u/Kalachnikov_

Image 1 — I really need advice on surgery from people with experience and knowledge
Image 2 — I really need advice on surgery from people with experience and knowledge
Image 3 — I really need advice on surgery from people with experience and knowledge
Image 4 — I really need advice on surgery from people with experience and knowledge
Image 5 — I really need advice on surgery from people with experience and knowledge
Image 6 — I really need advice on surgery from people with experience and knowledge
Image 7 — I really need advice on surgery from people with experience and knowledge
Image 8 — I really need advice on surgery from people with experience and knowledge
Image 9 — I really need advice on surgery from people with experience and knowledge
Image 10 — I really need advice on surgery from people with experience and knowledge

I really need advice on surgery from people with experience and knowledge

Hi. I’ve been denied surgery I’m in my mid 20’s, I have got a lot of pain despite what looks like not too bad of a curve. I have kyphoscoliosis and I believe the pain is caused mainly by the kyphosis but surgery would be correction of the scoliosis and kyphosis. My orthopaedic surgeon doesn’t recommend surgery and has warned me against it but life is extremely difficult with back pain from things as little as hanging out laundry and folding clothing. My pain varies. It starts minimal but very quickly flares up right where the curve is on the right side and then hurts on the left and through the middle also. Surgeon says that the curve is unlikely to grow much more through my life, another reason for not operating.

People have told me that surgery should be able to be done and they cannot understand why surgeons wouldn’t want to do a surgery despite the pain I experience. I’ve done PT for 2 years and I feel no effect at all. I’ve gained back muscle but no pain reduction. I feel like surgery is the only hope but yet it’s extremely scary and irreversible. I have an appointment with a neurosurgeon to discuss more this week but I want people’s opinion before then. Is it really so bad for me to go for surgery? Could it take away my pain and give me a proper life back again before it’s too late to ever live a proper life with minimal pain?

I’ll attach quite a few X-rays so people can see and potentially relate with a similar experience and give advice. Thanks all who do. If I’m slow to reply it’s late and I’ll respond when I’m awake. I’m from a different time zone.

u/Kalachnikov_ — 2 days ago

How do you cope with knowing you’re going to be alone?

I’m really struggling to watch my life pass by and miss out on the best parts of it that abled people can do and have. I always wanted to fall in love and be with a woman who loves me and I can love her equally and spend life together in a relationship, partnership, friendship and marriage all in one but in recent years I’ve come to realise there is no hope for that when living with a disability. I have chronic pain with my disability, it’s hard to get out and do things for long and most activities cause a lot of pain, so even if there was someone who would overlook my disability and love me I probably wouldn’t get to meet them. I’m still young enough to find someone but I know that the chances are so small. I have too many negatives to me for any woman to love, the biggest one being lack of finances. Is there any way at all to be at peace alone and knowing you’ll never be loved?

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u/Kalachnikov_ — 7 days ago
▲ 3 r/lonely

Living with a condition and so lonely

I am a mid 20’s man, I have had a few decent friends before back when I was still in high school but they all faded away or backstabbed me in the case of my former best friend. My closest friend now is a really great guy and he’s not the backstabbing type but he lives far away so I can’t hang out with him much ever. I’ve had a few girlfriends again back when I was not as run down by this condition, now it’s been 7 years since my last heartbreak and I’ve never had interest from anyone since. If you’re a man with an unfortunate condition and you struggle you have no hope in this whole world. I had a lot of potential, I had strengths physically that would have carried me far in life and I could have had a completely different life to what I have now and I am just watching the time go by helplessly. If I ever try do things in my life I’m reminded by my chronic pain that there’s no way to change my situation. It’s the loneliness and being so unwanted by everyone that hurts the most. I’ve been reduced being something that people aren’t used to seeing and here and there I get a comment about my height. I am tall and that’s usually a good thing but it’s the very reason I ended up with chronic pain from my condition so it’s not as good as it sounds. Aside from those small comments here and there I am entirely invisible. I desire to have a wife and spend my life in love with a woman who loves me equally but I know there’s no hope I can’t provide much at all financially with my condition. I’ve looked at every option. I’ve asked for surgery and been told no and yet that means living in pain for my whole life, surgeons seem to think I’ll have just as much pain even with a surgery and need more surgeries later so I can’t win.

I just want to feel like others and have a normal life without always being in pain and invisible because of it. I want a fair chance like everyone who doesn’t have conditions have in life.

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u/Kalachnikov_ — 11 days ago

Need advice on bracing and scoliosis program

I sent recent X-rays to a scoliosis clinic in a city in my country for review and this was their response. I’ve been dealing with scoliosis and the pain from it for many years now and my surgeon said that surgery won’t help. I’ve been doing physio for 2 years and no pain reduction. I’m seeing a pain management specialist and I’m going to have injections soon to try reduce pain but last injections didn’t work, they were a different type.

