Those of you in Canada who use Inito... how do you use it?

I can't find the app in the apple store. Not sure how it works.

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u/lakemercury — 4 days ago

Can inositol cause weight loss in someone who is thin?

I’m already underweight but have PCOS - will inositol make me lose weight? I’ve been on a low dose for a few weeks and lost a pound but I’m not sure if it’s related or not. I don’t have insulin resistance in my bloodwork.

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u/lakemercury — 9 days ago
▲ 2 r/PCOS

Am I really not ovulating despite having 2+ weeks of PMS symptoms before my period?

Lean PCOS here, recently discovered I have super high AMH - like so high they didn't even record the actual value but it's over 23ng/ml... which would indicate I'm not likely to be ovulating, right? I get an average of 5-6 periods a year where my period is every other month or so with a random semi-normal 30-35 day cycle here and there. But before pretty much every period, I get up to 17 days of breast pain/tenderness, occasional swelling and mood changes especially right before my period starts. I've heard that PMS symptoms do not mean you've ovulated but doesn't the breast pain indicate progesterone rise? And doesn't progesterone only rise when you've ovulated?

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u/lakemercury — 13 days ago

Are these autism traits in our daughter?

My 7 year old daughter just finished her first year of grade 1 and has been showing a lot of traits of anxiety especially since starting school. She has always been precocious - started walking at 8 months and reading at 3 years. My husband and I weren't sure at first if she just memorized the stories we were reading to her or if she was actually reading. She is very independent, creative, and excels academically so far. Her teachers adore her and I have noticed they speak to her differently from other kids. She's very much favoured by them but they've noted that she's "extremely sensitive" and cries very easily. Her entire first year of kindergarten, she would call me in tears from the secretary's office saying she felt "sick" and wanted to come home even though she was fine. She missed a total of 30 days that year because we had such a difficult time getting her to adjust to the new environment despite her exceeding academic expectations. She probably could have skipped KG but we didn't think this would be good for her developmentally. She talks about her friends so I don't think she's lonely. But she seems to think a lot by herself and recently asked me "what does nothing look like?". I didn't know what she meant so I asked her to explain more and she said sometimes she likes to imagine what it would be like if "there was nothing, like no communities, no countries, no planets". I told her there's no such thing and asked her how she feels when she thinks about that and she said it gives her a funny feeling in her head. I was worried at first if she's starting to have darker thoughts about death or something.

Behaviorally, at school she's like an angel and at home she challenges authority more and can be stubborn when asked to do something. She doesn't take discipline well and can be stubborn if sent to her room, where she will refuse to go and just pout and cry or have a tantrum.

When I was talking to my friend she said some of these things could be related to autism but the thing is my daughter is really socially attuned. She doesn't have a difficult time understanding social cues and actually seems to be hyperaware of them. She's very good at verbalizing her emotions.

Anyone have experience with very sensitive daughters? Are these things I should look into for further evaluation?

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u/lakemercury — 18 days ago

Got a nerve injury when trying to get my vitamin d retested

So I had a level of 6 ng/ml about 2 months ago. You guys were really helpful and I started supplementing immediately despite being nervous because I have MCAS. I’m on a lower dose because I am sensitive but I have noticed improvement in fatigue and energy so far.

I decided to go get tested again to see if there was any improvement and the phlebotomist basically poked my nerve which I didn’t even realize at the time but it was so painful I almost blacked out and had to call the ambulance. I now have nerve pain and limited mobility in my arm and it was such a bad experience I can’t see myself getting a blood test anytime soon… plus now I have to recover from a nerve injury 😭.

I know that in the US they have at home tests you can do but does anyone in Canada know if there are at home options for us? They have kits on Amazon but I don’t think they give you a real value, they just say if you’re deficient or not. I believe lifelabs in Ontario offers a home kit but BC does not.

