r/cleftlip

I was born with left cleft palate and lip. Need revisions and surgery advice !!
▲ 75 r/cleftlip+6 crossposts

I was born with left cleft palate and lip. Need revisions and surgery advice !!

Hello people,

I was born with left cleft palate and lip. Right now I am 25 and I am going through 2years of Invisalign treatment where my doctor removed my 2 premolars one from each side of my lower jaw and has retracted my lower tooth(pull back ) and advanced my upper tooth( pull up) little bit forward ( basically to correct my underbite). And after that I’m planning to get bone grafting(I have missing bone so no base for nose) then rhinoplasty and then lip revision for normal lips.

Also I need solution for nasal voice, I sound nasally? What could I do for that.

What I think:-

- 2 years on Invisalign is waist of time and money, my parents didn’t want me to go for hard surgery(maxilla advancement) so I went for this aligners bullshit.
-you can never change bone structure with orthodontics Invisalign/aligners.
- getting extracted 2 premolars from lower jaw for retraction was not good idea either because my lower jaw and teeth were perfect, I only had under bite.
- ok so now I have pulled back my lower tooth and I have advanced my upper tooth little bit forward which has corrected my bite little bit maybe but has caused my side profile look bad, lower jaw projection seems to be short now, which looks like recessed mandible. And I already have recessed maxilla because of Cleft lip and palate.
- changing aligners every 2 weeks, feeling pain every day, every week, can’t eat much and limited to food options- not worth it.
- YOU CAN ONLY LOOK GOOD when you have forward structure and forward growth, forward maxilla and forward mandible.
- aligners aligned my bite, but gave me more recessed look.

I need advice and suggestions from you people:-

- What surgeries should I opt now, I need real solutions not alternatives or copes.
- what can I do for my face structure? My lips, nose ?
- what can I do for my lip scar ? I want to eliminate it, I want clear normal skin there.
-what can I do for my smile ? My lips cover my whole tooth when I smile? Solution ?
- what can I do for my breathing? I can’t breathe properly through my left nose.
- what can I do for my nasal voice ? I think that happens because I have short soft palate( back part of palate) and I cannot speak a lot of words correctly because my hard palate is uneven( factors missing bone and stitches that left my surface uneven and plain)
-short soft palate means there is more air space at the back of my throat.
- if I advance my maxilla I would sound more nasally, which I don’t want at all, I’m already depressed and sad with present situation. Anxiety, stress, burden everyday every night just multiplies.
- would extending my soft palate will correct my nasal voice ? I want to eliminate that nasal sound.
-Also I want to look better, perfect nose, perfect lips, perfect smile and perfect voice. I’m not expecting or demanding model perfection- just expecting average performance nose, lips, smile and voice that don’t bother my life.

Real life experiences and trauma:

-No company wants to hire me as an employee. Saying it from my personal experience. Went through a lot of interviews. Applied almost 5k jobs in last 2 years. 50 interviews. ZERO offers . All rejections (Good jobs like banking, Big4s, corporate offices- not talking about poor wage jobs like Tim Hortons or uber eats)
- People ignore me, as if you’re not standing there, invisible to them.
-Growing up with zero social connections, Anxiety, stress, can’t make eye contact, wear mask at work places because people look at my lips and nose.
- Doesn’t matter how nice you are to the people or to the society. They are not to me and never will be. Harsh reality.

I hope whoever is reading this can advise and understand me. AND I will do whatever it takes.

u/ExcitingRow7919 — 2 days ago

Anyone else have a poor sense of smell or is it just me?

I’ve always had a terrible sense of smell, it gotten a lot worse since my last septoplasty surgery that I recently had (around a year ago). It’s somewhat cool since I can handle working with smelly patients and etc, but damn, I miss my sense of smell.

Don’t know if anyone else has a considerably poor sense of smell as well or if just me.

Also if anyone has any advice on how to somehow improve my sense of smell, I would appreciate it.

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u/Septum_Dude — 2 days ago

Looking to Hear from Other Cleft Families

Hi All

We found out at our 18 week scan yesterday that our baby has a unilateral cleft lip and palate (everything else came back healthy and is developing well). It's been a lot to take in but we're trying to focus on learning as much as we can and preparing ourselves for the journey ahead.

