▲ 17 r/cfs

I kind of hate that docs not believe me but some of the people that (at least claim to) believe you so often seem to be into pseudoscience (to some extent)...and I sit here and don't know what to believe anymore.

hi all,

Granted, I'm still new to all this, so maybe people have knowledge I don't have but I always find it super weird when people then make weird claims about what is causing what and then wanting to offer things so you can "heal yourself".

I had it a couple times already that people started telling me the problems would have soemthing to do wiht fungal infection or something with the microbiome or mcas or whatever and it always feels like they are about to try to sell me something.

Then all those "there is a doctor/ person that had mecs and they healed themselves with coconut oil (or something like that)".

When I learned about mecfs I checked if there is a local support group and there in fact is, on their website they say stuff like you should not wash your cloth with washing powder when going to one of their meetings and should turn off mobile phones to ...and apparently they are looking for a new room for their meetings that is free of electro smog....and generally they seem to claim mecfs would be caused by environmental causes?

Like, not that I would not be thankful for actual advice, but I just get very weird vibes from such people...like, it kind of feels like the gaslighting I get from docs, just in the completely different direction.

reddit.com
u/nofjudschda — 12 hours ago

hot take: the frustration with melee doesn't come from melee itself, but from poor matchmaking and lower ranks/ casuals having to deal with too many smurfs.

hi all,

basically: title.

Think about it.

Would the lower ranks/ casuals complain about melee if the melee players they had to play against would belong to their own skill range? Imho, most likely not.

Melee IS harder to play, you need more gamesense, awareness, map and equipment knowledge etc.

The problem with melee is not melee itself, it is that the vast majority of the players, the casual, semi casual and/ or low ranked players constantly have to deal with smurfs and/ or bad matchmaking WAY too often....

...and those people most likely play melee on smurf accounts because in their own skill range people actually know how to properly defend against them. Personally, while I think that melee NEEDS a buff to be mroe viable in the higher skill ranges, I don't expect people to stop smurfing but making melee even more of a pain and frustrating to play against in the lower ranks.

So when you are a casual/ lower ranked player, you most likely constantly have someone in your face that also easily would dominate you with guns most likely, but getting dominated with melee just adds insult to injury.

I only can speak for myself, but whenever I get killed by melee in bronze, it hardly ever is an account that would be higher than lvl 50, it always are those low level accounts with hardly any cosmetics but most likely some "funny" edgy nickname and a lot of ego to get toxic towards their teammates because they not play up to their standards.

For the lower ranked/ casual players there also is hardly any learning potential to get better in those situations either. They just are canonfodder for smurfs to enjoy themselves.

All they experience is getting completely destroyed by an actually weaker weapon type and then have to sit 30-60 seconds and watch killcams and their teammates play, wait for the revive or teamwipe.

OF COURSE people are frustrated with that and not find it fun.

TL;DR: I dunno, I feel like IF smurfs would cease to exist now, in e.g. bronze there only would be bronze players and we overall would have better/ more balanced matchmaking we most likely would not even have so many complaints about melee being so unfun to play against in the first place.

reddit.com
u/nofjudschda — 1 day ago

is it true that this game will get "performance based" point system for ranked?

Hi all,

I think I read about that the other day, but haven't seen it mentioned since so I wonder if this was confirmed info or just a rumor.

If this is true, have they given any concrete info how that gonna work since there is tons of things you can do in this game that are not really "counted" at all but could be worth 10 times more than the stuff that actually is counted.

For example healing beam vs demat...I potentially could be glued to a teammate with the beam and jsut "spam" heals (as far as possible in this game) despite knowing he gonna die anyways. I then get "good performance" for the healing, but in the end I did not actually really change the course/ direction of the ongoing match...at the same time I could make it possible for a teammate to stealth steal the cashout with demat, teammate then gets the performance points for the steal and I will get ...nothing...the same way I already am not getting any points for it.

Also, if this comes I'm kind of scared people gonna stat pad rather than play for the team....

reddit.com
u/nofjudschda — 2 days ago

How do you get 10 kills per match for the challenge/ "quest"?

hi all,

basically title. I play cashout only and I rarely ever see someone with 10 or more kills per round...

It's not like there is plenty teamfights and there also is 2 teammates you "compete" with to get kills.

...and getting 10+ kills over the full tournament doesn't seem to count.

Is there a gamemode that is better suited to get this done?

reddit.com
u/nofjudschda — 2 days ago
▲ 25 r/cfs

relaxing youtube channel I'd like to share.

stumbled over this "Tanks for Nothing" guy today and fell in love with the channel.

