u/Safe_Task7712

▲ 2 r/mecfs

How to read/use my garmin for pacing? Happy about your advice!

Hey all! <3 I am new to the garmin4pacing game, I have the vivoactive 5 for a week now - so maybe it’s just a time question.
But I am quite confused at the moment cause all my data looks amazing and that doesn’t feel quite accurate at all.
I always recharge to 100% bb, sleepscore looks at least good and stress is okay (low at night, showing some high stress during low activities during the day).
But this is nowhere near how I feel.
I am a bit disappointed cause I was hoping that it would confirm and mirror my symptoms, how I saw it with other users.
Do I use it wrong?
And do you have over all tips on how to use it right?
I am using all those Jens Hansen Watchface etc.
thank you!

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u/Safe_Task7712 — 5 days ago
▲ 2 r/mecfs

what does this energy rush mean?

hello! I am kinda new in understanding my body with this so I appreciate every help! <3

On somedays I wake up and for a moment I feel like I have the most energy ever - which is often caused by an extreme (don’t know how else to describe it) excitement and state of ecstasy in my body, that has no source. It feels like my body is playing flipper, it feels like I would need to run around the house, like a dog chasing a ball. It often comes in combination with sleeping less, waking up way more early than I would have to, bit shortness of breath.
It happened to me this morning again, and I noticed that yesterday I had a day with an high heartrate.

The whole feeling of having a lot of energy one ecstasy then ofc goes away quite immediately after I leave my bed and stand up.

But I am wondering if it all is an alarm signal for a upcoming crash or quite the opposite.

Thank you so much!

reddit.com
u/Safe_Task7712 — 6 days ago

Why is it stuck?

I just got it and started to install everything, app looks fine and ready, why is the watch still doing this loading thing?

u/Safe_Task7712 — 11 days ago
▲ 5 r/mecfs

is this pem or is this the new normal? How to not neglect it all?

ajajaj my first reddit post, how exciting!
I was diagnosed with me/cfs two years ago and never really wanted to accept it. So I lived through intense push/crash cycles, trying to live life completely normal and then falling extremely deep after.
When something important was up, I pushed my body way past its limits. Also this spring - my symptoms got worse but I just didn’t pace.
And now, I feel like I pay the bill.
I am housebound and somedays bedbound for some month now.
But since I never listened to my body, now I wondered is this now a new severe state or pem?
How do you guys now the difference?
Especially since pem can appear days after.
I never had symptom free days, didn’t matter what I was doing.
So maybe another question is: someone that does not neglect the body like I did - did you stop everything once the slightest symptoms appeared or is there a limit that you push through?
Honestly, writing this, I notice, I just don’t know how to handle this illness at all! Especially not now?

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u/Safe_Task7712 — 14 days ago