r/Thritis

▲ 15 r/Thritis

How do you not give up on your life?

Recently got dignosed with non radiographical axial spondyloarthritis

i am in early 30's

My rhemutologist calls my as mild

I have no morning pain or stiffness or night pain

I have no overt erosions ,no fatty metaplasia , no scelrosis

Clean blood markers and no symptoms other than back pain

I was dignosed solely on billateral sacrolitis with edema more on illac side than sacral

My stiffness is guarding in low back that's goes off by bird dogs instantly

My pain is in only in movement like bending down etc

I have no problem laying down or sitting as long as I want

Very little to no fatigue

However the abolsuute worst part about my disease it's never ending

It's the weight of dignosis

The fact that it will keep getting worse as time goes on

I simply don't see the point of living anymore. Everytime I take med i think what's the point? It won't heal me

I started taking upacidyn one tablet a day just from a day ago

I simply don't see the point of living anymore

I have low key given up i hardly leave my room anymore

What I want is never happening and simply not possible, I don't see the point anymore

Edit : my blood markers are crp 2.5 and esr 7 tested 2 days ago

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u/Past-Meal-4847 — 18 hours ago
▲ 15 r/Thritis

Is it possible to be “too young” for arthritis?

Not asking for medical advice, just curious if this is even true. I’ve been suffering from the symptoms for most of my life and it has only gotten worse the past few years. I have lately been dealing with carpal tunnel in both wrists and sometimes my foot will seem limp. I ache even worse during rain and thunderstorms. Often doing something as simple as spreading avocado on toast can be almost impossible, like I have no grip. I am almost 32 and they are running blood tests (some results show it could be) as well as plans for a brain scan and nerve tests. It’s driving me crazy, but I hope my mystery ailment gets figured out. But whenever I mention to others that I think it could be arthritis I get “Aren’t you a little young for that?” Curious to know others experience/if anyone has been diagnosed at a “young” age. Thanks 🙏🏻

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u/darlingcandy — 1 day ago

Neck arthritis pain

Searching for the best arthritis over the counter pain medicine!!! I have three bad vertebrae in my neck with a lot of arthritis pain 😢😢😢need help finding a good pain reliever

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u/MJ-Bailey — 19 hours ago

Who do you talk to?

Hello all! I am 41 and have cervical arthritis, arthrosis in my hips, and DDD. I have some sort of undiagnosed autoimmune disorder that is still in the middle of being figured out. I am experiencing a really bad flare of bad pain from my hips up to my neck. Lately, I have had a weird head tremor that isn’t painful. I am also experiencing blood in my stools and abdominal pain. I am a nurse and was hit by a patient so hard in September of last year and it’s been down hill from there.

So who do I go to? I have a doc appt tomorrow with my GP, but should I also talk to my rheumatologist and GI doc as well? I am so confused on who to go to. Oh, also have a neurologist appt that’s not until September…

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u/Steambunny — 17 hours ago
▲ 19 r/Thritis+3 crossposts

I built a free website to make easier-to-put-on clothing easier to find

Hi everyone! I'm Lindsay.

My sister is the reason I started learning about adaptive clothing and accessibility. As I dug into the space, I realized there are a lot of great brands making products that solve real problems, but they're spread across so many different websites that they're hard to discover.

That inspired me to build Adaptiv, a free website that brings adaptive clothing from different brands together in one place.

Right now, it includes things like arthritis-friendly shoes, clothing with magnetic or easy-fastening closures, sensory-friendly clothing, and other adaptive options from a variety of brands.

My goal is simply to make it easier for people to discover clothing that fits their needs without having to search dozens of different websites.

If this sounds like something that would be helpful to you or someone you know, you can check it out here: https://adaptiv-app.com.

I'm continuing to improve it, so if you notice something that's missing or have ideas that would make it more useful, I'd genuinely appreciate hearing them.

Thank you!

