r/PreCervicalCancer

Honestly I’m hoping I’m the only one who thinks so and that others have had better experiences. I’m 9 days post-LEEP. The last 4-5 days I had the blackish discharge from the medicine in my cervix, then today the bleeding started. Now I was told I might have some bleeding similar to a period. Well this was heavier than any period I have ever experienced in my 2+ decades of having periods. For about 9 hours I bled profusely with clots but never quite to the point of soaking through a large pad within 1 hour, the standard metric for when to go to the hospital. But it was still absolutely terrifying. When I finally got through to a doctor at my clinic she was like oh yeah that happens sometimes but as long as it’s slowed down you’re probably fine.

Idk maybe I’m overreacting. I’m about 3 months postpartum and hemorrhaged then so I think I have a bit of ptsd when it comes to vaginal bleeding, especially since this happened so soon after birth and I haven’t gotten my period back yet so it’s the first bleeding experience I’ve had in over a year. For the doctor, who knows what I went through, to be so chill about it when I was clearly freaking out just made me mad.

In general though, if heavy bleeding is even a remote possibility, it needs to be communicated better with patients. I was not ready for what I experienced today and I hope no one else has to go through it!

Has anyone tried to conceive after two LEEP procedures? I had the first a few years ago and they didn’t get all the pre-cancer cells on my cervix. I wasn’t made aware at that first appointment that a second procedure could possibly affect conceiving and carrying to full term. I’m 36, about to get married and starting a family is our top priority so this news certainly came as a blow. I’ve gone through all the emotions and have landed on acceptance, but wondering if anyone here has gone down that path.

Just like the title says, I'm scheduled to have a LEEP procedure done on the 7th. The last month or so leading up to the appointment has been a lot of me freaking out and just general nerves because I hate surgeries and being in the hospital. My doctor said I can have the procedure done under GA which has lessened my anxiety a ton!

Now my only issue is that I am currently in rehearsals for The Wiz. Im playing Dorothy, I have no understudy, and we open on the 24th. The next couple weeks are tech, so we'll just be running the show front to back at least 4 times a week. It isn't super dance heavy but im really nervous about not being able to perform after having the LEEP done. I had a D&C in 2022 and immediately went to open a show later that evening, so part of me is saying to just go for it but I figure its best to ask for some advice first.

If you've had a LEEP before, how was your recovery process? And do you think it would be wiser to just ask to reschedule it for august?

Edit: idk if it ultimately matters but the show is only 3 performances at the very end of the month. So id have 2 full weeks of recovery under my belt but also id have to go to tech during the last week leading up to the show.

Hi everyone! I've been following along for a little while but this is my first post here. I had a bit of a stressful time after my colposcopy so finding this community before my LEEP was such a huge relief. Luckily I've had a relatively easy recovery—no major difficulties.

As I'm now a bit over 4 weeks out (cleared by my dr and feeling good!) I'm starting to think about sex with my partner again. I hope this isn't TMI but as it's been a while and I'm a bit anxious about the potential for pain, I thought I would test the waters by myself before attempting anything with him. I wanted to (very carefully) feel around a bit/make sure all was well but I was immediately really freaked out that I could feel a difference in the shape of my cervix with my fingers.

Has anyone else noticed this, or had a particularly emotional response to it? Any advice for navigating this? My reaction has caught me off guard. I know I'm healing and it's totally natural that my cervix won't be the same as before but I just feel so heartbroken and disgusted with myself. I can't stop thinking about it. I'm just spiraling a little bit and I'm so self conscious now that I know the evidence of LEEP is physically tangible. I just want to be done with everything surrounding it:(

I've always had a complicated relationship with obgyn matters and gender so this just feels like the cherry on top of my very poor relationship with my own body. Ugh. Sorry for rant! I'd appreciate any words of support if this sounds familiar!! 🫶

Hi everyone

I had my LEEP done 11 days ago. In these 11 days I've had different color discharge and some blood, but nothing too heavy. This morning when I woke up, I soaked through an entire pad in about 10 minutes and it still wasn't finished (I went to the bathroom). It just kept coming out. In the toilet, there was a thick black (almost looked like squid ink) spot about half the size of my hand maybe. Is this the freezing solution coming out? The scab? It was pretty shocking. That was about 10 minutes ago and I haven't felt any bleeding since. Thanks for any clarity!

A little encouragement for anyone who needs it. ❤️

In 2023, at just 21 years old, I tested positive for high-risk HPV (not types 16, 18, or 45). I never found out exactly which high-risk type I had, but hearing the words “high-risk” was enough to scare me.

