Yo i just had a bone graft to my upper jaw, its doing ok. But OMG MY LEGS!! it feels like desd weight, all i feel is static! Its bothering me so bad. Its lile its asleep, all of the time. Screw my face, I just want the muscles in my leg to wake up.
Hi everyone,
I (30F) was born with a bilateral cleft lip and palate. My lip is fully repaired and my palate has also been repaired. I’ve also done speech therapy on and off throughout my life—starting in elementary school (a bit late), a few months in high school, a few months after college, and again as an adult.
In every round of therapy, my speech therapists have told me that there’s nothing wrong with my speech or that I’ve basically reached a “normal” level already.
But I still feel unsure.
When I record myself and practice (as advised by therapist), I sometimes notice things that feel off—maybe a bit nasal, or certain sounds not coming out right—but I honestly can’t pinpoint what it is. I don’t know if it’s an actual speech issue or just me being overly self-conscious because of my history.
Has anyone experienced something similar? How do you tell the difference between real speech concerns and just being hyper-aware of your own voice?
I’ve also attached a short audio clip of my speech practice for reference. Any honest feedback would be appreciated, especially if anything sounds off or unclear.
Any advice or perspective would really help
I’m writing a character who has a cleft lip, and i’m just wondering for those of you who were bullied or made fun of for it as a kid; what kind of things would other kids be saying?
Thank you 😅😅
General question. Bilateral cleft lip and palate and I feel I’ve never had deep sleep in my life. There has been a total of three nights that I woke up thinking is that how normal people sleep. Twice with a cpap but I can’t get it again after many months. I’ve always struggled with attention and concentration. Anyone else have anything similar?
im 18 and i just got my first rhinoplasty schedule so i can finally fix my nose distortion, but not gonna lie im extremely scared of surgeries, thats me on the pictures (ik i gained some weight because of antidepressants, but ill try to hit the gym), i honestely dont know what to expect, im afraid im not gonna like the new nose, but i hope everything goes well, how was yours rhinoplasty?
Hi everyone. I’m a 30F with bilateral cleft lip and palate, and I wanted to ask if anyone here has had a similar experience with speech, especially as an adult.
My lip has been fully repaired, and my family says it isn’t very noticeable anymore. My palate was also repaired, and I’ve undergone speech therapy at different stages of my life.
One thing I sometimes wonder about is whether I started therapy too late. I see kids nowadays starting speech therapy at around 3–5 years old, while I only started at around age 10, and even then it was pretty on and off.
I went back to therapy in high school, then had a few months again after college. More recently, as an adult, I did speech therapy again late last year because I suddenly (?) had trouble articulating sounds like s, ch, sh, t, and d.
Right now, I’m practicing on my own and recording myself while speaking so I can hear my progress. But whenever I listen back, I can’t help but hear little imperfections in my speech (not sure if that’s the right term 😅). Sometimes I feel like I sound a bit nasal, but most of the time I don’t think I do.
I guess I’m wondering: is this normal? Do any other adults with cleft lip/palate still notice things in their speech that other people may not even hear? Is it common to become hyperaware of your own voice after years of therapy? How exactly can you talk clearer?
Would love to hear from anyone with a similar experience.
It’s incredibly comforting to discover that there are people who have experienced similar cases to mine. :>
i'm insanely anxious about posting here lol. i'm 19, turning 20 in july and i've had buck teeth pretty much all this time with my lower jaw being much shorter than it should be. i was never sure if it was related to my cleft, as i also have an older sister with an overjet and she didn't have a cleft.
i've always felt like it kind of 'ruined' my face. more than my cleft i'd argue. its what i got bullied for the most, and as much as i try to incorporate it into my art i just kind of wish i could look normal overall. i'm looking forward to getting jaw surgery one day, even if i'd be in pain. i'd like to know other people's stories, though. maybe it'd give me a different light to view my teeth in
So I am having a jaw surgery and I can't help but think about what if people treat me better and pay more attention to me once I go back to college next semester. I think I will appreciate having an easier time socializing, but that I'll have resentment of why people treat me better now even though I am the same person inside. I am also worried that the surgery will make very minor improvement of how I look aesthetically and nobody will care or notice and will just ignore me as they always do
Curious if anyone has gotten filler to achieve fuller, more feminine lips. Mine look awful but I don't know if it'll help
For context: Ronda Rousey recently mocked former UFC Middleweight champion Khamzat Chimaev calling him "Cleft Lincoln" during a press conference when she didn't liked what he said that she's being ungrateful and kept trash talking her former company (UFC) and the people who made her big.
