Maybe lupus, maybe hEDs, or both? 🤔

Maybe lupus, maybe hEDs, or both? 🤔

Finally forced myself to see a rheumatologist and even pushed my appointment up because I’ve had painful symptoms for almost a month now. Went in thinking I’ve got lupus. My mother has it, I have 4 or 5 specific symptoms I’ve collected over the years. Never even thought of hEDs but the Dr had a lot of questions and had me do some tasks for her as she mentioned she’s seeing a lot of hyper mobility in my body. Got home and did more reading on it and I’m like oh yes this is all me. I’m in so much pain and I just don’t want any of this. Labs done then I see her again in a few weeks. I’m honestly terrified of the results. I don’t have a lot of support other than my husband and my sister.

Not sure why I have to include an attachment but here’s my dog Freddo, he has epilepsy.

A different EDS group declined my post although I saw similar ones like mine so 🤷‍♀️ that’s fun.

u/TheDogMother90 — 5 days ago

Fred is back - 2 months seizure free

So happy for my sweet boy. It seems his new meds are working and he’s at 2 months seizure free. Even a vet visit with bloodwork didn’t trigger one for him.

u/TheDogMother90 — 11 days ago
▲ 7 r/Heroes

Spoiler - just finished original series

Ok I am the type of person that if I have any interest in the show I’ll watch til the end. Even though the writing got….wonky. We know that Claire and Co got a chopper to New York but Sylar and Peter were in California at Matt’s house. How the heck did they get to NY? Did Sylar fly them? Also how did Tracy get to wherever the carnival was to save Claire and Noah? So much left unanswered

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u/TheDogMother90 — 16 days ago

Very new - question on Linktree

Hi all! Hoping someone can help me out as there’s no “contact us” I could find for Linktree and their FAQ doesn’t really address this. Started an Instagram and TikTok channel and using the free version of Linktree. I don’t have Amazon Affiliate (yet). Linktree let me create a collection of items from Amazon on my shop, but I am unsure if I’ll be paid? Researching online all I can find is info about creating specific Amazon affiliate links not using Amazon inside of Linktree site itself.

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u/TheDogMother90 — 17 days ago

On a baking spree!

First time making Japanese milk bread - next time I’ll try a bigger loaf in my Marine terrine. Made a loaf for us and one for neighbors in my bread ovens and then husband wanted espresso brownies (got this stoneware for free when I bought my bread ovens)

u/TheDogMother90 — 1 month ago
▲ 171 r/DINK

What do you do with all your free time?

I hate this question. I still have to work, clean my house, do laundry, cook. I don’t have THAT much more free time than people with kids! Also I have 2 dogs that take up quite a bit of my time. I don’t think people actually want to hear the answer to this question it’s just meant to make you feel bad, like your life is empty and meaningless.

However it’s a holiday in the US and I’ve done a 1 hr workout in my home gym, meal Prepped, made brownies, and am currently laying on my sofa with my dogs thinking about the steak dinner my husband will cook later.

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u/TheDogMother90 — 1 month ago

Frog? Or Schnauzer?

He’s currently messing around with a crunchy bone toy he stole from his brother

u/TheDogMother90 — 1 month ago
▲ 0 r/Bread

Has anyone used silicone bannetons?

Have some kohls cash to burn and was looking into bread making items I don’t have and saw these. Anyone used them? Also are bannetons really this expensive?

u/TheDogMother90 — 1 month ago

Finally 1 month seizure free for Fred

It’s been rough for Fred since March. Seizures every 2.5 weeks, medication changes, but finally he’s 1 month seizure free and celebrating. I really hope this new medication combo continues to work. We stopped Keppra, started Zonisamide, and continued Phenobarbital.

u/TheDogMother90 — 1 month ago
▲ 18 r/Breadit

Still loving this hobby

The last 2 loaves I made came out a bit flat and I couldn’t quite figure out why. I re wrote down my steps and tried again and it’s gorgeous! I’m really loving this new hobby and will be expanding my recipes soon

u/TheDogMother90 — 1 month ago
▲ 14 r/Bread

3rd artisan loaf (gift for friend)

