u/feelingesoteric

I have LGMD 2D, but it is quite mild.

I can mostly walk, run, hold down an office job, go out drinking and have above average muscle mass.

However, I experience daily fatigue, and sharp random muscle cramping pain in my thighs and arms daily.

I do not disclose to most people until we are really close I suffer with an MD.

I feel stuck between 2 worlds, of the disabled and able bodied life.

Mentally, because I get quite tired and am scared to be in pain randomly it puts me off starting hobbies or socialising with people because sometimes I might feel crap about 5 minutes into it.

Other times I may go out and be full of energy and have a great time.

But I don’t know when to push through or give up because my symptoms are so random and variable. I have no concrete day of pain or tiredness and so I never know what is coming that day.

I recognise my privilege in comparison to the average person who suffers with an MD, but I am annoyed that I do not have a consistent set of symptoms and thus it’s hard for me to confirm and identity a lifestyle for myself.

Finally, most people do not care / understand that you have a muscular dystrophy if you are not in a wheelchair or physically atrophied.

Even when I have explained to people I cannot help or action a certain task in work or family / coworkers question why I am not out like most young people partying and clubbing, I have to re explain I live with an MD which limits my energy.
They say they understand but just see a normal guy and ask a few months later the same things and think I’m faking.

I wonder if anyone else is on a similar boat to me, and if anything has helped them.

I’ve started doing an additional 20 minute walk after my dinner each day for general health benefits.

It seems though now when doing TRE, my tremors are less intense and overall they take a while to appear, I still experience them but not like before the walking.

Is this a thing? I’ve only been walking a month or so, so maybe it will go back to normal soon enough?

I’ve always been curious as an outsider who doesn’t live here, but I see my family often in my country.

but I know most Americans live far and have to drive quite a while, sometimes hours to see relatives.

But I guess if you grew up in NYC, and so did your family and relatives, your experience is probably a bit different to the average American.
Possibly seeing them more or less?
depending on how busy you are and the culture of family and closeness.

Did you live In the same borough and or how far would it take you to see one another?

Let me know your experience.

My mom goes to Psychics every other year or so and finds a lot of benefit to them.

One thing I always notice is that Psychics always have a message to pass along to me, as opposed to my other sibling

I.e it will be a lot more detailed and information to spread about me or what is coming up in my future, but my sister will only get 1 short message or something.

Sometimes the reading for my mom will be like a 1/4 just for me and not my mom or sister.

This has happened with multiple psychics she has seen. It’s just made me curious why there is always such Information for me.

I wonder if I should get a reading for myself now, since there is always so much info to share haha.

I’ve just been prescribed 50mg of Zoloft after asking my GP to help with anxiety.

I know that the first few weeks can be bad but I’m scared that I end up being a zombie and have no personality.

I am someone who overthinks and ruminates quite a lot, I would not say I’m super sad or depressed in the common sense but i do get anxious and this leads me to think in a circle and my life isn’t going anywhere.

I’m already on vyvanse and this helps me with my job and I can do basic functions like have a shower and brush my teeth but leaving my house for other reasons seems pointless and scary.

I really just don’t want to mess up my current friendships in work by becoming someone I am not like a zombie. But I also know I’m not living the life I currently want, I’ve tried:

- Therapy
- Supplements and diet change
- Affirmations

and whilst the above all helped I think I need something else to kick in because I feel a bit like life is passing me by and I’m too scared / what’s the point feeling.

Anyone else had these fears and has Zoloft helped?

Kinda scared, it’s like a flat freckle like mole on my penis head.

I never sunbathe nude, and it’s still there a year later after stopping MT2.

Has anyone else experienced this? Started using this to protect myself from the sun, but now I’m worried I’ve ducked up.

I legit feel so tired, lethargic, exhausted and fatigued at all times. [ LGMD 2D ]

I already optimise my diet,supplementation and lifestyle.

Have you found any of the following helpful?

- Peptides
- Medicine
- Supplements

Help a guy out here

I feel like if Britney’s parents just came forward and explained the real situation it could probably bring a lot of clarity.

Like why does Lynn not say anything? Nor her dad or sister?

Whilst I know they would receive backlash, if I had a sister strung out on drugs / mental health issues, I would still set the record straight.

I also wonder if they are in the process in the background to get her in another conservatorship.

For some reason I always put off practicing Somatic Experiencing. I personally do TRE myself.

I always feel better and more relaxed upon completion but I always put it off.

Anyone else experience this?

I have used MT2 in past and have had to stop for following reasons:-

- Feel tense and on edge after injection and struggle to sleep

- Experienced Anhedonia and a lack of pleasure

- feeling of sadness

Are these effects lessened on MT1?