Anyone have really bad nerve issues in their limbs (in spells) with Lyme?
I’ve had the bloods taken today and started doxy 100mg x2 daily.
Ive had the chronic fatigue for sometime now and it’s nothing like I’ve ever had in my entire life, and I’ve worked double shifts, done manual labour for hours and hours on end with no sleep and still felt better than I do now.
I struggle to get up after being in bed from 12-16 hours. Most days, I fight to get up, Make a coffee, walk to my desk, stare at the screen a few minutes and go back to bed for another 6 hours or more, sometimes until the next day.
All of my big muscle groups ache, my knee joints feel swollen and are extremely painful upon waking, the same with my hips.
Part of it being that bad is to do with my post title. I have spells where my arms and legs (mostly legs) are so weak and I have horrible nerve pain in my femoral nerves when lifting my legs and pains down the outside is my shin bones when walking. For example, if I am sitting I cannot lift my leg to cross the other (bi lateral) problem nor can I do something usually simple like stand without using arms and a wide stance to get up. Even the finer controls like crossing my big toe over the one next to it is impossible.
The nerve issue isn’t everyday but it starts one morning and can last 2/3 days whilst it slowly gets better.
For context, I’m 41, male, 200 ish lbs and generally considered one of those who “doesn’t know his own strength” when doing manual tasks previously that seemed easy but apparently aren’t to many others.
I honestly feel like a shell of what I was.
I read Lyme can impact nerves but I mostly read it was facial, so I’m not sure if it’s related or I potentially have another problem to look in to again. Never conduction studies were done, but were done on a day my legs and nerves were fine. I’ve had bloods taken today and I’m in the middle of the nerve issue so maybe they’ll show something.
The arm nerve issue is just extreme weakness and loss of dexterity, eg holding a cup of coffee is really possible due to my wrist only drooping so far and not down to my own muscle.
I’m wondering if this is consistent with anyone else’s experience?
I’m 41 and life is a struggle, like a real struggle. My elderly mother is generally more active and probably stronger than me at this point!