u/clamondahalfshellgrl

To start off - I have a history of GI issues and I do not have a gallbladder. However my acid reflux has been very controlled for years now! I have diarrhea like once a week but otherwise my GI is best it’s ever been. Also, I am generally very sensitive to medications.

So a few months ago, I tried 2.5 zepbound and omg… SO sick. Explosive diarrhea 4x a day. Reflux so insane and so painful. Gave up on it.

On Monday, 2 days ago, I injected 0.25mg of zepbound. Yesterday was ok except for bad reflux at night and what’s weird is nothing helps. I have a wedge pillow, meds, tums, gaviscon, enzymes, everything.

Then today, I’m still having bad reflux, barely eating and explosive diarrhea 3x already. I just don’t get it. How can this small of a dosage do this to me?

I’m 5’2 and put on a lot of weight due to antidepressants and epilepsy medication. Honestly, diet and exercise doesn’t really do anything for my weight and it’s tough for me to stay on it when I’m having seizures. I’m now 160, hoping to get back down to 135.

I’m just feeling kind of hopeless :( I reached out to my GI dr to discuss. Has anyone had a start like this and then gotten better? Should I go even lower?? Honestly the painful reflux is worse than the diarrhea

Thank you for reading ❤️

Hi all <3 thank you for taking the time to read this!

Just got my LMSW in July and am currently applying for hospital social work jobs, which I'm very passionate about. I also eventually want to get into private practice and work with people who are experiencing life changing diagnoses such as chronic illness, both terminal and not. As I said, I am incredibly passionate about this, because I have epilepsy and it has caused me an immense amount of pain and trauma.

I have been diagnosed with BPD, but I'd really say I lean more towards quiet BPD/relationship OCD with anxiety/depression/PTSD lol lots of fun things. Currently I'm a bit numbed from medications (in a good way honestly haha) and am not having any romantic relationships so I feel very, very stable. I've done DBT in the past and my therapist recently put me back in DBT group and I'm just feeling so sick of it! These skills have helped me in the past, but I feel like I want to dig deeper, because I'm tired of just doing this over and over. Also, as a licensed therapist now, having my therapist tell me to send a DEAR MAN email regarding a payment issue just makes me feel like I'm being treated like a child when I'm almost 30.

Would love to hear from other therapists who a) live with BPD and b) are sick of DBT

I really want to try mentalization based therapy or something more in the psychodynamic world. If anyone has any NYC recs let me know, but mostly want to hear from other therapists with BPD <3 thank you!

THIS IS THE LONGEST IVE GONE WITHOUT A SEIZURE SINCE 2021! I wanted to upload a picture, but this sub won’t me, but I had a fun cake with candles!

Anyways, I’m not posting this to brag, but more to hopefully bring some hope. I got an RNS in 2023 and in 2025 I had the most seizures I’ve ever had in my life. I was having weekly seizures (complex partials stopped w nayzilam. If they weren’t stopped, which happened, they became TC). I was so beyond depressed and hopeless, feeling like I had tried everything.

I have a very sensitive brain, and I really haven’t been able to handle any of the epilepsy meds due to side effects. I’ve been on Klonopin for a couple years, but it’s only added to my depression and hasn’t helped my seizures.

Recently, I decided to try gabapentin…. And that was it! I’m not even on a high dose, but my Neurologist can see from my RNS how much my brain activity has calmed down. ALSO I had revision surgery on my RNS in April, but more likely seizure free due to gabapentin

ALL THIS TO SAY - don’t give up, please. I was ready to. Sometimes the thing you think won’t do anything … does a lot. And listen, I know my seizures will come back. But I’m so grateful that a low dose of a medication that’s not even commonly used has done this much for me. Tell your neurologist your ideas (this was mine!) - you know your body.

Sending endless love to this community 💜🫂💜🫂💜🫂💜🫂💜🫂💜

finally snagged $110 tix in 104 section so I’m gonna be dancing on my own baby!!

So I took 2.5mg zepbound a couple months ago and I got soooo sick. Explosive diarrhea multiple times a day, painful acid reflux. I also couldn’t even get myself to eat. I tend to be very very sensitive to medications.

However my antidepressants are making me gain weight :( now I’m at 5’2 and 158 lbs. I want to try microdosing and the pens were $40 a month for me. I’ve seen people putting them into vials, but I feel weird lying to my doctor about it? And I really doubt they’d prescribe it if they thought I was doing that. So I feel like it may just be worth it to get it from elsewhere?

What do you pay per month? Where do you get it? I’d start at 0.5mg !

Hi upper west siders! Yeah I don’t wanna leave my apt during this heat and I don’t have a lot of friends in the city (cause it’s hard, we all know this lol) and I’m currently on the job search and OOF yesterday got me down!!!!!

When it’s like even 85, I can at least leave and walk around and feel good. But when it’s this hot I feel like I’m in PRISONNNNNNN!!!

Tbh im a nyc summer hater …. 🤭

Hi girly girls! Yeah I don’t wanna leave me apt during this heat and I don’t have a lot of friends in the city (cause it’s hard, we all know this lol) and I’m currently on the job search and OOF yesterday got me down!!!!!

When it’s like even 85, I can at least leave and walk around and feel good. But when it’s this hot I feel like I’m in PRISONNNNNNN!!!