He's and aquarium enthusiast building aquariums and setting them up for different eco systems, does narrate the building process and the "life" happening in the finished projects, also some explaining and background info why he does what but it never is too technical.

It's quite creative overall and quite funny too at times. Sometimes it feels like watching a nature documentary in a way.

I find his voice very alm and relaxing, there is some music in the background but it rarely is "in your face".

He doesn't have a lot of videos though.

link

u/nofjudschda — 4 days ago
▲ 1 r/cfs

PEM (?) sometimes coming shortly after the activity already and then ending a couple hours later again. Could this even still be PEM in the first place?

TLDR: just would love to hear from you how long it takes for PEM to start and end again from people that have more experience with this.

hi all,

not diagnosed and I'm just trying to figure stuff out since docs so far have not been really helpful.

That being said: basically title.

Just had it happen again today, had to get to the city center by bus, was feeling fairly well when I left home around 9 am, went to the doc to give them some paperwork and went home again, where I arrived around 11. Temperature wasn't even that high anymore (20-23°C outside) but I've been sweating like a pig whole time despite mostly just sitting in the bus, wating room etc.

At around noon the (potential) "PEM" starts, I feel like poisoned, like having the flu and having a massive hangover at the same time, my joints and muscles hurt, massive brainfog, I'm freezing, my feet are ice cold, I cannot focus my eyes on anything, just having them open kind of hurts my brain...

I've been lying on the couch for a bit over 3hrs, too exhausted to stay away, but not able to fall asleep either. I expect this to go on for around 3-4hrs and then be over again.

Still having my hot water bottle next to me due to feeling cold (25°C room temperature here still due to the heatwave last week, mind you) and in pain, but brainfog at least is getting a little better already already.

I jsut don't know how to make sense of those symptoms.

Sometimes the "crash" happens the day after but other times it feels like IF I crash, it will start within a couple hours after the activity. Sometimes it lasts for a couple days, other times like today (hopefully) it will be over after 6-8 hours again.

Docs so far basically tell me "psychosomatic" because of depression, but I don't feel depressed at all.

Also: I just feel that getting depression after being active doesn't make much sense to me, especially when I get those crashes also from activities I very much enjoy doing.

This kind of "nonsense" has been going on for 4+ years by now, starting after I had a naughty bladder infection with a resistent germ and having gotten fluorchinolon antibiotics.

Would love to hear some experiences from you guys what PEM feels like (maybe it's not PEM what I experience but something else), how long it takes to start after the activity and how long it takes for it to end again.

reddit.com
u/nofjudschda — 6 days ago

I was the kid with "so much potential" that turned into a complete failure. I grow more and more bitter.

hi all,

I've been very bitter for a couple weeks already.

I googled a few people I went to school with and all of them made a career.

Even the "dumber" / lazy ones, the potheads, the ones always partying, skipping classes etc.

All my life I tried to stick with the rules and do what was expected from me and the older I did get, the more I burned out on it. I always tried harder than everyone else, but especially after school everyone else turned into "normal" adults and I felt like lagging behind and I had zero clue what the fucking problem was, why everyone else seems to be able to do things so much more easily than I could do them.

I eventually did get diagnosed AuDHD in my mid 30s but at that point my CV was such a massive clusterfuck, that I was not able to get even unpaid internships anymore.

I also am ftm-trans* and do look A LOT ýounger than I am what also seems to be problematic and often leads to people just treating me a lot differently than they do treat other people my age and what also makes social interactions even more challenging.

I've been unemployed mostly in the last 20 years. I tried to be a "proper adult" so often and failed miserably every single time...sometimes because of burn out, other times because of ADHD related issues, or because of a strong feeling of justice and "doing the right thing" morally...

I have no job, no income and no money for anything. I have no money for my hobbies or special interest, I have no friends really, no family really either except from a mother that keeps critizising me how much of a failure I would be.

I always have been someone being happy with the little stuff I have, but I now am in a situation where lack of money is causing me more and more problems.

The heatwave has hit hard this weekend and my senior dog has been sufferung for 3 days straight now with the 28°C room temperature I had in my little apartment almost 24/7 for days now.

I just can't order some AC to make it bearable for him (and myself), if he's getting sick, I won't have money to save him and it already is breaking my heart.

I don't know if an early diagnosis in childhood would have help me and it's tiresome to ruminate about those "what if" questions. I don't want to think about that kind of stuff....

The thing is: I'm not suicidal, I love existing in a way, but I more and more come to the realization that I don't want to live "like that" anymore. Never having money, never having anyone that can help with something, always being alone and always being stressed because I am one "accident" away from financial distaster or bad things happening.