After that, I chose to stop having sex for a year and focused on my health. I never went back for another test before I got pregnant in 2024.

During my pregnancy, I had another abnormal Pap test and was told to come back for repeat testing 6 weeks after giving birth. Life happened, and I didn’t make it back then.

Finally, I went back on June 25, 2026, and after waiting for the results, I can finally say…

EVERYTHING CAME BACK NEGATIVE!! 🙌🏽😭❤️

No high-risk HPV detected. No low-risk HPV detected.

I’m sharing this because I know how terrifying an HPV diagnosis can feel. I spent so much time worrying and wondering what would happen. Every person’s journey is different, but I hope my story reminds someone that a positive HPV test does not always mean it will be there forever.

Today, I’m celebrating this victory and thanking the highest for this blessing.

Hello! I’m 27F

I had my yearly pap done on April 16th and a month later I got results stating my pap came back abnormal (ASC-US), the lab was supposed to follow through with HPV reflex but never did. I was freaking out for a while and ended up getting tested sometime early June for an array of things: mycoplasma, ureaplasma, yeast and BV. Three had come back positive: ureaplasma, yeast and BV.

I have since followed through with the treatment and will go back in to make sure those are no longer positive, in the next couple of weeks but my question is: do any of those cause ASC-US pap results?

I’ve been very stressed about this for a while now, the whole reason I had all those tests done was because when I went for HPV testing the obgyn I saw gave me what I believe was incorrect guidelines, she said the lab would have never tested for HPV if the result was ASC-US only if it was lsil or hsil but I was told differently by my other OBGYN? Very conflicting information for additional context I’m in the US. I was just told to follow up within a year for my next pap.

All of my previous paps had been normal 2022, and 2023 but I hadn’t had a pap since then.

I’m feeling so overwhelmed lately. I had my LEEP procedure on June 16. For the first week, I only had the yellow discharge, but about 10 days later I started bleeding too. I know bleeding is considered normal after the procedure, but I’m getting to the point where I’m just so tired of it.
I had a biopsy before the LEEP and was already bleeding from that, then I got my period, and then I had the LEEP. It feels like it’s been nonstop, and I just want to feel like myself again.
For those who’ve been through this, how long did it take for the bleeding to stop? And how much were you bleeding—about one pad a day, two pads ?

I’m 54 years old (probably still on perimenopause) had an abnormal Pap with HPV + high risk, so my OB had done colposcopy which she didn’t see anything abnormal, did ECC and found out some atypical glandular cells that the pathologist called it Adenocarcinoma in situ. It was really very scary when I received this report because this is precancerous cells. My OB referred me to OB/Oncologist for cone biopsy. Did the cone biopsy last June 16th and the surgery went well with smooth recovery time. Yesterday, I came back for a post operative appointment and received my path report. This is the exact words of the diagnosis:

1. Cervix Conization:
   Endo cervical Adenocarcinoma in situ, HPV associated with all surgical margins free of dysplasia or malignancy

2. Endocervical Curettage:
   Benign endocervical mucosa with no diagnostic pathologic changes. No evidence of dysplasia or malignancy identified.

I was very happy to receive this path report but I thought, I won’t do any hysterectomy since they took out the bad part and margins are free or clear. and I will just be monitored but They recommended it. To be honest, I am afraid of another surgery and especially it was mentioned that all my reproductive organs will be removed. Please help me decide. Thank in advance

I had my cold knife cone two days ago and the recovery is going okay. They had to take from the cervix and also some tissue past the cervix as I had a swab also come back for CIN3. Just got a call from my surgeon with the results which are best case- no cancer and negative margins. I somehow feel more defeated than when I got the CIN3 results from the colp. I’m grateful that nothing’s wrong, but I will always have this looming over me waiting for the next pap and never believing I’m fully in the clear.

I asked my surgeon about how likely it is that the pap 6 months from now has issues and she couldn’t make an estimate due to how unusual it is that I have (had?) precancer to begin with. I’m the youngest patient she’s treated with this and it feels so unfair. I’m 23, I had my first concerning pap at 19, I was a college athlete, I’m fully sober, I workout everyday and eat well, I have no immunocompromision, I got the vaccine as a kid, my partner got the vaccine as a kid. There is no reason I should have this, all of the doctors keep telling me they have no idea how I got this. If I have it against all odds, I just have a feeling it’s going to keep coming back and it’s some monster strain. Because of my age, they were more conservative with how much they took in the ckc given I want to carry a pregnancy in the future.

