u/Western_Diamondback1

I'm feeling very hopeless. I've had a really bad week. Medicaid messed up my paperwork and wants me to do it again. The paperwork took a very long to do and I had called to ensure everything looked good. They told me everything looked good.

It was an error on their end but they declined me anyways. When I reported the issue, they refused to fix and take accountability. I asked what I could do to avoid the error in the future? They repeated the exact steps I followed. :(

I'm rethinking my life. I really really wish I wasn't so disabled that I need to rely on these broken systems. I've been hurt so badly by these systems and have never gotten the support I desperately need. Everytime I try to succeed in life, it doesn't work. Because I can't work a job, it makes life so much harder. Everything requires money. If I had money I could buy my own supports, housing, getting enough social, and everything I need like a wheelchair.

Freelancing barely pays, not even close to the federal minimum wage ($7.25 an hour). Ive never been able to work a full time job as well. I'm in the process of SSI and it feels as through I am opening the door to a life of repeated mistreatment from the goverment and nothing but misery from these broken systems.

How do I improve my quality of life? :c

Does anyone know of a good nutrition powder to make shakes?

I've been drinking OWYN nutrition shakes they're very good. I'm wondering if a powder would be cheaper so I drink it daily to increase my daily nutrients? I also really enjoyed soylent but OWYN was cheaper and easier to find for me.

I've talked to my doctor and they've told me to do my own research since I have a dairy allergy.

Everywhere Ive looked seems to be only protein powder, I'm needing more vitamin and nutrition based.

Im allergic to dairy in an anaphylaxis way, but I am able to tolerate cross contamination. I'd prefer no cross contamination if possible.

Hello everyone,

Im coming here for some advice if possible.

I've noticed in my chart that one of my doctors wrote that I have "poor medical literacy", and I am very shocked that they put that in my chart. It feels very backhanded, insulting, and inaccurate. I'm worried about the possible added biases from a label like this.

Part of me is wondering if they think I don't understand the medical treatments that haven't been helping, and instead of working with me, they're saying that.

Other part of me is wondering if they notice how often I cancel appointments and think I'm doing it because of medical literacy, rather than I was recently harmed by a medical professional and I'm terrified of going back.

How do I get it removed this label or get it amended? I'm feeling very hurt

Are bedrooms supposed to have nothing on the floor? I'm looking at bedrooms on google and they look like minimalism to me. I'm unsure of how a bedroom is supposed to look like.

My room is a massive mess. Everything on the floor and I have to move things to move around. A massive fall hazard,(I am a fall risk).

Im deeply confused.

I am really struggling with going to see healthcare professionals. I have been hurt so much in only a year time span. However I have been harmed in the past, and I almost died from a doctor's error back in 2018. This past year has gotten so bad for me mentally. I've tried cancelling all my appointments while trying to process things with a therapist for months. Just trying to take a break. I felt better and I felt brave enough to try again. Almost immediately it was bad again. Now I just do not want to go see any healthcare professional at all, I really don't. They never say that they are sorry or acknowledge the harm done. When I report the really bad stuff thats happens to me, the hospital department apologizes, and then barely anything is done. They also share my name with the healthcare professional who hurt me, which feels terrifying.

It's to the point that I won't go to sections of the hospital where I was harmed. I already had very low trust and high fearfullness of healthcare professionals. My fearfulness keeps increasing and my trust lowering. Im trying to tell myself, everything is okay and to have hope that things will get better. I just want to hide, but everytime I try, I end up in the emergency room with something going wrong.

My therapist asks me questions such as, how would you want to be treated? I tell her, like a person. I just want to be treated like a person.

I don't know how to cope or manage this. It's not safe for me to keep canceling appointments, but I can't keep it up.

Man oh man. I have been struggling so much with math for work. Percentages to be exact. I don't understand them very well.

I keep running into the same problem, I try to google it, I get even more confused.

If I have something that's 8 inches and I need the item to be 10 inches, how much of an increase is that?

My brain wants to say 20%, google said it was 25%, but my printer says "25% is shrinking it". H u h????

I'm so frustrated and upset. I want to learn this so I can fix it. The amount of times I've messed up at work because of this is unreal. Does anyone know what grade teaches about percentages? My parent used to preach how important math was but when it came to teaching me, they didn't have what it took. It never made a lick of sense until I saw physics. However I've only barely seen physics so it's still confusing to me. Oh but I adore physics so much, it makes math so much less confusing. It's like visually seeing math move and it makes so much more sense.

