u/ven0n4t

Early may of this year I got diagnosed with hypermobile eds by a genetics specialist who works with a lot of eds patients. She told me to talk to my doctor about medical marijuana because it’s what worked the most for most patients and I’ve already tried several other pain meds. I’m 19 and live in NY where you absolutely can get it under 21 so that parts not a problem but my mom is so extremely against the idea. When I told her she didn’t even want to hear it out she immediately just started ranting about “why would a doctor ever recommend that” and “you will not smoke in my house”. Obviously I have no intention of smoking flower in the house because of the smell I wouldn’t ask her to smell that all the time and I wouldn’t want to either. But she won’t even consider the idea or learn more about what it means (currently she thinks it means I would be fried out of my mind from sunrise to sunset even though I explained that the specialist recommended doing it at night after school). I have an appointment with a new rheumatologist and I’m going to ask about it but I know it’s literally pointless. It’s just killing me that she’s so willing to leave me with 0 pain management because of her ideas of weed when a LITERAL SPECIALIST is suggesting it. What kills me even more is that SHE IS A NURSE and her clinic PRESCRIBES MEDICAL MARIJUANA it’s not like she’s unaware of how it can be medically used. The difference is her clinic does treat the kind of conditions where people might use it from the moment they wake up (and most of her patients are retired so it doesn’t really matter as much for them) and she doesn’t think I’m “disabled” enough to deserve less conventional pain management. It’s kind of funny anyway cause I already do smoke, I started smoking weed regularly for pain about 2-3 years ago and I already smoke carts in the house that she has never smelled or found. But because I’m not 21 most of the stuff I can get is pretty sketchy and I’d love to be able to get stuff that I can know for certain is safe which I could do with a medical card. I’m still in college and have no means of moving out at the moment so now I’m just stuck knowing I could be getting proper pain management if she would listen to my doctors :/

Early may of this year I got diagnosed with hypermobile eds by a genetics specialist who works with a lot of eds patients. She told me to talk to my doctor about medical marijuana because it’s what worked the most for most patients and I’ve already tried several other pain meds. I’m 19 and live in NY where you absolutely can get it under 21 so that parts not a problem but my mom is so extremely against the idea. When I told her she didn’t even want to hear it out she immediately just started ranting about “why would a doctor ever recommend that” and “you will not smoke in my house”. Obviously I have no intention of smoking flower in the house because of the smell I wouldn’t ask her to smell that all the time and I wouldn’t want to either. But she won’t even consider the idea or learn more about what it means (currently she thinks it means I would be fried out of my mind from sunrise to sunset even though I explained that the specialist recommended doing it at night after school). I have an appointment with a new rheumatologist and I’m going to ask about it but I know it’s literally pointless. It’s just killing me that she’s so willing to leave me with 0 pain management because of her ideas of weed when a LITERAL SPECIALIST is suggesting it. What kills me even more is that SHE IS A NURSE and her clinic PRESCRIBES MEDICAL MARIJUANA it’s not like she’s unaware of how it can be medically used. The difference is her clinic does treat the kind of conditions where people might use it from the moment they wake up (and most of her patients are retired so it doesn’t really matter as much for them) and she doesn’t think I’m “disabled” enough to deserve less conventional pain management. It’s kind of funny anyway cause I already do smoke, I started smoking weed regularly for pain about 2-3 years ago and I already smoke carts in the house that she has never smelled or found. But because I’m not 21 most of the stuff I can get is pretty sketchy and I’d love to be able to get stuff that I can know for certain is safe which I could do with a medical card. I’m still in college and have no means of moving out at the moment so now I’m just stuck knowing I could be getting proper pain management if she would listen to my doctors :/

I’m a trans man about 4 years on testosterone myself and I keep seeing people talk about how testosterone cures a lot of eds symptoms for people. And also I usually see testosterone as the explanation for why there aren’t more cis men talking about experiencing severe symptoms. But when I go online and in eds spaces I see wayyy more trans men (who are on T) expressing severe symptoms than I do cis men. I’m like 65% sure it’s just a mix of my algorithm and/or cis men not posting in these spaces as much but I was curious if this was a real thing or if there’s some type of medical reason.

I’ve been trying to find a better guitar midi to little success was wondering if anyone on here had suggestions!