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u/lakemercury — 26 days ago

They poked my nerve (or tendon?) while getting blood drawn

Age: 33 Sex: Female Height: 5'1 Weight: 91lbs Country: Canada

I was getting blood drawn a few days ago and the phlebotomist got my nerve instead of my vein which I didn't realize at the time. I usually don't look because needles make me queasy but I felt an intense pain that went all the way down my arm and for a second I thought she was poking the area above my wrist with her lanyard or something because I felt such an intense pain there. I didn't say something though because I didn't want to seem like I was being dramatic until I couldn't take it anymore and said that it really hurts. She withdrew the needle and I knew something was very wrong. The inner part of my forearm felt numb and it hurt like crazy. I told her that had never happened before and she didn't really say anything. She asked if I wanted to do the other arm and then I started having a vasovagal response and nearly passed out.

It has been 2 days and I'm experiencing this uncomfortable pulling sensation and electric type pain when I move my arm. I have a lot of anxiety and am scared this won't heal. What sort of timeline am I looking at? Should I avoid using my arm if it triggers these sensations? I'm not really sure what to do.

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u/lakemercury — 26 days ago

They poked my nerve (or tendon?) while getting blood drawn

Age: 33 Sex: Female Height: 5'1 Weight: 91lbs Country: Canada

I was getting blood drawn and the phlebotomist got my nerve instead of my vein which I didn't realize at the time. I usually don't look because needles make me queasy but I felt an intense pain that went all the way down my arm and for a second I thought she was poking the area above my wrist with her lanyard or something because I felt such an intense pain there. I didn't say something though because I didn't want to seem like I was being dramatic until I couldn't take it anymore and said that it really hurts. She withdrew the needle and I knew something was very wrong. The inner part of my forearm felt numb and it hurt like crazy. I told her that had never happened before and she didn't really say anything. She asked if I wanted to do the other arm and then I started having a vasovagal response and nearly passed out.

It has been over a day and I'm experiencing this uncomfortable pulling sensation and electric type pain when I move my arm. I have a lot of anxiety and am scared this won't heal. What sort of timeline am I looking at? Should I avoid using my arm if it triggers these sensations? I'm not really sure what to do.

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u/lakemercury — 27 days ago
▲ 0 r/PCOS

Can very small doses of inositol daily add up to help with cycle regularity and symptoms?

I have lean PCOS with no insulin resistance as far as all tests I have done go but I'm willing to concede that it could be invisible or my body just has some sort of sensitivity to normal glucose spikes or something. But I also have MCAS now and that means taking supplements is very difficult due to sensitivity and allergy type responses. I tried about 400mg of inositol a few months ago and experienced all over prickly sensations on my body for like 2 weeks after. My naturopath suggested I start introducing the inositol again but just do like a tiny sprinkle in a big water bottle and sip over the course of a day. I did that for a few days now and seem to be okay in terms of reactions. Can smaller doses add up in the body especially if you don't have strong insulin resistance to help regulate cycles and lower testosterone etc.? Anyone take a smaller dose of inositol and notice anything?

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u/lakemercury — 1 month ago

Really upset about shampoo that left my hair feeling like rubber and the residue is not coming out

I have MCAS so I use fragrance free products but I made the mistake 2 weeks ago of using this new bottle my usual of SEEN shampoo and it left a glue-like residue in my hair and on my hands/body that STICKS like crazy and doesn't want to come off. Even when I wash my hands with soap and water several times, I still feel this residue like I have glue on my hands. I think it's the acrylates copolymer in it - they overloaded this bottle with it. I've never experienced this with a shampoo before and have notified customer service. But even after 5 hair washes, I still have this stuff all over my hair. When I rub my hairs between my fingers, I get the rubbery glue transfer onto my fingers that is so persistent it won't even fully come off after I oil my hands up and wash. I can't believe so much of it is in my hair after just one shampoo. My hair squeaks and feels like rubber when it's wet because acrylates are literally microplastic. I can't believe they put so much in this shampoo and I've been crying every day. I have sensitive skin and worry about transfer since this stuff is getting all over my towels and the rest of my body and it's not biodegradable so it keeps transferring and doesn't dissolve.