I had no idea making bread was so easy! I started in the past few weeks and this is my 3rd artisan loaf. I haven’t mastered scoring yet

u/TheDogMother90 — 2 months ago
▲ 2 r/Heroes

Season 3 another question

Season 3 and it’s at the point where Nathan and his little rabid dog are rounding up people with powers. Claire finds comic book fish boy and hides him because she got an anonymous text from “Rebel” who I suspect is actually her dad. BUT remember West, her boyfriend who could fly who lives in Costa Verde? She can’t warn him or check in to make sure he hasn’t been kidnapped (again)?

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u/TheDogMother90 — 2 months ago

Gil local meet + greet

Hi! I’m Gil! I came across a post from a library in DFW area Texas that has Sebastian Bach as a special guest for a book signing in September. Apparently he has a new book out soon. It would be hilarious if he greets everyone with his classic “Hi I’m Gil!” line. It is the North Richland Hills library if anyone is interested

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u/TheDogMother90 — 2 months ago
▲ 10 r/Heroes

Season 3 Molly?

I’ve never watched this show and now on season 3. At the point where Arthur is alive and plotting. Ummm where is Molly? Matt gets back from Africa and Mohinder is in his little lab but where’s the girl they adopted and promised to care for? She’s disappeared!

reddit.com
u/TheDogMother90 — 2 months ago

Starting another new med

Fred is still having seizures every 2.5 to 3 weeks so taking him off Keppra and starting Zonisamide tomorrow. He’s already on Phenobarbital and maxed out on that. His longest seizure free period was 2.5 months so I really hope this new combo works.

u/TheDogMother90 — 2 months ago

Kids these days don’t know what they are missing

Tried to get my niece to watch Veronica Mars with me. She was 20/21 at the time. She didn’t get into it and I was so sad. She claims to like true crime and “retro” shows (please stop calling my generation retro). I watched all seasons of the Summer I Turned Pretty with her which was brutal but she couldn’t get through 2 episodes of VM 🙄

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u/TheDogMother90 — 2 months ago

More seizures in summer?

Not sure if this is a pattern for others but it’s extremely hot in TX right now and my boy has already had 3 seizures so far this summer. We are wondering if it’s due to the heat. We checked his seizure log and he had 4 last summer, which is when he first started having them and got on medication. He’s an inside dog but he has to frequently pee due to his meds and our backyard has no shade most of the day.

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u/TheDogMother90 — 3 months ago

Not sure anything is working

I turned 36 this year but have tried different skin care routines for the last several years. I seem to have sensitive skin and products only work for a while or not at all. I complimented my amazing hairdressers skin and she recommended Dr Pimple Poppers retinol and vitamin c to me which I’ve been using since early March. I can’t say I’ve seen a huge difference. I recently got the Shark red light mask and have been using that for about a week so time will tell if that works for me or not. My biggest issue is that my cheeks get really hot and rashy looking when I got hot or take a hot shower. This also can be on my chest or shoulders after a shower too but more concerned about my face. It’s not rosacea because it only happens when I get overheated or actually if my face gets too cold, which is rare since I live in TX. I’m really hesitant to try new expensive products because my skin is so sensitive but hoping maybe someone has a similar issue to me and suggestions!

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u/TheDogMother90 — 3 months ago

Ben and Tracy - Season 4

Ok just like all of you I am in disbelief that no adults are actively trying to get these kids help (proper help) after the mom is missing for weeks? And after seeing the house??? Is she dead? Is she not listening to the voicemails or reading texts from Ben about Tracy being in the hospital? Or is Ben lying about reaching out to her?
There’s also zero other family members they can call? Mom and dad have no siblings, no living parents? Seems hard to believe. Someone could have done a more thorough job of looking through the house for other options to help.

reddit.com
u/TheDogMother90 — 3 months ago