u/Tandfeen_dk22

I am not sure what to do now. I purchased a FreeStyle Libre 3 sensor and blood glucose strips because I had a suspicion that I might have nocturnal hypoglycemia. I have been battling horrible symptoms for over a year with acute episodes of dizziness and faintness and shakiness followed by severe brain fog, and no doctor has been able to help me. So I am playing detective, trying different things myself. The lab has previously flagged my average blood glucose over a three-month period as too low. Consequently, my doctors asked whether I am eating enough, and I am! I have even gained several kilograms.

When I put the Libre 3 on, everything was fine. It did not hurt and connected fast to my phone, but already after a couple of hours, the alarm just started going off pretty often. I was at a friend's house and hadn't eaten in several hours. I was feeling very dizzy, so I said to myself that this might be something indeed.

Now 48 hours have passed and the alarm goes off very often, like once an hour at least if I haven't eaten in 2-3 hours. At night it happens a lot, and I have drops as low as 3.0 mmol/L (54 mg/dL). And no, I am not compressing it, as I am sleeping on my other side. Last night I was awake from 1 AM to 5 AM with horrible symptoms… the alarm went off again and again. Usually eating puts me back to sleep, but I refused to eat because I really wanted to catch these episodes, so when I saw the graphs, I had lots of dips in my blood glucose. I thought, this must be it... my symptoms are caused by some kind of non-diabetic hypoglycemia. I almost cried because I thought, "Finally, I have some answers."

So today I started using the strips to confirm these drops, but the results are all over the place and don't really match my Libre sensor. The Libre sensor seems very stable and has logical trends; it goes up when eating pretty fast and correlates with my symptoms also when I have the dips... but it's consistently lower than my actual blood glucose levels. Sometimes the difference is small, like 0.4 mmol/L, other times it's a bigger discrepancy. I am very frustrated... as I am highly symptomatic and I can feel the episodes before the alarm goes off, but it doesn't matter if the blood glucose device shows totally normal glycemic levels... I wanna cry.

How likely is it to have a functional B12 deficiency with normal B12 in blood work?

I have been recommended to get homocysteine and MMA tested after 1 year of symptoms. The worst one is dizziness, but also pins and needles in my fingers, fatigue, and others.

I’ve been suffering from chronic dizziness along with other symptoms for over a year now with no clear diagnosis. The consensus is that it is some kind of dysautonomia or maybe POTS of uknown cause. I have been through extensive testing like MRI/MRA, hormones, allergy testing, autoimmune panels so on… everything looks pretty normal apart from low ferritin and low potasium, both treatment resistant. I currently have a series of tests scheduled (mostly focused on GI/digestive issues) to try to find the root cause.

So far, I’ve seen 4–5 different ENTs, and all of them confirmed it isn’t vestibular, no nystagmus, no structural ear issues, and no hearing problems.

Tonight, something strange happened. I was feeling relatively ok and stable, so I went for a walk. I passed a park where they were setting up for a concert. Sound doesn't usually trigger my symptoms, so I didn't think much of it. But as soon as the bass started, I immediately felt a major increase in my dizziness and felt like I was literally going to faint.

I’m so tired of these unpredictable symptoms. Has anyone with dysautonomia or chronic dizziness experienced extreme reactions to low-frequency vibrations or heavy bass? What could be the mechanism behind this?

I am asking this question here because I have already been to the doctor and they can't find anything. My hearing is perfect, there is no sign of blockage or inflammation. My scans are also normal... I just want to hear if anybody else has had the same experience. I don't think this is dangerous... I am just angry with my symptoms.

Sunt oare singura care se enerveaza de fiecare data cand Youtube baga o reclama facuta de AI? sunt mega cringe. Uneori sunt desene animate altele videori care vor sa para reale. Totul de la voce, intonatie, cuvintele folosite, ma calca pe nervi. Ii injur de fiecare data si promit ca nu le cumpar niciodata produsele/serviciile de kkt.

De luni de zile ma confrunt cu o stare accentuata de brain fog si din pacate multe alte simptome neplacute care imi fac viata grea. Medicul de familie nu prea stie cu ce sa ma ajute, e complet clueless. Am o carenta de fier rezistenta la tratament si probleme constante cu nivelul de potasiu din august 2025.

