Hopefully this post is allowed here. I am recently diagnosed with EDS and have a huge problem with belly distention. I am eating healthy, working out, and yet... It persists. What are you guys wearing? A. To make it more comfy on the belly, and B to look cute and hide it! What kinds of pieces work best?
Hi! I was recently diagnosed with MCAS after trialing Zyrtec and Pepcid which have greatly improved my symptoms with the exception of GI symptoms. I will continue with these two until my next follow up in 3-4 months. Specialist recommended I try cromolyn or ketotifen for my GI issues (cromolyn is her first pick). Here are the issues I'm having:
Cromolyn is "covered" by insurance but it will still cost me $500 for a 90 day supply. Not ideal.
Ketotifen seems to be less GI focused and I cannot deal with the possible weight gain, as I've already gained weight due to my IUD.
If I choose neither of these, what happens when I have to wean off Zyrtec and Pepcid? All my symptoms will return.
What would you do in my situation? I know that the side effects will vary person to person, but I'm having a lot of trouble deciding what is the best option for me. My main GI issues are bloating and constipation, I do not have problems with eating a variety of foods and I'm worried these medications could just make me worse off. Has anyone had luck with Quercitin or similar supplements? Does anyone take Zyrtec forever? Is this bad for your organs?
My thumb is always unstable in the middle joint & I notice pain when trying to manipulate small objects like jewelry at work. What kind of ring splint works for this joint & how did you measure properly?
Looking for compression garments that are not so tight and itchy they're overstimulating! I have milder dysautonomia and my tests have proven compression to help my HR but the really overly tight socks and tank tops on Amazon are a nightmare! Recommend me some comfy and high quality brands you swear by. Looking for socks and leggings mainly.
Hi guys! I have recently been diagnosed with hEDS, and am suspected of having POTS. Will see my specialist next week.
I'm struggling to find a way to wear cute outfits that are practical and COMFORTABLE with my chronic illness. I can no longer do the uncomfy clothes and shoes I used to wear. Either they are too overstimulating, uncomfortable, or not conducive to wearing compression items with it.
Any ideas for cute outfits or specific pieces of clothing you like that work with compression garments or just make an outfit look more put together while being comfy? I am in leggings and t shirt purgatory.
Hi all! I was recently diagnosed with hEDS and am being tested for suspected MCAS and POTS. I am taking Zyrtec and Pepcid for the past month and a half as a means to test for MCAS. What should I be looking for in terms of the medicine working or not?
I guess I don't fully understand what MCAS symptoms look like besides rashes and hives, as I don't really get those. My specialist mentioned my GI symptoms, urinary urgency, and headaches as possible MCAS symptoms.
How did you tell a difference when you were taking these meds?
Sorry if this post isn't allowed, but I'm looking to learn how to ID butterflies (and moths). What are some good resources to start learning the common ones and species in my area? Are there any apps that are useful? If not, what books and field guides do you recommend?
Hi y'all! I was recently diagnosed with hEDS formally. We are in the testing phase for POTS and MCAS. I know that I have a lot of symptoms of dysautonomia. I was recommended to up my water and electrolyte intake. However, I am feeling HUGE and retaining so much water. For reference I am currently drinking about 90-120 oz of water with a sugar free liquid IV per day (500 mg). I know this isn't enough but I'm working my way up. I have LMNT coming tomorrow. Do you always retain a ton of water? Did your body adjust after a while? Or should I be doing more or less of something? I am going to ask about all of this at my follow up, but wondering yalls perspective in the meantime!
Possibly relevant factors: trialing Zyrtec & Pepcid to rule out or diagnose MCAS, trialing Celebrex for joint pain, major heat wave in Chicago, and on my period (though the bloating feels more severe than normal).
Extremely far away from me in a tall grass field in Neshkoro, Wisconsin.
I've used both of these facial sunscreens and they work really great with my makeup but are causing me textured dermatitis and some itching on my cheeks. What ingredient is most likely causing the reaction? Any recommendations for a face sunscreen (for under makeup) that hopefully doesn't have the culprit ingredient? I want to make it clear that I'm not asking for medical advice, I know the sunscreens are the culprit but will also be seeing a derm in a few weeks as well. Just looking for ideas about ingredients!
I used to be super into makeup in my early 20s. Now that I'm over 30, makeup just isn't sitting the same anymore. I need a routine overhaul. Looking for some really good cream products, pale/ginger friendly base products, one and done eyeshadows, lip glosses, you name it! My skin is very dry and sensitive to fragrance. If you relate to this, what are your holy Grail products?
I've gotten my lashes done a few times (maybe 5-6) by a few different techs at different studios. All with good reviews. Each and every time, all the lashes fall out within a day or two. It's like my eyes start watering immediately and they all just fall out. No swelling or redness, no itching. Is this an allergy to the glue?
If so... Are there any alternatives or can some people just not have lash extensions? I used to use strip lashes all the time but I really don't have the energy anymore, frankly 😂