We're due to meet the specialist cleft team in the next 2 weeks with a further scan to determine the exact extent of the cleft, but in the meantime we'd really appreciate hearing from other parents who have been through this (whether you're currently pregnant, your little one has already been born or you've been on this road for years already).

We simply want to be as informed and prepared as possible for what's ahead.

If you're happy to share, we'd love to hear about anything and everything you're willing to share:

* Your experience after the diagnosis
* Whether you chose to have the amniocentesis procedure since there's a miscarriage risk
* What the pregnancy and birth were like (if anything is different to normal)
* Feeding in those first few weeks/months
* The surgery journey and recovery process
* Speech, hearing and dental outcomes
* How your child is doing now (physically, mentally and developmentally)
* Anything you wish you knew before baby was born

Hearing real experiences from parents who have walked/walking this path would be much appreciated.

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u/BeansOnToast012345 — 2 days ago

How do i look?

Genuinely curious for people born with cleft palates, cleft lips and anything else like this, what are your parents like? Are they supportive, loving, kind, empathetic people?

Mine are unfortunately narcissists. Any kind of happiness or joy is not allowed and met with envy, contempt, passive aggressive comments, silent treatment and general emotional abuse and neglect. My whole family is toxic and emotionally immature and not emotionally empathetic or intelligent.

I move out in 2 weeks, thank God and ill finally get to live by my own rules.

Ive been doing my best working on confidence and my self esteem behind the scenes.

I really want to work on my nose in the future when I have more room to breathe, (pun unintended)

u/StarBlazn — 3 days ago

Can someone give me words of encouragement (Recovering from jaw surgery☹️)

Hi everyone I posted here about 3 weeks ago but I had my jaw surgery on June 30th. I had le fort 1 with a distraction device that was turned daily for about 18 days. I am almost a month post op I’m too lazy and tired to bc check the date but I’m in so much mental pain. I’m 16 right now but my last surgery (before this one) I think I was 12? It’s been a while but while recovering I’ve had thoughts of just wanting to die. It’s been very hard for me to stay strong. The pain was incredibly intense during the distractions (when the device was turned) and I often wake up with nightmares now even though the process ended. We stopped distracting at 18 mm my upper jaw was forward to match my lower. We physically turned it 18 times but we doubt it actually progressed 18 mm because my underbite was 1 cm originally. Another concern I also feel like the hole in my pallet reopened up. Actually I’m certain because food comes through my nose. I already had 2 bone grafts to fix this yet it’s open again. I’m just in so much discomfort and I don’t know what to do. I know time will pass but it seems so slow. I just want to be done with all of this pain. My surgeon said I will have another jaw correction surgery next summer, along with a small surgery in a few months to take the metal plates out of my face. I can’t do all of this. I can’t take it anymore I’m in so much pain I almost just want to take everything out of my face and be comfortable. Please tell me it gets better I’m trying to encourage myself but my parents are very traditional and not patient with me. They often yell at me for crying or showing any emotion. Honestly I gave up on looking forward to looking “normal” I just want to be put out of this misery. I just want to go back to my normal self. I have two pieces of metal sticking out from the sides of my nose I’m upset because im sure there will be a scar when it is removed and until then my face just looks scary. My face is so “bulged” forward, and I feel like my nostrils are a lot more uneven now. I’m so unhappy with the results.im just hoping I won’t look like this permanently

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u/AdministrativeBig211 — 2 days ago

Growing Up with a Cleft Lip and Palate Left Me Feeling Invisible

I just graduated from high school and I'm waiting for college to start. These past few weeks I've had a lot of time to think, and looking back, I realized just how much my childhood affected me.

I was born with a cleft lip and palate. For anyone who doesn't know, it's a condition where the lip and roof of the mouth don't fully develop before birth. It affected both my speech and my appearance. I've had 8 surgeries so far, and every one of them has been difficult.

When I was younger, I was bullied a lot. People made fun of the way I spoke and looked. At the time, I tried to convince myself it didn't matter. I laughed things off and tried to stay happy, but I think I was just hiding how much it hurt.