For the record, Khamzat Chimaev's case is not a cleft at all. He fell down the stairs when he was a kid that injured his face badly and left a scar in his mouth that appeared to be a cleft scar. Rousey is just a terrible human being. Respect to Dakota Ditcheva for standing up for people with cleft.
FYI Dakota's a top undefeated (15-0) female MMA fighter and a rising star in the MMA world. Everyone give her a follow or sub.
I’m always amazed at how far I’ve come and how much I’ve changed. After every surgery as a child I always felt like none of it was worth it. Granted I was a child, but it never felt like my appearance would ever improve. It really didn’t start changing until 2 years ago when I got cheek implants, my lip scar revised + fat grafts, and my dental bridges.
I’m very proud of baby me for sticking through it all and thankful having amazing surgeons throughout my life (and very grateful for access to surgeons)I feel more confident in my facial appearance and my speech more than ever.
In the future, I’m hoping to eventually get a lip blush tattoo so I don’t have even out my lips with makeup everyday. And if I ever get rich I’ll probably opt for minor Botox/fillers, but I do feel like I’m finally at the point where it’s not necessary.
cw: Body anxiety, surgery talk, stitches, mention of sex and wound
I was born with a bilateral cleft lip, my palate intact if not slightly weak. I've had 4 surgeries and my last one was when I was 9, so about 15 years ago. I dealt with a split upper lip in December that sent me into a spiral because it would. Not. Heal. It scared the life out of me, I kept thinking, "my lip is going to come undone," like I had a horrific image in my head. Like, I knew my lip would heal just fine, but the fear was crazy.
The work from over a decade ago is completely healed, I had incisions leading up into the beginning of my inner nostrils to tighten the lip and pull the skin up to create a cupid's bow of sorts. It seems they did some other fanagling because my stitches on my actual lip were angled very particularly, like they were literally manipulating the flesh of my lip and mouth to look like a "normal" lip. That's my very vague understanding of it. I should ask more questions. I had stitches leading into my mouth that eventually dissolved.
ANYWAY TL;DR SKIP TO HERE!!!
I recently hurt my mouth with my teeth during oral sex, I had pulled my lip over my teeth and I ended up hurting myself. There is very faint bruising and blood and it is tender and stings when I press my tongue against it. I feel scared. It's fine, I know it's fine, but I have no doctor to share these fears with. I don't share them with my mom because I don't want to stress her out. I don't share with my partner because I don't want him to feel guilty. These lips were expensive and I don't want to kick up a fuss about them but I also want to protect them. My lip isn't going to come undone right?
Hi, so I have a cleft lip that has affected my nose and my lip of course. I have had multiple surgeries. A jaw surgery to fix my underbite and I had a nose surgery twice. It looks pretty good but I don’t think it’s 100% and I’m thinking of getting another surgery but I honestly don’t believe that whatever I get 100% fix what I have and I just want to know from everyone else’s experiences that have gone through no matter how hard you were to achieve perfection and will never be 100% and if anyone else out there has dealt with double takes by people who just look at you and then look at you again I just feel it’s kind of rude and there’s nothing I can do or anyone else can do about it which even hurts me even more because I feel if I say something, they have the power to hold back and say what are you talking about? I just feel at this point in my life how much I have tried to be happy. I don’t think I will ever forever be 100%. I just want to live my life to the fullest with the people that love me but also be out there to be confident and meet someone that I would love for the rest of my life. Has anyone else dealt with this experience? I would love to hear from you guys.
We did double marker test after 1st trimester and it was low risk although Dual CLP was detected at that time. But now it’s been very tough since last 2 days after our pre-anomaly scan. Nasal bone is like 2.5mm, cleft palate has 7mm gap and the calcium deposit kinda white dot in heart. All these markers are adjusted the risk of Trisomy21 to 1 in 24. Doctor advised us to do the amnio. I have lost all the hopes and started thinking that most certainly we have to think about abortion, as all doctors we met are pointing out on the same. I don’t know how life would turn out over the course of next one month but will accept the truth whatever it is!
Hi I’ve been told at my 17 week scan that my baby will possibly be born with a cleft lip. Would anyone know what sort of cleft my baby boy will have from these scan photos? I understand people aren’t professionals but just any advice or any similarity’s to theirs. Please and thank you :)
I have never felt truly accepted genuinely and it really makes you ponder. Best I've been is a helpful aquaintance whom others are cordial with but it's just for the sake of civility and very superficially polite.
Society places too much weight on facial differences
I want to get out of my own head and hear from others with this same condition who have felt genuinely included by others in their lives.