I'm really good at simple mathematics like addition and subtraction. But percentages, fractions, and decimals? Im very bad at it.

My doctor won't fill out the form for the new work requirements paperwork.

I can't work 20 hours week, I've tried repeatedly and it never ends up good. In my whole life I've never been able to work a full time job. Last time I had a "normal" job was 2022. I've been doing freelancing ever since I was quiet fired for repeatedly calling out for medical issues.

The doctor that filled it out in the very beginning has left the clinic and I got placed with a new doctor.

She said she won't fill out any forms stating I can't work under 20 hours and will only do accommodations due to documentation.

I'm very confused. I'm a freelancer, I make my own hours and my own accomendations, because no one else would. I work 10 hours a week. I've tried 20 hours, I became very burnt out and sickly. I only make 3,000 a year and I use most of my money on doctor appointments.

I'm getting to a point where even 10 hours is too much. She also knows how little I make because she has recommended I go into this community health center.

I'm mildly panicking because I need this form for food stamps. If I can't get this form then I won't get food.

I'm on a wait list for a pyschariast and don't have anyone on my mental health team that is able to fill out the form. Therapist wont fill out any forms, only a letter stating how long I've been in treatment and my diagnosis. I've tried contacting the pyschologist that did my pyschological evaluation to see if she'd be willing, but I haven't heard back.

It seems that my physical health team doesn't see how sickly I am and I've had multiple doctors refuse to treat my hEDS. So I have no doctors for my joint pain. The doctor I was asking sees me for visual auras and small fiber neuropathy. I feel a little foolish for asking her, but my last neurologist didn't have any issues with it.

Some days I can't get out of bed and everything hurts so much. I'm feeling terrified that I am going to have to go without food.

Why are doctors so hard to talk to, I really struggle to talk to doctors. It's so difficult. I keep trying and trying. It seems like theyre allistics in their talking patterns in a strict way. It causes so many miscommunication errors and lower quality of care. I'm struggling so much.

I cannot work a part time job, I just cant do it. A work around that I do is working in freelancing. This is how I do it. I asked my doctor for a paperwork form for food stamps, so I can get food. She said that the most she will fill out is an accommodation form but not state I cant work 20 hours based on documenation. Im so confused. I work for myself, I set the amount of hours I work and I already accomendate myself. I can't do it. It's not in the cards, Im worried if I tell her again that I work for myself and I am telling her I can't work the 20 hours that she will view it was being argumentative. The other doctor who filled out my snap paperwork has left the clinic and has been gone for quite some time.

I don't know how to get my point across and I really need the paperwork to get food.

I've tried to work a regular job. I got bullied, and was quiet fired when I kept calling out due to medical issues. I've been doing freelancing since atleast 2022. It's been a life line and curse at the same time for me. It feels like shes saying that I am really able to work 20 hours when I cant.

I'm still on the wait list for a pyschariast and have no one in terms of mental health that can fill it out in terms of mental illness. I see a therapist but she wont fill out any forms. I've tried contacting the pyschologist that did my pyscholgical evaluation, but she hasn't responsed and I have little hope that she will.

All my physical doctors just don't see my struggle. I see the pyschariasts in atleast a month and I don't know if I can ask for her to fill out paperwork since she will be new.

I just want food. Thats all I want. I don't want to starve. I'm wanting to cry in fear and I don't know what to do. I don't know how to navigate this paperwork maze.

Today has been bad so bad. The pain is knawing on me. All I can think about is the pain and it hurts so much. I've been bedridden all todsy with off and on pain.

I want adequate pain management but none of these doctors want to have that converstion. I don't even want the "O" ones because I heard they release histamine. I just want the pain to stop knawing at me. The longivity with little breaks is fucking with me.

I use high heat all the time and burning my skin feels better than my pain. It hurts so much and I am miserable.

I'm considering sending an message to my PCP talking about a referral to a pain clinic or just something to help with the pain.

I have been summoned for jury duty again. The first time, I went in and did what I was supposed to. Now I am too sick to even work a part time job. I don't see anywhere on the exemption on the form that talks about having a disablity. They say on the form they can accomendate special needs and disabilities.

But I know that I am too sick for any accomendations that they could offer.

Out of all of my family I keep getting selected and I am the sickest person of my family. It's so infuriating.

Do I say that I am not of sound mind and good moral character? Is that referring to mental health conditions?

