
Maybe lupus, maybe hEDs, or both? 🤔
Finally forced myself to see a rheumatologist and even pushed my appointment up because I’ve had painful symptoms for almost a month now. Went in thinking I’ve got lupus. My mother has it, I have 4 or 5 specific symptoms I’ve collected over the years. Never even thought of hEDs but the Dr had a lot of questions and had me do some tasks for her as she mentioned she’s seeing a lot of hyper mobility in my body. Got home and did more reading on it and I’m like oh yes this is all me. I’m in so much pain and I just don’t want any of this. Labs done then I see her again in a few weeks. I’m honestly terrified of the results. I don’t have a lot of support other than my husband and my sister.
Not sure why I have to include an attachment but here’s my dog Freddo, he has epilepsy.
A different EDS group declined my post although I saw similar ones like mine so 🤷♀️ that’s fun.