Because of my condition I have a very sensitive scalp and am limited by what I can do to it. I can't use vinegar, baking soda, nothing really. I don't even have much of my old bottle of the SEEN shampoo left and am looking for another brand. I can't oil my whole head because oil doesn't wash out of my hair easily and like I said I don't have much of my safe shampoo left. I tried using micellar water but it doesn't really work either. I can't use chemicals or anything harsh because I start getting allergic type reactions. I have already been reacting to the acrylates in my hair too. I feel like I'm in a nightmare.

What I'm scared of is that it won't even fully wash off my hands with soap so how is it going to come out of my hair? I feel so hopeless and stressed. Does anyone have any experience with this or advice?

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u/lakemercury — 1 month ago

Is quercetin okay?

I have MCAS and want to take it as a mast cell stabilizer but not sure if it would be hard on the stomach or not? I've taken it before I had gastritis and was fine. It's a flavonoid.

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u/lakemercury — 1 month ago

Anyone tried the Philip Kingsley No Scent No Color Shampoo?

What are your thoughts on this one? I have thicker 1c hair prone to oiliness and low porosity. So I’d like something that cleans well but doesn’t leave film or residue.

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u/lakemercury — 1 month ago

Acrylate Copolymer all over my hair and won't come out - should I be worried about having this on me long-term?

I have MCAS so I use fragrance free products but I made the mistake yesterday of using this new bottle my usual of SEEN shampoo and it left a glue-like residue in my hair and on my hands/body that STICKS like crazy and doesn't want to come off. Even when I wash my hands with soap and water several times, I still feel this residue like I have glue on my hands. I think it's the acrylates copolymer in it - they put WAY too much. It's totally my fault for even using it because I used an off-colored bottle of it in January from before they repackaged that did the same thing to my hair and took like 7 washes before coming out. I thought this new bottle might be different but I think it's even worse.

How am I supposed to get this out of my hair? I'm sensitive to topicals and today I woke up with a low grade headache and my face turning pink easily so I know I'm having a histamine reaction. I tried a bit of Dove soap in my hair and that doesn't really do anything. I can't use stuff like baking soda or vinegar. I've just been using my old bottle that still has the same ingredients but not as much of the acrylates copolymer or whatever is causing this - and it's not even a good clarifying shampoo.

Anyone have any tips? I can use micellar water but this stuff is not even coming off my hands!! Every time I rewet my hands they feel tacky and glue-y. I can even feel it on my body when it gets wet.

Does acrylates copolymer dissolve by itself eventually? How long do I have to deal with this nightmare? I know that the acrylate monomers cause allergic reactions in some people - is there a chance of the polymers turning to monomers? Especially as I'm going to have this on me for a long time as I keep trying to wash it out over the next few weeks or so. I'm really anxious.

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u/lakemercury — 2 months ago
▲ 2 r/MCAS

Help! Used shampoo with acrylates copolymer or something that won't wash out or even off my hands

I made the mistake yesterday of using this new bottle of SEEN shampoo and it left a glue-like residue in my hair and on my hands/body that STICKS like crazy and doesn't want to come off. Even when I wash my hands with soap and water several times, I still feel this residue like I have glue on my hands. I think it's the acrylates copolymer in it - they put WAY too much. It's totally my fault for even using it because I used an off-colored bottle of it in January from before they repackaged that did the same thing to my hair and took like 7 washes before coming out. I thought this new bottle might be different but I think it's even worse.

How am I supposed to get this out of my hair? I'm sensitive to topicals and today I woke up with a low grade headache and my face turning pink easily so I know I'm having a histamine reaction. I tried a bit of Dove soap in my hair and that doesn't really do anything. I can't use stuff like baking soda or vinegar. I've just been using my old bottle that still has the same ingredients but not as much of the acrylates copolymer or whatever is causing this - and it's not even a good clarifying shampoo. Anyone have any tips? I can use micellar water but this stuff is not even coming off my hands!! Every time I rewet my hands they feel tacky and glue-y. I'm spiraling and panicking because I'm so scared to lose more products and have this stuff stuck on me forever. I can even feel it on my body when it gets wet and soap it's making it wash off.

Can someone help calm me down, I'm really anxious.

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u/lakemercury — 2 months ago

Anyone know what to use to wash sticky residue from shampoo out of your hair when you're sensitive to almost everything?