Some of my strongest memories aren't happy ones. I remember hearing classmates talk about vacations while I was lying in bed recovering from another surgery. It felt like everyone else was living a normal childhood while mine kept getting interrupted.

I did have a few good friends, and I'm grateful for them because they gave me some genuinely happy memories.

One thing that has always bothered me is that I never really talked to girls. I had almost no conversations with them. There was one girl I really liked—she was smart, kind, and beautiful. I eventually told her how I felt, and she rejected me. Looking back, I know she had every right to, but it still hurt.

As a kid I was pretty mischievous. Looking back now, I think I wasn't trying to be "the funny kid." I think I was just desperate for attention because I felt invisible. It always seemed like my existence didn't really matter.

As school went on, my close friends ended up in different classes because we chose different subjects, and I felt completely alone.

Reading out loud in class was one of the worst experiences. Teachers would ask me to read, people would laugh at my speech, and some would even say, "Repeat, repeat." I felt humiliated every single time. Sometimes even the teachers seemed to ignore me.

I wasn't a top student either—just average. If I ever got into an argument or was bullied, it often felt like the other person was believed instead of me. Those moments made me feel like nobody was willing to listen.

During the last two years of school I became almost completely silent. I stopped talking unless I absolutely had to.

I also had septoplasty surgery. The surgeons suggested taking rib cartilage for reconstruction, but I was terrified and refused. Because of that, I'm really insecure about how my nose looks now. My confidence is at its lowest, and I honestly struggle to believe that any girl could ever want to date me.

In a few days I'll be starting college. Instead of feeling excited, I'm scared. I'm carrying all these insecurities with me, and sometimes I wonder if I was just meant to be alone. Maybe I'm supposed to live alone and die alone.

My parents don't really understand how I feel. They think I don't speak because I physically can't, but the truth is that I've become afraid to speak because of years of being laughed at.

I'm almost 18 now, and I keep asking myself the same question:

Will anyone ever be able to love someone like me?

Thanks for reading

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u/TheTrueKn1ght — 3 days ago

Just a heads up - lower your expectations when getting filler

What they post on social media, you can see it on the clients lips -- how they all have the same glossiness, is right after injecting, where the lips will look way more full then they actually turn out.

This leads to a skewed picture of what the results actually turn out to be, since most of the swelling contributes to filling out the imbalance, when the swelling goes away your lips will look basically the same.

They also only post pictures when the results turn out to be decent, obviously they won't post results where there's barely any discernable difference or where it still looks like shit.

i hate life so much. god some people have it so fucking easy, sitting there with their fucking full and perfectly shaped lips complaining about bruising on r/plasticsurgery. it's divine unfairness

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u/Best_Natural_1343 — 3 days ago

i feel like i dont fit in with people my age

idk who to talk to about this, since most of my friendships are pretty surface level and people just can’t really relate to my situation, so hi🥲

i'm f19 and i feel like i had to grow up a lot quicker than most people my age, because of my cleft lip and the mental load that came with it. i mostly spent time around adults, did more “adult” things, and ended up with interests that matched that. adults didn’t really judge me and they understood my depression n fear of people, even when i was younger.

now that i’m 19, i’ve worked on myself a lot (confidence, mindset, therapy, etc.) and i’m not as insecure or anxious as i used to be. i can actually talk to people my age now. feels like my brain got a huge update lol

but even though i can connect with people my age now and even share some interests, i still feel really distant from them. i know there are people out there who get me but they feel pretty rare

it sometimes feels like i’ve had a more “set” personality for a long time, while a lot of people my age are still figuring themselves out.

that's completely fair... but it makes it hard to relate. i’ll connect with someone and then a week later they seem like a totally different person. it just makes me feel kinda out of place, n it makes me cringe when they fake all of their interests... because those are your interests?? why are you not actually interested in them?? hello?????

on the other hand, i tend to click much more easily with people who are older than me (like mid 20s and up). conversations feel more natural, i don’t feel like i have to adjust myself, and people just seem more settled and genuine. they know who they are

but at the same time, a lot of them are (understandably) a bit cautious around me because of the age difference & i get why. i'd feel weird too if i was talking to someone younger than me. they also have their own established circles now n they don't really want to risk letting someone else in, also understandably so

so now i’m in this weird spot where i can finally make friends, because i can handle my social anxiety and depression + i'm not an insecure little girl anymore, but i still feel stuck

i don’t fully fit in with people my age, but i also don’t really fit in with older people either

has anyone else in here dealt with this and could give me some advice? i feel like i'm going crazy 🥲

