u/More-Professor-1755

Several of my providers including my PCP agree that my symptoms align with endo but my doctor is rather dismissive and has trapped me in an useless cycle of being offered OBC and ultrasounds (that are inconclusive b/c they can't visualize both ovaries due to my body size and bowel gas.)

My history:

Started menstruation early around age 10

Very erratic and long cycles

Extremely heavy bleeding that I've had to take medicine to stop

Spotting, uterine contractions, then passing massive palm-sized blood clots

Hormonal fluctuations very strong despite irregular bleeding (on cue I have PMS symptoms every month regardless of where I am in a menstrual cycle)

Formally diagnosed with PMDD by mental health team

Never have been pregnant despite having sex that could result in pregnancy

Horrible abdominal bloating

Pain with penetrative sex

GI and urinary pain that correlates with bleeding

I have an appointment tomorrow with my ob/gyn and I'm bringing my partner in for moral support. I'm at the point where I know in my heart there's something more to this that's going unaddressed and I'm in so much pain between this and other conditions I've gotten a lawyer to help me fight to be awarded disability. ATP I'm barely able to work 10-15 hours per week at an office job it's all so disruptive.

Basically I want a plan for if I'm sent for another TV ultrasound with unremarkable results. I'll note that urology did a pelvic MRI on me years ago and also seemed dismissive of the results. It would make sense to me that after years of NOTHING that my urinary and GI systems are involved too.

I saw in someone's post that they did bowel prep before their ultrasound but they've never asked me to do this before; should I ask my doc if it's worth trying if they send me to imaging again?

Had anyone had luck asking for a referral to a specific surgeon or is that skipping steps? I'm so overwhelmed.

I'm also feeling lonely about the fertility aspect. I'm in my early 30's and starting to feel the ✨pressure✨ but basically it's just really important to me to retain my right to make that decision for myself rather than have ignored health issues make the choice for me. Being fat and low income/unable to marry due to my disability makes me feel like they don't take my fertility concerns seriously.

Tysm for any kind words you might have to share!

The squeaky wheel one played THREE times in a row, then just as we though we were safe during the function of beauty haircare ad, here comes the squeakiest of wheels a FOURTH MFing time.

What other things have local politicians done that gave you the ick enough to rule them out as an option?

For a while I thought it was because I was booking hot tub rooms, but I noticed they start right about the day of or day before I leave for my trip.

I swear it's panic-related. It's like as much as I prepare, my body itself is still freaking out.

Next one is coming up quick.

I'm seeing Ashnikko in Toronto! 💋💅

Figured I'd offer to share my tips/tricks I've learned since starting to do this regularly since 2023ish when artists started touring again.

What do you want to know?

Currently a creative writing student and was curious to see if others are on a similar path.

My therapist has been trying to get me to see some positive things about my parts like how it opens me up to be creative in a unique way.

I just recently started a piece of short fiction with a main character who has DID and kind of "came out" to my classmates during my peer review.

It felt...like relief. I'm an older student and I feel pressure to be an example to them. Hoping being open about mental illness will reduce the stigma surrounding conditions like DID.

My cc has the option to earn up to two levels of an advanced studies diploma.

Basically, the first level you just have to take a certain amount of honors electives and a seminar class for the honors institute.

The second level is more credits and you have to complete a thesis.

I'm interested in the first one and after this semester will have everything I need for it except that seminar credit.

But there's two issues with the seminar course: it's only offered on campus (due to disability I take everything online if I can) and also, since it's "not required" for my degree, fin aid won't cover it.

The rep in the aid office doesn't understand financial privileges and just told me not to stress because my loan money would likely cover it. I'm living off student funds (grants, work study) rn as I'm fighting with a lawyer to get on SSDI payments because I can't work full-time.

I've applied for as many scholarships as I could fit in between my studies and so far I've only wound up with $50 tuition credit from a writing contest I placed in. Don't get me wrong, I'm super grateful, but it seems wrong that I'm going to have to sell even more of my belongings to cover this last course out of pocket if I want that distinguishment on my degree.

College as someone new to navigating DID is...interesting to say the least.

We are about to accept an award for winning a poetry contest, but idk who wrote that either.

Our writing is SO disjointed because of rapid switching which is knocking down our scores overall

It's tough to keep all this low-key.