Tbh im a nyc summer hater …. 🤭

Matched w a guy from middle school on hinge. We were texting just about life and whatnot. I mentioned my epilepsy being the reason why I switched to social work as my career.

He goes “oh… my ex had epilepsy. It was really hard. It changed our relationship. Tbh that’s kind of triggering for me”

Like OH!! Wow dude I’m sorry my disability is triggering for you :( lol so sorry her epilepsy was so hard for you! Didn’t mean to trigger ya!

And listen, am I aware that dating someone with epilepsy can be hard? Of course, and it’s something that I feel insecure about. But… don’t tell someone with a disability… that their disability is triggering to you. Like… tell someone else

That’s all :) lol

Hi! I’ve been loving my Midea U 6000 BTU soooooo much because I HATE noise lol and it’s been basically silent and amazing. But the past two days it’s been louder. Not rattling just like louder blowing air, kind of similar to a normal a/c unit. Filter is clean. It’s silent when I go to fan mode but gets louder in cooling mode. Any advice? I really miss the silence! I’ve only had it a couple weeks so I’m a bit concerned that it’s suddenly louder.

Also when I turn it on and off, it’ll be quiet for like 2-5 min and then get louder. And I’ve tried every fan speed. There’s a bit of rattling if it’s on flash cool.

Any advice is appreciated! Thank you!!!

TW: SH

Just want to say, I have a therapist/psychiatrist and they are aware of the SH incident.

I’m going through a very hard time right now. Struggling with epilepsy and deep depression. Self harmed the other day on my leg for the first time in 4 years. Hate that it gave me relief for a moment.

Anyways, I saw this jerk guy who I’ve hooked up w/ in the past last night, hadn’t seen him in 2 years. He saw my leg and I said it was from falling and he did not buy it. He was like I’m worried about you blah blah blah.

Then we start hooking up and he goes “honestly I’m really turned on by the cuts, you’re crazy, it’s hot” and fuck that didn’t make me feel good. Being seen as “crazy” is one of my biggest fears. And it’s like… you’re turned on by me hurting myself? I didn’t even wanna sleep w him, I’m just in such a pit of self hate right now. But yeah. He sucks.

TW: SI

Have been really struggling with epilepsy for 6 years now. 3 brain surgeries, 16+ medications, etc. I've never even sought out psychic help, I just feel so lost and in so much pain. It's confusing because I haven't had a seizure for 8 weeks, which is the longest I've gone in a year and a half. I had weekly seizures August-April this past year, it was horrendous. But I am so miserable and in so much pain. Trying to figure out correct antidepressant dosages. Have had a few times where I feel good for a week and I get hopeful and then it's gone.

I'm 29F and going to be 30 in October. I just have been struggling SO much for 6+ years and I'm so tired and I don't want this life. I used to be a musician, but my epilepsy made me get overstimulated by music. The meds all have ruined my sexuality. I'm so so so miserable. I do not want this life. I don't even feel like I'm living, I feel like I've just been surviving. I just want the pain to stop. And yes, my psychiatrist, family, therapist, they are all aware of these feelings. But the past 2 weeks after stopping a medication (which was giving me bad side effects), things have gotten exponentially worse and I'm gonna lose it. I just want to know if I will ever have a good life or if my whole life will be pain.

TW: SA

Hi. 29F here. Have been into rough stuff basically since I was young, I wish I knew why. Experienced SA in college and abuse. I'm a social worker and a good person lol with a normal life minus being disabled but that's another story. Why do I want to be choked and slapped and destroyed and told how worthless I am? I mean, these things were said to me when I was abused. Was always into being choked/tied up since like forever, but I feel like I've gotten more extreme over time.

Also, I feel so much guilt about the porn I watch... for some reason, porn is the only way I can get off, and it's usually me watching girls be choked. I just found out about the motherless stuff, and I used to watch videos there, and I feel really sick like holy fuck.. did I watch girls who were being hurt? I always stayed away from any rape videos obviously. Fuck.

I know I can't change what gets me off. I don't know why the idea of having a collar and a leash on me just drives me nuts. I wish I had a different fetish. I feel like there's a lot wrong with me. Yes, I have a therapist lol. I have thoughts of like wow if my parents knew about this, they'd be so beyond disappointed and so so sad. Not sure what else to say right now. Curious to hear any thoughts... Thanks <3

:) lol he also loves to be like “I get it!!” Like no you actually don’t get it at all. You don’t understand what it’s like to live with this disability and the depression it causes. UGHHHHHHHHH I just wanna be normal and independent I’m 29 and I just feel like life is going on without me

I'm a 29 year old living with uncontrolled epilepsy (currently recovering from surgery) and just been having a tough time for about 6 years now. I'm so worried I'm running out of time for love/sexuality/a happy life, even though I know that may not be true. I try to remind myself there are so many upcoming medical treatments. And I try to remind myself I am still young and I have time to have a family and get married and all of those things. I just feel so down and lost and I want my old life back, even though I know that's not really possible. I'm about to graduate with my Masters in Social Work but I'm having so many seizures I'm not sure if I'll be able to work until they're more controlled.

Thank you for reading and really looking forward to reading your replies <3