u/shotgunning-your-can

I get dark yellow-ish urine often and mostly it’s clear.
I sometimes get this dull flank pain and at that time I get brown urine. Is this a flare?

M25.

Hematuria started 20 months ago. And across this period, urologist did battery of tests - ct urogram x2, urine cytology x2, cystoscopy, all tests were negative.

At the end a nephrologist saw my string like tiny red specks and said I need a kidney biopsy and it turned out to show IGA deposits haas class 1.

Has anyone had these tiny red specks in urine?

Male 25.

I am 19 months in since my symptoms first started (cola urine after a gym session] and 3 months in since my diagnosis of igan HAAS class 1.

Current labs -

My current gfr - 120
no proteinuria
RBC are present

Usually my urine is clear.
Sometimes dark yellowish with clumped tiny speck of red blood (like a tiny red dot that is not solid when picked on a tissue but smearable) [cystoscopy, cytology done and infections already ruled out with 16 months of repeated different tests before the eventual biopsy]

And when i get fever I can see cola urine.

Has anybody experienced something similar? Does the hematuria ever subside? How is your prognosis?

Here is my ongoing treatment:

Iganef — budesonide controlled release
, 9 mg twice daily

Empanef — empagliflozin
Initially 10 mg once daily

Telma 40 — telmisartan 40 mg once daily

I just got that itch!