I've been trying to get an ESA letter for awhile now. I see a therapist for my mental health and I asked her if she'd be willing to give me an ESA letter. She has told me she understands that my cat is very beneficial to my health and is apart of my treatment plan. As well as telling me that she wrote in my medical chart that my cat is apart of my support network. However, when it came to put it into a letter, she told me no and it's against policy to write an ESA letter. In the past, I've had another therapist a couple of years back say the same thing, it was against policy. They both agreed my cat is important to my treatment plan, but it's "against" policy.

How do I get this letter when my healthcare professionals can't because of policy?? When I asked what type of letters she'd be willing to write, she said, "Stating how long ive been in treatment and what diagnosis I have." Nothing more. I'm so confused. Everywhere is constantly asking for letters from healthcare professionals, but I can't seem to obtain any letters aside from a generic one. 🫠

Im a level 2 autism with high masking.

Why is housing so hard to get? I have to get on a long wait list, understand paperwork, and understand a renting agreement as a bare miniumin. I dont really understand renting agreements and I've been trying my best to research to fully understand. I've been unsuccessful in that.

I want to leave abuse. I want thing to get better so badly. I try to find autism resources, 18 year wait list in my state. Okay.. so I look at other states, lower wait lists but how do I get there? How do I do that? I don't know.

I try to find affordable housing in my state, but I make too little for that. My income in 300 a month doing freelancing and rent is $650(bill included). SSA has been taking their time, but Ive contacted a lawyer to try and speed it up.

I want to go to the ER to try to get away from how these people are treating me. However, I dont think they could help me. What am I supposed to do? Im scared to wait around while things are worsening. I've tried extended family and friends, all have said no. I also don't want to give up my ESA. They're all that I have.

I feel hopeless and so tired from doing so much research in topics I don't understand

(Texas)

Is it normal to go without benefits for a period while waiting for renewal?

My benefits ended the 18th, they sent me a letter last month asking for updated information. I sent it all immediately so I would've hopefully not been in this situation. I called them to see if I could do the interview immediately if needed. They told me they'd look at it on the 18th of this month(when the benefits ended). I called them on the 18th and now they said they have until the 31st to look it over.

Is it normal to be without benefits for this long during renewal? It's making me nervous about the possibility of running out of food.

I don't know where to begin and a part of me feels like I'm being overdramatic.

Trigger warning: questions of possible homicide with brief descriptions of the abuse

They say, if you have been strangled and your abuser has a firearm, it increases the risk of death. So does stalking and isolation. They've also restricted food and starvation in the past, but I was able to get onto food stamps so I have food now.

I don't have real proof of the things going wrong but recently my abuser has made a joke about murder over text. Not directed at me, but the fact it was a joke about murder when they have never made a joke like that before scares the living daylights out of me. My brain is racing, I am feeling terrified and a big sense of dread that there may soon be a plot for my death. I want to run. Every fiber inside of me is screaming to run. To say I feel terrified may be an understatement. My whole nervous system feels awake and active. I feel a strong sense of dread that things are escalating.

I want to run but all the shelters near me are full. I am having thoughts of running to the emergency room and praying to whomever will listen to my prayers to find safety. Police have failed me so many times and so has protective services. I have been failed over and over.

Everyone around me doesn't see it as a possible increase in violence but my gut is screaming at me that things have escalated and to run. Everything in me is screaming to run. My brain doesn't seem any logic in "maybe it was just a silly little joke". This doesnt feel silly or funny at all.

I dont know what to do or the best way to run. I don't want to stay here at all. Im feeling terrified.

I am very afraid of the dentist and I have some really bad dental issues going on. I don't have anyone to go with me and I'm terrified to go alone. I've tried contacting autism resources in my state, but they said its an 18 year wait list. I feel terrified but I don't know what to do. Its really wearing me down that I keep repeatedly going to these really scary and difficult doctor appointments with no support when I am level 2. I just want to hide, and not go at all but the issues only gets worse.

I think they're going to make me homeless in a couple of months, (they keep implying it over and over), as a "temper check". They don't like the way I've been reacting and have threatened me with homelessness before. Making me homeless so I'll be "greatful", then letting me back in when I've learned my lesson. It's only been threats for awhile now.

However this time is different. They "implied" that I have 4 months until they make me homeless. I've been trying to get out for about a year now. Shelters and the hotlines haven't been much help. My state doesn't have any resources to help me, so I'd have to travel to another. Issue is with traveling is that they told me they will only hold a spot for 2 hours. No exceptions.