Would bracing reduce pain when the curve is already fully grown and would any program be helpful for pain reduction at all? How effective are these treatments?

u/Kalachnikov_ — 17 days ago

It doesn’t look as bad as many others have it however

The pain that is caused by this condition is constant when trying to do things, working is near impossible because of the pain. Most seats hurt my back too. I’m only in my mid twenties but this condition has ruined my life. The work I would have wanted to do I cannot do no chance. If I do work it’ll be from home doing things I don’t like because I don’t like office/computer work at all. Although I’d love to find a wife I have to be realistic and not expect to find one since this condition takes that opportunity away too. Ontop of that I’m an only child. I’m so scared of being alone in life and with no proper support or anyone to lean on and I’ve got way too much of life ahead of me to get through. I don’t really have anyone else I could rely on when I am alone and in trouble.

Been doing PT for almost 2 years. Schroth professionals are nowhere near me and I’ve been trying injections and soon potentially nerve burning. (definitely for the arthritis in my lower back not shown here) surgery has been ruled out as surgeons think it won’t grow much more through my life and they also say surgery would likely cause complications through my life leading to more surgeries. After all that it’s near impossible to get disability benefits. it’s at a 46 or 47 degree curve now I just wish it didn’t give me all of this pain at least so I could live normally enough. People seem to think because I look relatively normal with clothing that I can do what everyone else does but it’s not the case.

u/Kalachnikov_ — 30 days ago

I have a strange disability that effects my life a lot. I’m in my mid 20’s and I have Kyphoscoliosis which is a curve in my spine plus arthritis in my lower back spinal area probably as a result of the curve above. This has resulted in severe anxiety and depression both also diagnosed. I struggle to work due to pain but this condition won’t likely cut my lifespan by much (which is meant to be a good thing but it upsets me) I struggle to be independent much at all and my mother is extremely kind and understanding. She also is my only person who cares and understands me but I am an only child sans she has me a bit later than normal. I’m really scared of when she is gone what I will do and how I will live any sort of a normal life, I won’t have anyone to turn to unless I had a partner which is my next point that I don’t think I’m going to find anyone. In my country your partners income is considered as joint with the disabled persons income in a marriage and so the disabled person gets no benefit with a full time working partner and minimal for any work at all. I am open to dating a disabled woman too of course, someone that understands the hardships it could be a good thing and even just getting by on benefits together would work as I have a fully paid 3 bedroom house left to me in future which is very fortunate. However finding someone seems to be the issue. Ever since I’ve had this condition no one has really been interested in me and I can understand. Men are supposed to provide and I can’t at the moment and very possibly never.
Is it possible to find a loving partner who would look past my disability for who I am? I don’t expect anyone to want to but I would love if it was possible.

I feel quite cheated in life, I know a lot of people like to live a long life even when they have a disability but I don’t have those same feelings. The way life looks for me ahead I don’t want to face it and go through it and be so lonely throughout.

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u/Kalachnikov_ — 1 month ago

So I’m mid twenties now and I’ve been battling with pain and trying to find options to reduce pain since surgeons have told me I will not be able to get surgery (destroyed my mental health entirely) so I am late to come to try work but I have to try something soon for some money to have at least even if just a little. The issue is I have a lot of pain when doing activities and standing for long periods is impossible with it, the other side of the problem is I despise desk work it is unbearable mentally to be looking at a computer screen for work all day.

Does anyone have any job ideas? I’d consider self employment I know a lot people do that but I’m not very confident so I don’t know. Any helpful and supportive ideas welcome because I need the help.

Might not respond for a while as it’s late I’m going to sleep will see any comments in the morning and thanks for any help that can be given.

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u/Kalachnikov_ — 1 month ago

I’ve got kyphoscoliosis I can’t work at the moment and I’m mid twenties I don’t know how to be able to live my whole life with this I could easily be 80 and I’ve got over 55 years to go if that is the case and I won’t have my parents for all that time and if I live a long time and have a lot of years with them I really don’t know how I’m supposed to cope mentally with that. I likely wont find a partner and be married because I’m a guy and guys are supposed to provide and have money but with this condition I can’t do much about that.. it all seems very hopeless and I just wish this didn’t happen to me. I don’t know what to do.

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u/Kalachnikov_ — 1 month ago

I’m wondering if skipping (jump rope as you might know it) is safe to do with kyphoscoliosis? I can’t do a lot of physical exercise, walking ends in pain but also because I have arthritis in my lower back but it hurts in the upper back too but I’ve found that I can do some skipping as it is intense and fast and I want to keep my weight lower and reduce strain on my back as much as possible hopefully to reduce pain as much as possible although I’m sure I’ll still have quite a lot of pain but also for my mental health to look as good as I can. I bounce off my toes so I’m hoping that the bouncing takes any potentially harmful effects out of the exercise.

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u/Kalachnikov_ — 2 months ago