My father has been diagnosed with early onset dementia and I’m 17 weeks pregnant
I’m not even sure of where to start because it’s A LOT but I guess I’ll just give some background and context of what’s going on with my family. I’m 17 weeks pregnant and currently my husband and I are moving out of my parent’s house within the next 2 weeks. About a year and a half ago we moved in with my parents to help out for a while since my dad (83m) was diagnosed with bone marrow cancer and my mom can no longer drive.
To say it briefly it has been tough, trying to work full time (same with husband) and supporting my parents through this. My dad has not made it any easier and neither has my mom, they are very difficult to live with and my mom has been very “poor me, woah is me” crying to family members and friends about what my dad is going through and also now saying how she is getting sick (she’s not sick, doctors keep telling her she’s fine and just has GERD). So, I’ve been the main one taking on the decision making and picking up the slack with my dad’s things. However, I am now 17 weeks pregnant with my husband’s and I’s first child. The whole family is very excited and so are my parents. But this has taken a toll on me.
Then this past month we’ve noticed a decline in my dad’s health, his behaviors/mood (very irritable and lashing out), cognitive reasoning, ability to talk (doesn’t make sense and we have a hard time trying to understand what he’s saying), and forgetting a lot of short term memory things. I’ve been on them with taking him to his doctor to see what’s going on, and if it’s something to do with his cancer treatment, medication, etc. Since my husband and I are moving out in 2 weeks because living here has become too much and I need to focus on my health, stress, and the baby.
Well, they went yesterday and his PCP at Kaiser diagnosed him with early onset dementia. They called my older sister who lives all the way down in LA with her husband and kid (we live in the Bay Area) and let her know what happened. Then my sister called me and my husband and I spoke with my parents when I got home. I’m not sure what steps to take and my mom is worried, scared, crying off and on (understandably so) but I need her to step up and become the adult. She is still very aware, cognitively present, but has this very Filipino mindset of “my daughter needs to be the one to help me with this burden” but right now I just physically and mentally can’t and need to focus on my pregnancy and when the baby comes.
I guess what I’m asking is for some advice on what needs to happen next? How should I get my mom on bored and step up? How much do I need to be involved in while navigating motherhood for the first time, or do I even get super involved? Also, the doctor hasn’t really given next steps or what needs to happen next? We’re located in the Bay Area and I’m not sure what Kaiser resources there are for gerontology, home care, assistance with driving, etc.
EDIT/CORRECTION: Since people keep focusing on the “early onset” part, apparently they misunderstood but I’m just quoting what my parents and sister told me on what the doctor said. But that’s not my main focus, I’m asking for next steps, advice, or other people’s stories/experiences.