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u/stup1dgh0st — 4 days ago
▲ 12 r/cleftlip+1 crossposts

💙 Introducing the Blue Disc Project Sponsored Feeding Kit Program

We’ve received a lot of questions, so we wanted to clarify exactly what this new program is.
We are now providing brand new Dr. Brown’s Specialty Feeding Systems - completely free of charge to families in need.

Each sponsored feeding kit includes:
🍼 Two brand new Dr. Brown’s Specialty Feeding System bottles
👶 Two Level 1 nipples
👶 Two Level 2 nipples
💙 Two blue infant-paced feeding valves
🧽 Bottle cleaning brush

This is not a product sale. It’s a sponsorship program that allows generous donors to provide a complete feeding kit to a family navigating cleft lip, cleft palate, or other feeding challenges.
Your sponsorship helps ensure families receive the feeding supplies they need as quickly as possible, without the added financial burden during an already stressful time.

If you’d like to sponsor a family today, please visit:
💙 thebluediscproject.org/sponsor

Every sponsored kit makes a real difference for a family in need. Thank you for helping us expand our mission and support babies around the world.

u/Mi_mortgage_dude — 6 days ago

How hard is it to get a job with cleft palate?

Hi everyone. I have a cleft palate, and it affects my speech a bit. Does this make it harder to get hired for IT jobs, especially entry-level positions? I'd appreciate hearing your experiences or advice. Thanks!

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u/Deruuuuuu — 6 days ago

Why am I still stressed on how Im being perceived? 34M

I smile WAY too much. Even when my nervous system goes into overdrive, I smile. When I get uncomfortable, I smile...

I receive a lot of compliments about my smile, but at the same time, I receive blank stares in which in return, I feel very exposed and down the depression hole I go.

Tie it all in with people staring at me from a distance and feeling like people are friendly to me because they know I must if had a hard life and that Im a "good guy"

Just feeling very low today.

u/DoobyCide — 8 days ago

So tired of being stared at!!

  1. It never ends. Went to get a haircut today and this lady just stares at me for a long time. Finally, she says, you have the prettiest eyes. That is not what you stared at for that long but thanks I guess. Just like hate going anywhere honestly.
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u/salty_sea_turtle — 9 days ago

how attractive/good-looking do you think I am?

I [19m] know this might seem like a selfish post, but I’d genuinely like to get your guys’ opinions on this.

Also, in case your wondering what’s going on with my hair, I unfortunately have alopecia, and my barber kinda messed up the last haircut he gave me a few weeks back.

u/Pizza_Boy2147 — 9 days ago

Cleft lip

Hi has anyone’s scan photos looked similar to mine? The sonographer seems to think the palate and gum notch look intact, TIA 🙂

u/Visual_Barnacle_6492 — 8 days ago

So, I've Been Thinking of Writing A Book

I think a lot of us can agree that we're tired of being gawked at. It's such a dehumanizing experience, and yet people are so ignorant about how they're being. Sometimes I just want to say "were you raised by wolves? because your manners are shit." Seriously.

Anyway, I am surprised to find that there aren't many self-help books on facial difference. Clefties need a book like that. An empowering self help book on how to cope w/ stares.

I might like to do interviews to get different perspectives. Would anyone be interested in being interviewed? This might be a qualitative study turned into a book.

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u/Fun-Muffin5865 — 8 days ago

Does my son have a cleft lip

I got this ultrasound today and to me it appears he may have a cleft. The doctors haven’t said anything because they need to make their report and look over the images. Does this look like a cleft lip to you?

u/avagreen420 — 10 days ago

Any advice for accepting my perpetual singleness?

This is not an attention seeking post, I only posted photos of myself for context. (Not saying that “attention seeking” is a bad thing, we are all human and crave acceptance and admiration, but that is not my goal here). I’m just trying to show the extent of my deformities, which include cleft lip and obviously a lot of other stuff but it was so rare there was no name for it when I was born so idk.