▲ 2 r/Thritis+1 crossposts

ARTHRITIS

I’m looking for some opinions from people with psoriatic arthritis (PsA) or similar experiences.
My rheumatologist diagnosed me with PsA, partly because my grandfather has psoriatic arthritis and I’ve had recurring knee swelling. What’s confusing me is that my two knees don’t behave the same way at all.
After my most recent flare, my right knee improved significantly. Right now I have almost no pain or stiffness in that knee. Historically, the only time my right knee really hurts is when there is a large amount of synovial fluid in it. It feels more like pressure from the swelling than joint pain itself.
My left knee is completely different. It has a lot more stiffness and tightness, and the sensation feels like it’s coming from the muscles and soft tissues around the knee rather than pressure inside the joint. Sometimes it makes me want to stretch or massage the area because it feels so tight.
What makes me question things is that the two knees respond so differently. My right knee seems to follow a pattern where it only becomes painful when there is significant swelling, while my left knee continues to feel stiff and tight even when it doesn’t seem as swollen. Because of that, I’ve started wondering if there could be something else going on in my left knee in addition to the PsA.
Has anyone with PsA had one knee behave completely differently from the other? Has anyone been diagnosed with PsA but later found out that a tendon, muscle, ligament, meniscus, or another issue was also contributing to the symptoms in one knee?
I’d be interested to hear if anyone has experienced something similar and what the outcome was.

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u/Neither-Quantity9869 — 2 days ago
▲ 6 r/Thritis+2 crossposts

Shoulder arthritis

How long have you been getting steroid shots in the shoulder for arthritis? I am 68 and wondering if I just get shots every 3-4 months or deal with surgery.

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u/celebrina — 3 days ago

Shoes for Hallux Limitus

Looking for shoe recommendations for what I think is early hallux limitus.

I've got wide feet and my podiatrist said I have a fairly prominent bunion. My left big toe has started causing problems and I think it might be hallux limitus, although I haven't had any imaging yet. There's a family history of arthritis.

The big toe clicks when I move it up and down, and it often feels like it needs to "crack". The pain is mainly on the top of the big toe joint, especially when pressing the clutch in the car with my left foot. Sometimes it also hurts while walking, and occasionally I get pain underneath the big toe as well.

A few years ago, a physiotherapist also told me I have quite weak feet. Because of that, I'm a bit concerned about ending up in shoes that are so supportive that my feet become dependent on them or get even weaker. I'm not sure whether that's a valid concern or not.

I need shoes or smart trainers that are suitable for an office. At the moment I wear wide fit smart shoes for work, but they still aggravate my big toe, especially when driving and changing gear. If proper shoes aren't the answer, then all black or all white trainers would probably be acceptable.

I'm currently wearing New Balance 574 Wide, but they don't seem to be helping enough.

Has anyone with hallux limitus, bunions, or similar symptoms found a shoe that made a noticeable difference? I'm particularly interested in models with a roomy toe box and a sole that reduces bending through the big toe.

I'd also be interested in whether people have found a balance between protecting the joint while still maintaining foot strength, if that's even something I should be thinking about.

Thanks.

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u/Chonky2021 — 3 days ago

How do you differentiate between 'thritis and getting old?

I've had a bunch of blood tests and imaging and they didn't show shit. I wake up with sore/stiff feet every morning and injure tendons like it's a hobby. Recently got diagnosed with psoriasis, and so I finally got a referral to a rheumatologist. Granted that will probably be a 2030 appointment lol.

But I see on here people are going to the ER with pain. I'm like.. shuffling around for an hour and then I'm mostly fine. I can still run, though I've curtailed a lot of other activities (climbing, BJJ, mountaineering). A lot of ppl (friends and such) are saying well you're over 40 that's just how it is. Use an elliptical or swim and stop whining.

I guess I'm conflicted because I feel like it's not that bad and most doctors have just told me to suck it up (one suggested I try prozac) but also people say if you don't treat it early you become a cripple. It would be nice if I could point a CRP value and say 'aha!' but it sounds like that doesn't happen with PsA or a couple of other types?

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u/0xd3ad54311 — 4 days ago
▲ 7 r/Thritis+1 crossposts

Hyper pain sensitivity

Curious to know if anyone has experienced hyper pain sensity with their Rhematoid arthritis after being mismanaged for years?

I have failed multiple regular first defence meds and multiple biologics at this point. Advil, prednisone and tylenol barely do anything for me at this point and the more research I do, the more it's sounding like hyper-pain sensitivity.

