▲ 12 r/UCTD

Plaquenil prescribed

Has anyone been prescribed plaquenil (Hydroxychloroquine) for pain and stiffness with no defined specific autoimmune diagnosis?

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u/SilverCriticism3512 — 14 days ago

Botox not helping

For those of you who have tried multiple rounds of Botox, why do you think it did NOT help your migraines? If it didn’t, did anything else help instead?

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u/SilverCriticism3512 — 3 months ago

Transition out of direct patient care in healthcare

Hoping this is allowed... looking to make connections and get perspective:

Worked in healthcare for 9+ years but looking to transition out of direct patient care due to burnout among other reasons. Would love to network with and connect with others who have transitioned out of direct patient care who could mentor and offer me insight. Thank you.

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u/SilverCriticism3512 — 4 months ago

What would cause a detergent/bleach smell when running A/C?

Every time I run my A/C, I get a detergent/bleach smell (only way I can think to describe it). It usually makes me so sick that I end up shutting it off and just suffering in the heat. What are things it could possibly be?

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u/SilverCriticism3512 — 4 months ago

Migraines improving as Botox wears off

I had my first round of Botox for migraines about 12 weeks ago. I felt mild relief initially and then at the 4 week mark felt even worse.

The last 3 weeks or so, I’ve had improvements in my migraines in severity, duration, and frequency to the point of having multiple migraine free days in the past 3 weeks.

I know Botox should have worn off, but I’m feeling better these last 3 weeks than in a long time. Is it just a coincidence? Should I not go for my second round next week? Is it possible Botox made them worse and now that it’s out of my system my body is calming down?

Nervous to get it again if I’m feeling better than I have, but not sure if it’s all just coincidence. Would love some insight.

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u/SilverCriticism3512 — 4 months ago

Scammed by flooring company

We had an LVP flooring company come out to our home and begin installation in our home. We paid them a hefty down payment for the job but they have since ghosted us. Won’t answer phone, fb messages, nothing. How can I report them? Is there any actions we can take?

Obviously this is embarrassing to post because I’ve never been scammed before, especially by a local company here in the upstate. Looking for advice.

Edit: GOOD WOOD FLOORING

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u/SilverCriticism3512 — 4 months ago

Elevated n-methylhistamine urine levels

I have had four elevated n-methylhistamine urine tests done, over 1.5 year span.

My doctor says HI is not a thing and that she cannot definitely diagnose me with MCAS.

My question: WHAT would cause elevated n-methylhistamine urine levels?

TLDR: Trying to understand "what" causes elevated n-methyl histamine levels.

Do elevated levels indicate HI?

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u/SilverCriticism3512 — 4 months ago
▲ 6 r/MCAS

Reasons for elevated n-methylhistamine urine test

For those of you who are trying to advocate for yourselves with doctors:

I have had four elevated n-methylhistamine urine tests done, over 1.5 year span. I also have multi-system reactions + respond to mast cell stabilizers + H1/H2 blockers.

My doctor still does not feel that she can definitively diagnose me with MCAS.

My question: WHAT would cause elevated n-methylhistamine urine levels if not MCAS?

(Not trying to sit here and prove or beg for the diagnosis, but more trying to understand "what else" elevated n-methyl histamine levels would indicate).

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u/SilverCriticism3512 — 4 months ago
▲ 1 r/MCAS

Reaction lasting days

I was using a new shampoo that I unknowingly was reacting to. I actually had a delayed reaction: used it for several days before it started bothering me. I stopped it 3 days ago, washed clothing, sheets, etc. and still having systemic reactions - is this possible to still be reacting days later?

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u/SilverCriticism3512 — 4 months ago

Improvement in symptoms

After starting an antihistamine, how long does it take to notice true improvements? I am not sure how long of a trial I should be giving it to tell whether to move on to another if I don't notice any improvements.

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u/SilverCriticism3512 — 4 months ago
▲ 1 r/MCAS

Subjective MCAS experience

Can those who have been diagnosed with MCAS provide in a paragraph or so how you determined you had MCAS in comparison to say just being allergies.

I am wanting to hear *personal subjective answers,* not diagnostic criteria answers of why you fit the diagnosis.

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u/SilverCriticism3512 — 4 months ago
▲ 4 r/MCAS

MCAS food reactions

When you say you "react" to foods, can you explain what you mean by that? I know personally how I react, but interested in hearing others' descriptions and symptoms to better understand my own reactions, thanks.

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u/SilverCriticism3512 — 4 months ago