 3 year old and a 19 month old.
Hi
I've not been diagnosed as of yet but last time I spoke to the dr she was asking me to look into it as a possible cause. How long did it take you to get diagnosed ? I’ve just had a really bad flare of hypothyroidism and hashmitoes but there’s almost in range now but my pain and stiffness and fatigue and just general feeling weak/dizzy. Dry eyes and mouth are getting worse and worse despite my thyroid almost being back to normal. I’ve been tested for arthritis and lupus. ANA was positive but the second set of more specific antibodies for them were negative. thank you 😊
Hi everyone
I’ve not been diagnosed but I’ve got some symptoms of this and my dr seems reluctant to test for it.
just wondering what tests did you have/ask for?
I’ve for Hashimotos so some of these could overlap but the main thing that made me think I Could have this is my extreme dry eyes and mouth.
I have severe fatigue and muscle aches and joint pains Etc but could be my thyroid. My TSH is getting better but symptoms Such as joint pain and muscle aches and tiredness getting worse.
ive been having headaches and nausea and dizziness along with double vision. went to the eye dr today and they said my eyes are so extremely dry that it’s causing a new onset of right eye squint to form. when I looked into this it said auto immune and dry eyes and blood pressure.
I’ve tested positive for ANA but negative for arthritis and lupus.
any advice on what to ask for would help! Thank you 😊
Hi
I’ve always assumed my issues caused my high bp and it’s a symptom rather than a cause but some of the tests that have recently been done have been less severe then I thought and now I’m thinking maybe My BP is the cause of my symptoms not a symptom itself.
what are some classic symptoms people have experienced due to high Bp? I’ve put mine down to my kidneys, liver, thyroid but actually maybe it’s just my Bp.
This is my first one so I don’t know what to expect but the person Doing it was taking lots of pictures of these white dots on the scan. I could see as I was facing toward him and the scanner.
only two hours later And my report is through. It reads
‘appearance and shape of thyroid normal.
no concerning cervical mass or lymphadenopath’
the way he phrased it just rubs me slightly the wrong Way. Is it like I’ve got some but they are really low down on the scale so not worth mentioning even tho I would like to know that they are there if they are. Or are there none altogether?
Im from the uk so can’t ask for another one and it took me 4 -5 months of asking for this one.
what do you all think?