Din intamplare, timp de cateva saptamani recent am urmat un regim alimentar simplu: am mancat doar legume, carne, oua si branza, eliminand complet painea, pastele si orice fel de cereale. Desi nu au aparut miracole peste noapte, anumite simptome s-au linistit considerabil, iar potasiul a iesit pentru prima data normal dupa un an intreg.

M-am bucurat, dar nu am realizat pe moment o posibila legatura cu dieta mea recenta, din moment ce am mai incercat schimbari in dieta fara rezultate. Am sarbatorit cu o pizza de la un restaurant italian, din care am mancat doua zile la rand. In a doua noapte nu am mai putut dormi deloc. Am continuat sa mananc paine zilnic la micul de jun, iar toata saptamana a fost afectata de treziri nocturne si palpitatii, simptome care disparusera complet de ceva vreme.

Medicul de familie a facut iar analize de sange pentru potasiu si iar a iesit scauzt… nici la 2 saptamani dupa ultimul test. Apoi acuma cateva zile citesc ca boala celiaca poate da simptomele care le am si de asemenea poate cauza potasiu scazut.

Merg deja la un medic si un dietetician care se ocupa cu boli functionale (lucreaza impreuna). Dieteticianul doreste sa ma testeze pentru boala celiaca si intoleranta/sensibilitate la gluten. Sufar de ani de zile de probleme digestive, dar nu m-am gandit nici o clipa ca ar putea fi de la paine. A mai trecut cineva prin experiente similare? Orice sfat sau parere ne-ar fi de mare ajutor!

I wanted to share my experience to make sure I haven't misunderstood anything.

I went to a rheumatologist to get tested for autoimmune issues, as I was worried my POTS like symptoms might be triggered by an underlying autoimmune problem. The specialist was very empathetic, and I felt like someone was finally listening. He ordered blood work and even reassured me that my symptoms were what mattered, not just the snapshot of my blood pressure, heart rate, or lab results in that single moment. I left feeling relieved and hopeful. He mentioned that while he didn't think my issues were autoimmune, he suspected it might be POTS. I told him that none of the doctors I had seen before had even heard of POTS. I even sent an official article about POTS to my GP, written for the doctors in my country, and when I met him again he told me that POTS was something that only teenage girls after receiving the HPV vaccine would get. That's not what the article stated, so he probably didn't even read it.

Anyway, I was amazed that the rheumatologist was familiar with POTS. He mentioned referring me for a tilt table test if my blood work came back normal.

During the visit, he checked my blood pressure and pulse while sitting and standing. I told him that it isn't always going up over 30 beats, but more like half of the time. My pulse went from 69 sitting to 95 standing, which is less than 30, and my blood pressure went up slightly. I thought to myself that this is not orthostatic hypotension, but maybe it's worth doing a TTT.

After my lab results came back normal, I had a follow up appointment. To my surprise, he told me he couldn't help me and that it couldn't be POTS because my blood pressure didn't drop. He suggested I go back to my GP for further investigation. The issue is that my GP refuses to look into why I have symptoms. He calls them “functional”, so I know I won't get anywhere with them. The only thing they want to offer me is SSRIs. I was really confused because, as far as I understand, the diagnostic criteria for POTS explicitly state that blood pressure should not drop, and can even increase slightly.

I feel extremely frustrated with the healthcare system. I have been dealing with dizziness, brain fog, fatigue, and many other symptoms for over a year now, but the GPs I have seen refuse to run tests. That is the only reason I am paying out of pocket to see specialists who might actually be able to help me.

I wanted to share my journey with low potassium over the past year in the hope that it might help someone else who could be unintentionally hurting themselves the same way I was. My story won't apply to everyone, but if it helps even one person, it is worth posting.

Last year, out of the blue, I started feeling terrible. I went to my GP in August 2025, and my fasting morning potassium came back at 3.2 mmol/L. From that point on, I just couldn't keep it stable. For nearly a full year, my levels constantly swung back and forth between borderline low and hypokalemia. I tried everything to fix it: I loaded up on potassium rich foods, took magnesium, added potassium supplements, and even started taking Slynd (a birth control pill known for having a potassium sparing effect). Despite all of that, just a month ago, my mid day potassium was still sitting at 3.3. I was feeling awful and getting so frustrated.