I want kids, so badly, but I want to go to grad school and follow all my dreams. I was planning on having kids around 29-30, but it might be a now or never thing if this next pap isn’t clear. I hate that I have to think about this, I hate that no one has any answers for me, I hate walking into a cancer institute and having the pity looks from everyone in there, I hate that I very well might have to chose between having biological children and the career of my dreams that I’m so close to getting, and I hate that I’m ungrateful about results that should be cause for celebration.

I’m not sure what I’m looking for, probably for the pit in my throat since I got good news to go away. I don’t have anyone in my life that can remotely relate or empathize. If anyone has any perspective (for my sanity please positive 😅) I’d really appreciate it, I feel overwhelmingly dejected and I’m very surprised by that which is then making me disappointed in myself.

Hi! I had my regular yearly PAP smear a little over a month ago which showed ASC-US, my first abnormal PAP result. Then a week ago I did an HPV test for the first time and it showed I am HPV 51 and 53 positive. My gynecologist recommended a PAP follow up in six months, didn't mention colposcopy at all.

I'm a bit worried about not having a colpo as I see online that doctors mainly recommend the procedure after both abnormal changes and HPV are found. I love my gyno, he's really great, but I'm wondering whether I should push for a colpo or just do the PAP in six months?

So I would really appreciate some insight on my situation. I went for my yearly pap in March and it came back I had LSIL. They wanted me to do a biopsy so I had my colposcopy done. My colposcopy came back that I had CIN II and would need a leep procedure. My HPV test results all came back negative. I had my leep done almost a month ago, met with my doctor and he said that it was not cancer and I had a lot of inflammation. I asked him what the inflammation was from and honestly I couldn’t understand his answer and don’t even really remember him giving me a clear one. Does anybody know what he is referring to? Why would I have inflammation? Did I ever have HPV? And if my test results were negative, why did I need a LEEP etc… I’m just confused and don’t understand how I even got here.

Hi everyone!

Got the results from my colpo back, vast majority CIN-1 with just a tiny speck of CIN-2. The doctor told me I could get a LEEP now or wait 6 months and check again with another colpo.

I'm high risk HPV+ but negative for 16/18. 25 years old so if i was born a year later LEEP wouldn't even be on the table, lol...

It would be nice to not have to get a LEEP, but I have this feeling that I'll probably need it anyways and am just delaying the inevitable? i also have told my HR department about this and started paperwork for a short medical leave (yay Oregon) so i feel like everything is set up. i wasn't anticipating being able to have a "wait and see" option because when I got a call about my results the nurse told me I had no other option but LEEP

i know it's my decision at the end of the day, but thats not helpful when thats all that everyone is saying, hahaha. even my doctor and nurse mom just said it's up to me. what would you do if you were me, guys?

Hi everyone,

I’m new to this sub but am really glad I found it within the last week. I had a cold-knife cone biopsy on Tuesday and am really struggling.

I just kind of want to share my experience and vent to people who have also gone through it/are also currently going through it. For reference, I’m 31 years old.

So, I’d been lax in getting my annual paps the last couple years. A lot of it is due to lack of health insurance, and a part of it is definitely trauma-related after an unwanted pregnancy years ago.

Last November, I started a new job and am incredibly grateful and lucky to have really good health insurance now. I set doctor’s appointments in motion as soon as I could, prioritizing GYN care as I was having really strange periods. I used to get my periods very consistently, but all of a sudden they were light, irregular, and sometimes would go on for weeks at a time (my longest one was about a month, which was miserable). So I called around to different GYN offices, and most told me I couldn’t be seen as a new patient until almost a year out. I finally found one that could see me the same week.

To say my experience with this specific GYN was awful is an understatement. I was ignored when I requested a female provider and was given a man, and the list goes on and on. The one shred of credit I will give him is that he gave me 3 referrals: 1 for a transvaginal ultrasound (exploring possibility of PCOS, polycystic lesions were found), 1 for bloodwork which led to me needing an MRI because of high prolactin (they found an adenoma on my pituitary gland), and a colposcopy.

I had to wait weeks upon weeks for each of these appointments. I finally got my colposcopy done May 1, in which they took 2 biopsies. They found precancerous cells and referred me to a GYN oncologist who scheduled my cone biopsy.

I’ve been honestly a mess about this whole thing. What I thought was one issue has been revealed to be several different things at play now. And while this was a pretty months-long process, the issues being identified have been pretty close together. Example: I found out about the adenoma less than a week before getting my colposcopy done.

