People who nraxspa , how were you dignosed?
What led you to dignosis?
What led you to dignosis?
I started taking upacidyn a day ago
It's also my first as med
I am just wondering when people say it "slows" progression? How slow are we talking?
Especially if we compare not taking at all
?
Are some meds slow it better or even better stop the progression?
How much time before I start getting worse
?
Here are some stats before meds
No night pain no stiffness no morning pain
Pain only in bending down
Blood markers crp 2.5 esr 7
I was dignosed purely based on billateral sacrolitis more on illac side edema
How much time do I have? I am in early 30's
Rhemutologist describes my condition as "mild"
Recently got dignosed with non radiographical axial spondyloarthritis
i am in early 30's
My rhemutologist calls my as mild
I have no morning pain or stiffness or night pain
I have no overt erosions ,no fatty metaplasia , no scelrosis
Clean blood markers and no symptoms other than back pain
I was dignosed solely on billateral sacrolitis with edema more on illac side than sacral
My stiffness is guarding in low back that's goes off by bird dogs instantly
My pain is in only in movement like bending down etc
I have no problem laying down or sitting as long as I want
Very little to no fatigue
However the abolsuute worst part about my disease it's never ending
It's the weight of dignosis
The fact that it will keep getting worse as time goes on
I simply don't see the point of living anymore. Everytime I take med i think what's the point? It won't heal me
I started taking upacidyn one tablet a day just from a day ago
I simply don't see the point of living anymore
I have low key given up i hardly leave my room anymore
What I want is never happening and simply not possible, I don't see the point anymore
Edit : my blood markers are crp 2.5 and esr 7 tested 2 days ago
Recently got dignosed with non radiographical axial spondyloarthritis
I am in early 30's
My rhemutologist calls my as mild
I have no morning pain or stiffness or night pain
I have no overt erosions ,no fatty metaplasia , no scelrosis
Clean blood markers and no symptoms other than back pain
I was dignosed solely on billateral sacrolitis with edema more on illac side than sacral
My stiffness is guarding in low back that's goes off by bird dogs instantly
My pain is in only in movement like bending down etc
I have no problem laying down or sitting as long as I want
Very little to no fatigue
However the abolsuute worst part about my disease it's never ending
It's the weight of dignosis
The fact that it will keep getting worse as time goes on
I simply don't see the point of living anymore. Everytime I take med i think what's the point? It won't heal me
I started taking upacidyn one tablet a day just from a day ago
I simply don't see the point of living anymore
I have low key given up i hardly leave my room anymore
What I want is never happening and simply not possible, I don't see the point anymore
Edit : my blood markers are crp 2.5 and esr 7 tested 2 days ago
Recently got dignosed with non radiographical axial spondyloarthritis i am in early 30's
My rhemutologist calls my as mild
I have no morning pain or stiffness or night pain
I have no overt erosions ,no fatty metaplasia , no scelrosis
Clean blood markers and no symptoms other than back pain
I was dignosed solely on billateral sacrolitis with edema more on illac side than sacral
My stiffness is guarding in low back that's goes off by bird dogs instantly
My pain is in only in movement like bending down etc
I have no problem laying down or sitting as long as I want
Very little to no fatigue
However the abolsuute worst part about my disease it's never ending
It's the weight of dignosis
The fact that it will keep getting worse as time goes on
I simply don't see the point of living anymore. Everytime I take med i think what's the point? It won't heal me
I started taking upacidyn one tablet a day just from a day ago
I simply don't see the point of living anymore
I have low key given up i hardly leave my room anymore
What I want is never happening and simply not possible, I don't see the point anymore
Edit : my blood markers are crp 2.5 and esr 7 tested 2 days ago
Recently got dignosed with non radiographical axial spondyloartharitis i am in early 30's
My rhemutologist calls my as mild
I have no morning pain or stiffness or night pain
I have no overt erosions ,no fatty metaplasia , no scelrosis
Clean blood markers and no symptoms other than back pain
I was dignosed solely on billateral sacrolitis with edema more on illac side than sacral
My stiffness is guarding in low back that's goes off by bird dogs instantly
My pain is in only in movement like bending down etc
I have no problem laying down or sitting as long as I want
Very little to no fatigue
However the abolsuute worst part about my disease it's never ending
It's the weight of dignosis
The fact that it will keep getting worse as time goes on
I simply don't see the point of living anymore. Everytime I take med i think what's the point? It won't heal me
I started taking upacidyn one tablet a day just from a day ago
I simply don't see the point of living anymore
I have low key given up i hardly leave my room anymore
What I want is never happening and simply not possible, I don't see the point anymore
Edit : my blood markers are crp 2.5 and esr 7 tested 2 days ago
Basically title
My pain behaviour is weird. I don't feel less pain after walking. But I definitely feel zero pain while laying down/sleeping or sitting etc with ortho cushion etc
No ankylosing no overt erosions and even no symptoms Like stiffness or morning pain Pain in positional only like bending etc
I take these
Vit d
Testosterone booster (end2end)
Performance (end2end)
Tata 1mg 7x omegaA
Carbamide collagen Belgium
Vit c eucee
Magnesium 2000mg glycinate
I am talking no ankylosing, no overt erosion, no fatty metaplasia no scelrosis
No gene normal blood markers or slightly elevated
Little to no as symptoms like morning pain and no stiffness
?
Only on basis billateral sacrolitis and minimum bone marrow edema on both joints more on illac more than sacral?
Used chatgpt to format the post
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No morning or night stiffness anywhere at all