I have struggled my entire life with romance despite always craving and placing immense value on it in my life. I have been in 2 “real” relationships in my life and one was abusive in every way and the other quite literally ghosted me after almost a year and a half of what i thought were great and special tomes together. Like literally just left our apartment we shared and didn’t come back to pack his things until I decided to break up with him since he hadn’t been home or said a single word to me in almost 5 days. I don’t even know why he did that, we almost never argued. He was clearly just waiting for me to end things to avoid accountability for whatever his reason was 🙃

At this point I am almost 29 and am still single, and I am starting to realize that I might genuinely be alone for the rest of my life. With nearly every man I match with on dating apps, or even ones I meet in real life, I eventually come to realize that they just want to have sex. I have dated an embarrassing amount of people in my adulthood that have led to nothing because >!almost!< every single time, even when i think someone is genuinely interested, they end up dropping me with no explanation after a few weeks or months, or just try to make our relationship purely sexual which I am not okay with. I am not exaggerating, that is how it goes every single time. The most recent guy I was pursuing things with told me he loved me after less than a month, then said he “wasn’t ready for a relationship” a few weeks after that.

I am starting to believe I am simply too unattractive to love, at least for people I >!am!< attracted to. I’ve watched multiple people tell me they don’t want to be in a relationship only to end up with someone new and conventionally attractive shortly after. I probably need to lower my standards but I can’t help who i am attracted to, and tbh I really don’t think my standards are that high. I value personality much more than looks and do my best to consciously see people for how they are and not their appearance. I don’t go after chad looking dudes whatsoever and I can easily become super attracted to pretty unconventional people but even they don’t seem to want me back. I consider myself to be a very kind, curious, and accepting person and I can get along with almost anyone. I have friendships that have lasted well over 10 years, so I am more than capable of truly showing up for people. I genuinely don’t see what the problem could possibly be other than my ugly asymmetrical face and the fact that I’ve gained some weight during my later 20’s.

The other problem is I have no family besides my parents. I’m an only child and am not close to any of my cousins or anyone who will live past my parents in any way. I have friends but most are married and understandably more focused on their own lives than me. So, once my parents pass I am basically alone. Im AuDHD as well so making new friends is very hard for me.

It sounds pathetic but my biggest dream in life has always been to find true love, get married, and settle down, and I don’t know how to change that so i can stop suffering at the hands of my own yearning and just learn to accept my reality. Please don’t respond to this post if this does not resonate with you. If you don’t and have never cared that much for romance and such or you met your person at a young age, your advice is respectfully irrelevant. Who I really want to hear from is people who were in my shoes but learned to accept the fate.

u/No-Light9581 — 8 days ago

18M Looking to Date Someone from the Cleft Community

Hi everyone,

I'm 18 years old and I have a cleft lip and palate. I've never really talked to girls since my school days, so I've never had the chance to learn how to build that kind of connection.

I'm making this post because I'm interested in dating someone online, preferably someone from the cleft community. I know this might sound unusual, but I'm being completely honest about my intentions. I'm not here to be creepy, waste anyone's time, or mislead anyone.

I thought this community might understand me better because we've gone through similar experiences—surgeries, bullying, insecurities, and everything that comes with having a cleft. It would be nice to get to know someone who understands those experiences, whether it leads to dating or even just a genuine friendship.

If you're interested in talking, feel free to message me. If not, that's completely okay too. Please don't judge me for making this post—I'm just being honest about what I'm looking for.

Thanks for reading.

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u/TheTrueKn1ght — 9 days ago

update front view rhinoplasty

a parte da frente ainda anda meio inchada, o médico disse que essa parte é a que mais demora pra aparecer o resultado verdadeiro, mas ja da pra notar uma certa melhora

u/apavoramento — 9 days ago

1 year old son just had clef pallet surgery and now refuses to eat

Day 4 post surgery, still at the hospital, baby refuses to eat. We have been trying to feed him with a syringe, and he just pockets the milk on his mouth and refuses to swallow. Has anyone had issues with feeding after surgery? How long did it last before baby started eating?

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u/bob_num_12 — 11 days ago