Another shelter told me that they don't really offer anything until you're in the state. I keep trying shelter after shelter. The resources seem so thin and I have to be in such a specific situation and pick the "right" shelter. I want out so badly like the urge to breathe air, I don't want to stay here, I want my freedom. I used to have issues with calling, now I can call but I'm still running into issues in leaving.

I've tried my own state and been told time and time again that they can't really help me. That I'd have better help looking into other states and/or counties. My state has atleast a 18 year wait list for any support, staying in my state is out of the question if I want to stay out of abuse. There just isnt any resources.

I can find shelters but I can't seem to get the help I desperately need. I don't know what I'm doing wrong. Part of me is feeling such shame that it's taking me so long to leave.

I could use some support and advice if anyone has any. I'm feeling upset at myself.

I was on the path of recovery, i wasn't doing great but it was progress. It feels like Im back at ground 0. I'm so upset with myself and I feel overwhelmed by what I've done. It's hard to tell which level I am but some of the doors are just covered with stuff. On the clutter scale, right now it's looking like either a 6 or a 7. It's so hard to tell, the clutter is in bins but those bins stacks are atleast 5 feet tall with stuff outside of the bins all over the floor.

I need help, but I have no idea who to ask for help. I'm trying not to beat myself up but it's so difficult. I have a therapist, but treatment has failed for me. I can't CBT, DBT, or ACT myself out of this.

It's so strange. I cannot tell whats in most of these piles. Whenever I attempt to go through them, my brain suddenly remembers and says its important. It drives me up a wall and I want to cry in frustration.

I've been trying to get more help than a therapist, but I keep getting shrugs from healthcare professionals. I try to comfort myself in healthy ways, but the feeling is too strong.

I can see nothing but judgement from my family. They have refused to help me when I ask for help. I can't tell if from overwhelm feeling from my hoard or just them feeling that I got myself into this mess so I should get myself out of it. I've been trying to get myself out of this mess for years but have been unsuccessful :(

My stomach pains got the best of me and became too intense one day to the point I went to the ER. I just wanted to make sure it wasn't life threatening. The doctors at the ER treated me with respect and compassion, which was very surprising in a good way, (My past experiences have been mostly dismissive.) They might've found out whats causing my pain even though it isn't life threatening.

The cat scanner found a hernia,(non life threatening one). I did a search to see how the symptoms of a hernia appear and cross referenced it to my symptoms. Its a match even down to the location of my pain. I'm going to go my general doctor to see what's the plan from here and to see if I need surgery to improve my quality of life. I've had every type of stomach test it seems and they were starting to go down the path of "anxiety based" pain. If my pain is truly caused by a hernia, it was never anxiety.

I'm not sure what type of specialist to see but I'm hoping my general care doctor can help me.

I feel relieved to know the pain could've been found and anxious to know I might need another surgery. I'm in complete shock to realize that my decision to go the ER resulted in a hernia being found. It feels a little bit like a butterfly effect in a way.

Filling out paperwork to get help while in pain, and then being put on a waitlist for that paperwork to be approved is a special type of hell. I'm finally get around to filling out the paperwork to get financial assistance. I wasn't successful in getting help in filling out the paperwork this time around.

I've been trying to figure out what helps my stomach pains. Someone in this subreddit said awhile ago that I matched MALs symptoms, but I am starting to think it may be SMAs due to the placement of the pain. I feel 90% better when I lay in the prone position, but I can't stay in that position forever. Putting on my heat pad on my stomach while in prone really helps. The pain seems to be getting worse in the long run though. I'm convinced my vitamins are starting to crash as well with my neurologist diagnosing me with a new condition of small fiber neuropathy! (Yay more pain!)

She wants to rule out if it's caused by my vitamins but I haven't been able to afford the bloodwork. Sometimes I want to go the emergency room because my stomach hurts so much but since it's chronic, I don't think they can help me.

I'm feeling so tired and beat down by my pain today. Today has not been a great day. I'm hoping that by doing this paperwork, I'll be a step closer to medical testing and a treatment plan.

How do I get around??

I have lost my ability to drive and I haven't been able to comprehend the paperwork needed to get paratransit,(it's very difficult to get and I heard it rough to navigate).

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I live about 3 miles away from everything. There is 2 buses going there, but there isn't a bus coming back home.

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I could use my wheelchair to get there. However, there are no side walks and I'm in texas (big pickup truck culture.

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How do I get to where I need to go if there are no side walks?? I've considered going to town hall and demanding side walks, but I can't figure out where the meetings are. I'm tired of not being able to get out of the house. I'd like to go places, I rarely go outside and my vitamin D levels are significantly low as a result.