I had my cone biopsy done this past Tuesday. I’m recovering well for the most part but am uncomfortable/crampy, and the Motrin they prescribed me isn’t helping much. I’m also doing my best not to go nuts waiting for the pathology report to come back. My post-op follow up is on July 13th and it’s almost all I can think about.

I’m not sure what I’m looking for in terms of responses to this. But I just wanted to share, and I welcome anyone who wants or needs to commiserate.

Sending love to anyone who reads this in its entirety. Take care.

I had low grade abnormal cells come back on my smear test so went for a colposcopy yesterday.

3 years ago I had a LEEP to remove Cin3 and CGIN cells followed by another shortly after as they weren't happy with the margins and I had abnormal cells remaining. It wasn't a comfortable pleasant experience but it was ok. So this time I wasn't too anxious as I thought I knew what to expect.

This time there was no LEEP but I had a punch biopsy which I didn't have last time. I found this time alot more uncomfortable and there was one part where they took the first biopsy that was so painful I almost jumped off the chair in pain and started crying. I've usually got a very high pain threshold and never cry from pain so possibly that was the shock of it more than anything. They were really kind and apologetic and the rest of the procedure, although not pleasant, was ok and I left feeling crampy, embarrassed that i cried but ok.

It's now the next evening and since I got home yesterday everytime I think about it I sob. I'm trying not to think about it but I'm pretty crampy and each cramp or twinge makes me think of it. Has anyone else felt like this afterwards? I feel like I've genuinely been traumatised by it.

**also I don't want to scare anyone who might read this in advance of a colposcopy, generally my experience has been ok, not particularly comfortable or pleasant but nothing too awful

Hello, I have CIN 2 and I have my LEEP procedure planed next weeek. I have HPV and I’m pretty sure that I got if from my current partner. I am worried that when we start having sex again after the procedure that I will eventually get my CIN back. Do you someone please have similar experience? I read about using protection but I don’t want to, we are planning to stay together forever. THANK YOU!

Hi everyone,
I’m 29 and was recently diagnosed with CIN3 (plus several CIN2 biopsies) after my first Pap smear and colposcopy. My ECC was negative, and my doctor has recommended a cone biopsy.
I’m not scared of the procedure itself anymore. I’m just terrified that the cone biopsy could find invasive cancer.
If you’ve been through something similar, I’d really appreciate hearing your experience. Did your final pathology stay CIN3? How are you doing now?
Thank you. ❤️

Hey, so I’m not too sure where to begin.
I’m 26 and I am a sex worker (I guess that may be an important factor?) so it means I have lots of sex but it’s not all unprotected! I’ve had my hpv vax and I had a smear 8 months ago that was fine.

Anyways I got my mirena coil fitted October time, it’s the only thing that works for my endo symptoms and my last one fell out. Since getting it fitted I’ve had periods here and there, nothing to crazy or abnormal and just normal settling.

When I’m bleeding I use soft tampons, so basically sponges that allow you to have mess free sex.
Around a week or 2 ago I started bleeding a little, I was a bit crampy and I assumed it was a period. One day I removed a sponge and caught a whiff and it was awful! It smelt so bad! Like something had died! Never have I had that before! I ignored it and carried on as normal because there was no smell on the day to day!
I noticed a little bit more tender sex and still spotting very randomly. Pulled out another sponge and it had this same stench. So I decided to have a rummage around incase I’d lost a condom or sponge inside me! Felt my cervix and there’s a decent sized lump on it! Obvs I panicked a little but again just went about my day! Then I pulled out another sponge and it was the worst of them all! Phoned gmed as it was the weekend, they seen me and took and swab and said to book in with sexual health. (This was over the course of a week and I wear period panties when I’m not using a sponge)

Had my appointment today and she looked and has referred me to colposcopy and now I’m nervous and stressing. She didn’t really say much about it other than the lump is firm? She did say my swab came back with bv which I’m not surprised at because I was at the end of my period but this smell did not smell like bv and the smell was only there with the sponge, mainly when there was bright red blood on it! I can’t smell anything on the day to day! So I’m not sure it’s the cause of the smell!
Also bled a bit during sex yesterday but only one time and I’ve been getting more discharge recently!

Has anyone else had similar? I’ve been awful with google and trying to see pictures etc so I know what it looks like if it’s not good or what a bad lump feels like but I’m not sure! I’m probably stressing over nothing but it can’t be helped!