u/Lunabuna91

I haven’t been on it long enough for to feel these effects surely?? The benzos also didn’t work AT all.

Ps pls don’t say contact dr they are stupid and argued I’m not on “street doses” so no such thing as withdrawls or tolerance or addiction.

It’s actually making me consider weaning off altogether as I can’t imagine the hell of withdrawals if I’ve been on it longer.

Also, it’s quite sedating at the 50mg AM & 75 PM dose. Still no reduction in my chronic headaches and migraines so a lost cause?

I bought a simba hybrid and can’t tolerate the stench even after a month so it’s going back. I can’t even lie on it for more than 20 minutes as it starts my chest off. So a mattress that isn’t compressed and offgassing (it also seems higher on one side and sinking in the middle!) I also found I didn’t sink into it enough maybe?

I currently have a spring and memory foam mattress in my room and in the spare room similar and it kills my back and it’s sinking in on one side.

I like sinking into my panda memory foam topper but I get super hot in general.

I’ve been looking at reylon, Harrison spinks and Hypnos. My only worry is will I be able to curl up into a ball in weird positions and sink in comfortably? I sleep very strange, I’m bent on my side with my limbs allover the place.

I can’t test out mattresses as I’m bedridden.

Thanks in advance!

I bought a simba hybrid and can’t tolerate the stench even after a month so it’s going back. I can’t even lie on it for more than 20 minutes as it starts my chest off. So a mattress that isn’t compressed and offgassing (it also seems higher on one side and sinking in the middle!) I also found I didn’t sink into it enough maybe?

I currently have a spring and memory foam mattress in my room and in the spare room similar and it kills my back and it’s sinking in on one side.

I like sinking into my panda memory foam topper but I get super hot in general.

I’ve been looking at reylon, Harrison spinks and Hypnos. My only worry is will I be able to curl up into a ball in weird positions and sink in comfortably? I sleep very strange, I’m bent on my side with my limbs allover the place.

I can’t test out mattresses as I’m bedridden.

Thanks in advance!

edit again to say thank you for all the comments!

I have had chronic headaches/migraines every single day for 4 years. But have been suffering extra bad since end of Feb but the pain is 10/10 none stop since Botox injections 5 weeks ago. I know meds can break it but my neuro said end of road and has given me Pregabalin.

Since this has gone on I’ve tried about 5 Triptans including nasal. OTC painkillers. She said nothing else can offer except Pregabalin and a CGRp injection which I have refused for numerous reasons.

So now I’m taking a lorazepam everyday which my neuro doesn’t know about, which isn’t great and not what I want to do but I can’t handle the pain without.

Unable to go to hosp due to very severe ME/ long covid. I’m hoping it’ll break on its own. And that’s all I want to know so I can have some hope.

Thanks in advance.

Edit to say I’m also taking the Pregabalin and it’s doing nothing so far. I tried atogepant and at 15mg 3 days it stopped my stomach working at all and I had a burning rash down my arm.

I’m on 25mg twice a day so far and feel nothing for even for my anxiety.

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I had migraine Botox 3 weeks ago. Think it’s even worse since then too. I am bedridden so paid for a qualified nurse to do it at home.

I am allergic to CGRp
Triptans, beta blockers, OTC pain meds do not work
Lorazepam was working (not what it was prescribed for and neuro doesn’t know about this) and now it isn’t
I asks for muscle relaxants and was told no we don’t give those
My neuro who is a top headache neuro in UK has said we are at the end of the road and there’s nothing they can do. Out of desperation I rang 111 today due to the pain but because I have very severe ME I am unable to go into hosp as it’ll make my condition worse.

I dunno what to do. I am on the verge. I can’t take another day of pain. I wake up and the pain is there instantly.

I’m at a fucking loss. I am suicidal and I have no one to help me. I’m 35 years old. My life is a living hell. Not only am I stuck being cared for fulltime due to the illnesses I have that no Drs understand but I’m also stuck in permanent agony.

I’m taking 1g, 4x per day. I bought it from an EU pharmacy. I’ve been trying to fix this myself. I’m bedridden due to severe illness and Dr isn’t fussed. Is it worth keep going? I’m desperate for some relief and something to help.

Not looking for medical advice, just thoughts on the above re sucralfate.

Thanks in advance.

When did you feel a difference?

Thank you!

My upper stomach is permanent agony. I’ve been prescribed PPIs but they don’t work. I don’t seem to have acid. Just a constant gnawing pain which eases ever so slightly when I eat then comes straight back.

I don’t even know for sure if this is constipation or something wrong with my nerves but I have to take laxido PEG solutions everyday to be able to go.

Yes I should be checked out but I am too sick for hospital and it would make me worse (v severe ME/CFS). So just looking for reassurance re the above Q.

It’s £400 private in the UK but I managed to find a French pharmacy that sells sachets.

TIA. Apologies I am unable to reply.

TIA!

Edit: I mean heavy steroids like prednisone for example

l've had a permanent headache for roughly over 4ish years now which dip into severe migraines weekly. Since Feb it's been basically none stop. My neuro has said there's nothing more she can do to help me. I can't fathom being in pain like this for the rest of my life.

I have severe ME/CFS / long covid and PMDD and I’m struggling with SSRIs. I HAVE to take one for PMDD unfortunately.

Fluoxetine (10mg): caused internal restlessness, muscle clenching, and racing thoughts - I was on for four years then I switched (due to it interacting with a med I need to go on) so I switched to Escitalopram (2.5–5mg) - 4 months - reduced the clenching and helped anxiety more than the fluoxetine, but I became more unwell overall, had worse sleep/dreams, higher pain particularly severe headaches (not sure if this is a coincidence), and developed petechiae/bright red blood spots, mild RLS - due to this I switched to Sertraline (~12mg): after 1 week I now have the same severe restlessness and “crawling out of my skin” feeling as fluoxetine. I actually forgot how awful it was.

Could this be withdrawls from the lexapro? I’m seriously debating just going back on the lexapro tbh because the restlessness is so intense. I can’t speak to my GP as they literally do not have a clue. Would appreciate insights! Thank you!

I tried the A20 and they really hurt my ear and I’m allergic to the actual plastic earbud (I know it’s strange, I’m very reactive to things in my ears) but I can’t sleep without them. The A20s are too big and really hurt my ear when I’m sleeping on my side, I’m talking about the actual body of it not just the ear plug bit. Any similar size and material as the A10?

Thanks in advance!

PS I’m in the UK.

Thanks in advance!!