I made the mistake of using this new bottle of SEEN shampoo and it left a glue-like residue in my hair and on my hands/body that STICKS like crazy and doesn't want to come off. Even when I wash my hands with soap and water, I still feel this residue like I have glue on my hands. How am I supposed to get this out of my hair? I have MCAS and am sensitive to a lot of things. I tried a bit of Dove soap and that doesn't do a good enough job. I can't use stuff like baking soda or vinegar. Anyone have any tips?

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u/lakemercury — 2 months ago

Where can I order a glucose monitor set online in Canada?

I'm having such a hard time finding one of these with the entire set (lancelets, strips, glucometer etc.). I don't have diabetes but I want to start monitoring my glucose for PCOS. I found some cheap looking sets on Amazon but they seem sketchy. Anywhere I can buy a whole set online?

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u/lakemercury — 2 months ago
▲ 1 r/PCOS

Anyone know of someone who does ovarian wedge resection in Canada?

I want to look into this procedure for my lean PCOS with no insulin resistance. I am out of options at this point and this surgery would potentially be lifechanging for me. Does anyone have experience getting this procedure in Canada?

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u/lakemercury — 2 months ago

Extremely high AMH

I'm in my mid 30s and I've had lean PCOS my entire life and my partner and I are in a place where we're ready to try. I got AMH tested and it's astronomically high though?! It came back as >164 pmol/L or >23 ng/ml (US units). It was so high they didn't even give an exact number...

I get 5 or 6 periods per year on average. Naturopath said I don't have insulin resistance and my PCOS is more of a brain-ovary miscommunication driving up LH. I'm not sure if I ovulate but it seems unlikely given my extremely high AMH? I have 2 weeks or so of PMS where I can tell my period is coming just based on some mild breast tenderness. I used to have much more breast tenderness before I got covid though for some reason - it seems to have done something with hormones. But I know PMS symptoms doesn't necessarily indicate I've ovulated.

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u/lakemercury — 2 months ago

Chance of developing PFS as a woman?

I have PCOS but am not insulin resistant and very thin - my main issue is lack of ovulation from brain miscommunication driving up testosterone production. I was drinking spearmint tea for several years and it helped with my acne, light hair growth but I stopped drinking it for a year due to other health issues. Well, a year later my acne started coming back with a vengeance but I also started experiencing MUCH worse androgenic symptoms like extremely oily skin and hair, excessive sweating (hyperhidrosis), temperature dysregulation, internal tremors, and very depressed mood like a dark cloud hanging over me. I also developed something called persistent genital arousal disorder (PGAD) where I felt consistently stimulated despite not being mentally aroused, though I did also experience increased libido. The symptoms were obviously very distressing and it seemed like my androgen receptors were even more sensitive than they ever were before I drank the spearmint tea.

I decided to try drinking spearmint again but seemed to have developed some sort of sensitivity to it because it caused burning in my stomach. I had to drink a diluted version of it which I tolerated for a few months, and it resolved a lot of my symptoms, but then my stomach had a reaction I haven't been able to recover from. Now I can only drink it intermittently to just barely stave off the horrible symptoms I mentioned.

I have been considering trying finasteride to help resolve the worsened androgen symptoms and I was wondering if a woman with PCOS took it, would there be less of a chance of developing it? Would it actually potentially be negligible or helpful because if they did develop PFS it would mean androgens don't convert to DHT anymore and cause as severe symptoms?

I have been taking pumpkin seed oil the last few weeks as I've read it's a mild DHT blocker. Is this still risky?

I am really desperate to resolve my symptoms but reading about PFS is concerning me especially because I already have so many issues but I feel like I have no choice but to take a DHT blocker the rest of my life probably.

Does anyone have any insight? I've told multiple doctors about what's happening to me and no one seems to know.

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u/lakemercury — 2 months ago

I've been experiencing chronic telogen effluvium since I got covid 3 years ago but noticed that I'm going through another big hair shed a few weeks after starting vitamin D. The only other thing I also introduced is pumpkin seed oil but that's supposed to help with hair growth. Could introducing it cause more shedding or has anyone experienced this?

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u/lakemercury — 2 months ago