I kind of hate that docs not believe me but some of the people that (at least claim to) believe you so often seem to be into pseudoscience (to some extent)...and I sit here and don't know what to believe anymore.
hi all,
Granted, I'm still new to all this, so maybe people have knowledge I don't have but I always find it super weird when people then make weird claims about what is causing what and then wanting to offer things so you can "heal yourself".
I had it a couple times already that people started telling me the problems would have soemthing to do wiht fungal infection or something with the microbiome or mcas or whatever and it always feels like they are about to try to sell me something.
Then all those "there is a doctor/ person that had mecs and they healed themselves with coconut oil (or something like that)".
When I learned about mecfs I checked if there is a local support group and there in fact is, on their website they say stuff like you should not wash your cloth with washing powder when going to one of their meetings and should turn off mobile phones to ...and apparently they are looking for a new room for their meetings that is free of electro smog....and generally they seem to claim mecfs would be caused by environmental causes?
Like, not that I would not be thankful for actual advice, but I just get very weird vibes from such people...like, it kind of feels like the gaslighting I get from docs, just in the completely different direction.