Mystery Help
Hi everyone. **24F here (5’8, 155 lbs)**, full time teacher and hoping to get some of your opinions and feedback. I’m at a loss.
When I was in my late teens, I started experiencing **extreme fatigue**. It’s gotten to the point where, at times, I am awake for only about 8 hours a day. I cook food, I have to lay down. I go out with friends for an hour, I need a nap as soon as I’m home. I went to a couple doctors, each said it could be a vitamin deficiency or anxiety or the mental health medication I’m on, and sent me on my way. Over the years, it’s become almost debilitating at times. My Mom is a nurse and it’s ingrained in me not to go to the doctor unless I’m on death’s door, though, so I just kept trudging on. With a lot of caffeine.
Then, in the past three years, I began getting what I referred to as ‘stress fevers’. I thought this was normal until one of my close friends told me that it’s very much not. When I get stressed, overwhelmed, and sometimes just at random, I feel like I have the flu for a few hours or a day or two, get a **fever**, and then I’m fine. A bit achy and generally gross feeling, but nothing contagious.
I’ve learned to navigate this new normal. I had a spinal fusion at 15 due to scoliosis and am no stranger to chronic pain. But lately, it’s gotten ***worse***. In February I had 5 fevers, which is the most I’ve gotten in a single month (all 100 degrees or over). In the past two months, I’ve started to get bone/joint pain mainly in my arms, hands, and hips to where, on a couple of occasions, it’s kept me from sleep.
Here are some clinical findings to note that I don’t know have to do with anything but just in case:
\- negative ANA
\- treated for H Pylori in 2024
\- gallbladder removed in 2024 due to gallstone bile duct blockages
\- a few years ago had random rectal bleeding when using the bathroom that doctors had no idea why I was having it and still don’t? Have had it a couple times since, no hemorrhoids or tears were present per doctor
\- normal thyroid tests
\- have had cervical and ovarian cysts, nothing crazy
\- spinal fusion T3-L1 due to scoliosis in 2017
\- consistently elevated MPV throughout the past 3ish years (nothing crazy, like 1 or 2 points above the normal range, but is every time I get blood work)
\- otherwise normal bloodwork every time
\- when looking up the Beighton score I do meet, I think, 4-5 points. But from what I’ve heard hEDS wouldn’t account for the fevers and general malaise/sickness.
I know I just listed off a ton but I’m grasping at straws here. I’m scared this is going to get worse. I’m only 24 and love my job. I’m scared I’m never going to find answers and that doctors will keep telling me it’s in my head. I don’t know how to make this stop or what would make it better.
I’m appreciative of any viewpoints or next steps you can recommend to me. Feel free to ask any questions at all. Thank you thank you thank you.