I tried so hard to succeed in life, I burned out on it and I'm getting kind of bitter and jealous that so many people that -from my POV- did put half the energy into stuff than I did ended up with good jobs, while I ended up "like that".

I'm in my mid 40s and I feel like such a massive failure. I have literally nothing...the only "thing" I have really is my dog and I'm not really able to really provide for him anymore, what then makes me feel like a failure even more because I'm not able to protect the one (and only) thing I love on this planet.

...and seeing the currently societal and political shift to the right I feel like this life I currently have will be the bst thing I ever will have...and it scares me so much.

reddit.com
u/nofjudschda — 8 days ago
▲ 12 r/cfs

depression, anxiety, social phobia, agoraphobia, autistic burnout or meccfs?

Doctors have not been helpful in exploring my symptoms and just claim psychosomatic because of a -by now- wide variety of mental health issues they claim I would have, while none of them make much sense in the first place (to me at least)

They basically say: your symptoms not make sense, it only can be psychosomatic and you are psychosomatic because of depression, anxiety, agoraphobia etc...while nothing of that ever did get properly diagnosed either.

Like, not a single doc claiming I would be depressed ever asked a single depression related question and I only get diagnosed with depression because of the exhaustion and fatigue and they never ask any questions regarding any symptoms I mention...when I e.g. say I have constant headaches and would be nauseous, they just go like "uh hu"...and not ask when those things would happen or e.g. what kind of headache in what area etc.

Also, no appointment ever really lasted longer than 5 min either and I often even cannot mention/ list/ explain all the different symptoms I have.

I don't feel depressed at all and all my life prefered being "alone" when having the choice since social interactions are fucking exhausting. Always have been. I do enjoy them to some extent but it's not something I want to do often.

I don't know if the (often, but not always delayed) fatigue I have kind of is due to autistic burn out, or just normal "overlap" with asd/ adhd symptoms or cfs or a combinatioon of all that.

My psychiatrist who I see for ADHD meds is not helpful either, like, I've been his patient for close to 10 years already and depression NEVER was a topic and the moment I mentioned the fatigue he instantly wants to prescribe anti-depressants without even asking about my mood or drive or motivation or anything.

The absurd thing is: I'm not even reluctant towards the idea of having a depression and would happily take medication IF I actually would feel depressed or there would have been a bunch of testing to explore potential physical/ neurological explanations first but no doc is bothering to do that...

...so I refuse to take brain chemistry altering pills just because docs acts like "your symptoms which I refuse to check or examine make no sense to me so it only can be psychosomatic becuase of a depression I just make up, because that is the most logic diagnose I can come up with after knowing you for 2min, now fuck out of my office so I can take care of patients that really are sick".

Can you be depressed without feeling depressed at all along with not really showing other depression related symptoms either, like not feeling empty or down or "hopeless" and while not having lost any interest in the things you love doing?

I'm just so confused since I can still be actice to some extent. Like I can walk my dog 3 times a day still and I can spend a fair amount of the rest of the day with browsing reddit or playing a video game or watching a movie show and not crash...

Wouldn't that automatically "disqualify" for a mecfs suspicion?

...stuff like appointments, especially when they require spedning lots of time in public transport where it's noisy or super hot or you get pushed around all the time (bus drivers here really are assholes at times) or having to be in the heat outside I most likely will manage to get that done, but afterwards will arrive home and be completely "done" and then also will not only not get better the day after, but sometimes even get worse.

If I would be depressed or anxious, wouldn't I depressed and anxious BEFORE doing those things and not get depressed and anxious AFTER having them done?

reddit.com
u/nofjudschda — 8 days ago

why are my casual cashout matches a lot more smooth, competitive and cooperative than my ranked cashout matches?

hi all,

basically title.

I placed bronze and sit around 6k RS...I gave up on playing ranked shortly after since it felt impossible to get out there but I wonder what the heck the actual problem was.

I'm a former high diamond/ low masters support main from Overwatch (Ana, Zen, Lucio) had adventureous drops into lower ranks there as well here and tehre, once did get really low when I had a 24 game streak with leavers in my team and ended up silver, but NEVER had any issue getting out of the low ranks again. Ever.

In my casual cashout matches I 75% of the time get teams actually willing to cooperate, people are pinging, helping each other out, people even saying thank your for getting revived or sorry when fucking up. It felt like heaven and a nice break from the usual toxic FPS communities. People are running as a pack, working together etc...it felt amazing, so I thought I jump into ranked.

