Doctors: “We can’t figure out what’s wrong with your vision so we’re gonna blame it on your weight!”
I went suddenly blind in about 15% of my field of vision in my left eye right before I turned 32. Went straight to the emergency room, no signs of a stroke, everything looked golden so they determined it must be neurological. Sent me to a neurologist.
She took one look at me and informed me that it was probably because I was overweight, and my spinal column was producing too much spinal fluid, which was then causing pressure on my brain and acting like a tumor. Got a spinal tap. Pressure was on the low end of normal.
Went back to her. Was told “I still think it’s related to you being significantly overweight. If you lose weight your vision will probably come back.”
At the time I was 5’7” tall and weighed 155 lbs. I was competing regularly in Brazilian jiu jitsu, rock climbing, and hiking almost every weekend.
Now, I will admit that I was carrying a little bit of extra fat pack here and there. However, I also am pretty dang sure that there’s a *LOT* of humans out there that are a lot fatter than me and almost all of them can still see?
(Fun? ending to the story: I had a DVT about a year later and they were like “oh shit you have a clotting disorder we missed, our bad! You definitely had a stroke that either cleared itself or was so small we missed it in the ER.” I’m on blood thinners now but I still get mad when I think about it)
EDITED TO ADD/ FAQs:
I’ve been to two retinal specialist, I’ve been to a general ophthalmologist, I’ve been to an Opthoneurologist, I went to three or four general neurologist, and then I’ve been to my cardiologist and my hematologist.
I have been fully checked! we know what caused it! I just didn’t write about all the other doctors initially because none of them were infuriating.
The vision is permanently gone unfortunately.
I am on a daily blood thinner, which means that I don’t get to compete in the sport I love anymore, but I am still able to do it with trusted partners, which is so much better than I thought it would be when I first heard that I would have to be on blood thinners for the rest of my life!
This all happened several years ago and I’ve been living a happy, healthy life for the last three years, (which is also part of the reason why it’s only mildly infuriating as this is in my past) I just was thinking about it today because one of my friends had a similar comment from a doctor.
Also, yes, I did have severe medical anxiety for several years after being mystery blind for a year and going to a different doctor couldn’t tell me why I was mystery blind constantly! My hematologist and one of the neurologist went a really really long way towards helping me get to a better place about it by being kind and very willing to keep me in the loop. I also spent a lot of money on therapy.