I will be bringing this up with my specialist soon but curious to know if this has ever happened to anyone else and what did your specialist do? How is your life now? Was there any solution for this?

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u/MarynJK — 4 days ago

Those with inflammatory arthritis, how long did it take to get diagnosed?

What symptoms did you start with and how long were you experiencing symptoms before you got an official diagnosis? Did it come from your primary physician or rheumatology? Curious what other people's experiences are with this, it seems like those especially with inflammatory arthritis have a much harder time getting a diagnosis

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u/frogcows — 5 days ago

Can you get it in your ankles?

Hi all

I’m still relatively new to this and wondering if my current issue is related to PsA.

Basically woke up with sore ankles a couple of days ago, completely out of the blue. It’s gradually got worse and is causing me to limp. I had a couple of days of extreme fatigue also but that’s it. I’ve noticed the more I sit/lie still the worse they get.

I’m assuming it’s PsA but thought I’d ask as I’ve never had it there. I don’t want to just blame every issue on it.

Thanks

Edit- woke up and can barely walk it’s that bad now. I gather this from being still all night. Will call the Dr and see if they can prescribe anything whilst I wait to start methotrexate.

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u/Alarming_Animator_19 — 5 days ago

Shoe recs

Hi there! My mom has moderate arthritis in her feet and I’d really love some recs for tennis shoes. We are going to Spain for 2 weeks this year and I’d love for her to be somewhat comfortable while walking multiple miles every day. She’s already working on upping her walking/movement throughout the week, but her HOKA Clifton 9’s aren’t cutting it.

She is going to talk to her podiatrist about getting some prelim shots now and then if they work, doing them again before our trip. I want to get her some nice shoes for her birthday but want to make sure they will help, not hinder.

Thank you!!!

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u/Billsgirl94 — 7 days ago

Tips/exercises to slow/prevent arthritis?

I just started playing tennis again after not having played for 8 years and rediscovered how much I loved playing. I’m mid30s and self rated 3.5-4. My main concern is developing arthritis or joint pain in the knees, hips, and back within the next 5 years (already feeling some aches here and there in this areas sometimes). Any tips or exercises you recommend that can slow the development of arthritis in an avid tennis player?

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u/Negative-Donut2503 — 5 days ago
🔥 Hot ▲ 25.2k r/Thritis+4 crossposts

I can't open my arthritis medicine because I have arthritis

Currently waiting for my husband to get home because I can't open my arthritis due to me having arthritic hands.

u/AUViperDark — 13 days ago
▲ 6 r/Thritis+1 crossposts

Is this relatable for a first flare?

I’m a 33F who about 3 months ago got hit by some form of arthritis out of no where. I am 12 months PP now and had a cold about 3-4 weeks before this happened. Symptoms slowly started to build but it ended up to a point where I was hospitalized, got a very fast referral to a rheumatologist and had to have both of my knees drained (140mls+) and recieved steroid shots in both.

I now am on Sulfasalazine which has been helping and finished my taper of prednisone. Hoping to hear about others first flares.. as it is still unknown if this is seronegative RA or a reactive arthritis. My CRP levels were 150+ and now have finally come down to an 8.5, but it has been slowly coming down.. is this extreme or very relatable for some?

Today I had a follow up with my Rheumatologist and my one knee still had fluid and was drained for another 35mls, and now have had Hydroxychloriquine added. We are hoping to get pregnant again in the next year with a second but I am now feeling very defeated by it all!

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u/J_8712 — 6 days ago
▲ 27 r/Thritis

As happy as I am the biologics are working, I still kind of dread injection days... [meme]

u/nenpdellow — 10 days ago

Pls help me, I'm afraid

these are my cervical spine xray image with reports, physio said my space in the cervical area is compressed a bit , but I'm more tensed with the term osteophytes, pls tell me is it too bad , can this be reversed(I'm just 24 years old😓)

as per the rules here , I'm not asking for any medical advice but rather I'm afraid, is it too bad or it can be reversed easily, so pls consider this

u/Ill_Instruction4978 — 10 days ago