Well, it was a hard and nasty welcome there. Not only did I rank super low but also was not able to even get into the 2nd round at all in any match I played and my teams were getting destroyed so hard we did not even manage to get a single fucking cashout done. Means, my teams kept failing royally every single match. Also, zero cooperation, people rather using you as bait instead of helping you out, people not even pinging, running away from my healbeam or keep destroying the walls around the objective when I have demat etc.

How is that even possible?

In casual cashout I end up in the final round in easily 50% of my matches, teammates usually are fun to play with and even if they suck or leave it's okay and I often have been able to carry with the other guy together, even won games where our 3rd guy DCed first round and never came back.

In competitive mode? My teams kept getting destroyed hard and all the fucking time. I don't even understand what the heck is going on here.

Not saying I would deserver a higher rank nor do I really care about rank in the first place, but those matches did not feel balanced AT ALL.

In OW, at the lowest rank, you literally had people just starting with the game and running around like bots more or less (no hate, we all started learning at some point) but in this game people in bronze are giving me a harder time than I had in Masters in OW back then.

I only played my placements + maybe 5 more games before I gave up and moved back to casual, but the moment I did, games suddenly were a breeze again, lots of cooperation, people working together etc.

reddit.com
u/nofjudschda — 13 days ago

discovered Luna yesterday, grabbed some games from GOG, but they still are not accessible through Luna.

Hi all,

grabbed the 2 xcom games from GOG yesterday along witha couple Indies. On GOG website it said it would take a while for stuff to show up under my games. It's been more than 12hrs by now and still nothing.

My GOG account is linked within Luna, but they still not show up under "my games/ my stuff".

How long does it take for stuff to be playable?

reddit.com
u/nofjudschda — 13 days ago
▲ 38 r/cfs

the game "citizen sleeper" is free to grab on epic game store currently.

it's a very nice looking low pace RPG that is played by reading text and clicking a thing here and there.

trailer

link to epic game store

5minute review from a small youtube channel

(edit: game will be free to get until june 25th...)

> ROLEPLAYING IN THE RUINS OF INTERPLANETARY CAPITALISM

> One of 2022’s most acclaimed indies, the Game Awards-nominated Citizen Sleeper is a Tabletop-inspired narrative RPG set on Erlin’s Eye, a ruined space station that is home to thousands of people trying to survive on the edges of an interstellar capitalist society.

> You are a sleeper, a digitised human consciousness in an artificial body, owned by a corporation that wants you back. Thrust amongst the unfamiliar and colourful inhabitants of the Eye, you need to build friendships, earn your keep, and navigate the factions of this strange metropolis, if you hope to survive to see the next cycle.

About the developer:

> Before making games Gareth was a graphic designer, games critic and academic. They hold a PhD in experimental literature.

/edit2: I don't know why this is getting downvoted?

u/nofjudschda — 13 days ago
▲ 3 r/cfs

is anyone else always freezing? What can you do against it?

Hi all,

currently lying on the couch under my blanket with a hot water bottle, ice cold feet still, freezing and light shivering, brainfog, headaches, body aches etc.

We're in a heatewave and I have 25°C room temperature.

I'm not diagnosed but I assume this could be PEM?

Had a pretty -mentally- exhausting weekend. Now this shit again.

reddit.com
u/nofjudschda — 14 days ago
▲ 6 r/cfs

I wanted to treat myself nicely and make some popcorn earlier today

I did remove it from the heat a little bit too late so some of them were burnt, which triggered the 3 fire alarms in my little apartment.

They were new fire alarms and I had zero idea how to turn them off for minutes and they were super loud and noisy and I did get more and more stressed.

Now I'm lying on couch under a blanket with a hot water bottle (during a heatwave in my country) since I'm freezing, massive brainfog, headaches.

reddit.com
u/nofjudschda — 15 days ago

sweet baby jesus, could rank mode even be more smurf infested?

I usually am a sucker for ranked modes but not one single time ever I experienced this kind of nonesense in a competitive ranked mode.... ever.

I'm so flabbergasted still that I don't even know what to write here lol.

reddit.com
u/nofjudschda — 17 days ago

is there any leaver penality even?

hi all,

I love the game, I really do...but I'm growing more and more tired of people afking/ quitting.

Yes, legit dcs do happen, they happen to me as well and then I reconnect within 30 sec...but it feels like so many others never reconnect and I wonder if they dc in the first place or simply ragequit.

I didn't have a single game today in cashout where there wasn't leavers/ quitters in either team or multiple teams even and for some magic reasons it always seems to be the teams that not instantly dominate the lobby.

reddit.com
u/nofjudschda — 17 days ago