Then, I had a sudden realization. My doctor had asked me to keep a log of everything I ate and drank, and while reviewing it, I noticed I was drinking between 3.5 and 4 liters of fluid a day, not even including food. I remembered that just a few weeks before all my symptoms started last year, I had intentionally upped my water intake considerably believing it was healthy.

So, over the past two weeks, I gradually cut back on fluids until I landed on 2 liters a day (excluding food). Almost right away, some of my symptoms started improving. I just got my latest bloodwork back today, and for the first time in a full year, my fasting morning potassium is up to 3.8!

I am so relieved and finally starting to feel better. I am pretty sure that by drinking so much water without actually needing it, I was literally washing away my electrolytes. The funny thing is that my sodium was always normal, so no one was able to tell me that it could be overhydration, but it was. If you are struggling with unexplained low potassium, consider looking at your daily fluid intake, as you might be overhydrating without realizing it.

Pana acum cativa ani, nu am stiut aproape nimic despre cat de grava poate fi o muscatura de capusa. Stiam ca sunt niste paraziti care pot transmite boli, dar nu auzisem de encefalita de capusa, boala Lyme, babesia sau bartonella. Iar anul acesta am aflat prima data despre sindromul Alpha-gal. Este provocat de niste proteine din saliva capusei si cauzeaza alergii grave la carnea rosie. Nu mi-am imaginat niciodata ca oamenii pot deveni alergici la carne.

Citisem un articol acum cateva saptamani despre povestea de groaza a unei familii din Australia careia i-a murit copilul in soc anafilactic, la cateva ore dupa ce a mancat un carnat, din cauza acestei alergii provocate dupa ce a fost muscat de capuse.

Intentia mea cu aceasta postare este sa atrag atentia celor nestiutori, asa cum am fost si eu. Schimbarile climatice le-au extins teritoriul si sezonul de activitate. Capusele infestate se gasesc deja in multe locuri unde nu erau inainte. Pentru cine nu stie, sunt raspandite si la noi in Romania. O capusa este extrem de mica inainte sa te muste, are mai putin de 1 mm, si nu o simti cand se ataseaza. Multi oameni care sunt testati pozitiv pentru boala Lyme nici nu isi amintesc sa fi fost muscati vreodata.

Daca nu iti amintesti muscatura, diagnosticul este greu de stabilit si dureaza de multe ori luni de zile, pentru ca multi medici nu se pricep. Pur si simplu nu recunosc simptomele. Tratamentele sunt foarte dure, de lunga durata si au riscuri mari (de ex Ciprofloxacina), iar anumite infectii nici macar nu au un tratament direct. Simptomele sunt oribile: deficiente cognitive, ameteli, dureri si o oboseala cumplita, cum n-ai mai avut niciodata.

Cea mai buna solutie este sa te feresti. Cand mergi in padure sau in zone cu iarba poarta haine lungi si deschise la culoare, baga-ti pantalonii in bocanci sau in sosete si verifica-ti pielea si corpul in mod regulat dupa fiecare iesire.

Igen en forfærdelig historie om gaslighting og manglende kompetencer i det danske sundhedsvæsen. Jeg bliver simpelthen så ked af det, hver gang jeg læser de her historier, og jeg tænker: Hvad sker der for Danmark? Vi er bagud, men vi tror, at vi er førende. Autoimmune sygdomme tager alt for lang tid om at blive diagnosticeret, og mange patienter efterlades til at kæmpe alene med forfærdelige symptomer i årevis.

De praktiserende læger står overfor en umulig opgave. På den ene side forventes det af dem, at de er superskarpe, kan genkende symptomer og bestille de relevante blodprøver eller lave den rigtige henvisning, hvis de ikke selv kan løfte opgaven. På den anden side bliver henvisningerne afvist, og virkeligheden er bare en helt anden. Ofte mangler de praktiserende læger de nødvendige kompetencer, hvilket er forståeligt, da de jo ikke er specialister(de er generalister) og patienten bliver svigtet. Mange praktiserende læger er bare opgivende fra starten, når en patient præsenterer sig med vage symptomer som træthed, hjertebanken, svimmelhed eller hjernetåge. De vil hverken tage relevante blodprøver eller henvise, fordi de ikke ved, hvad de skal teste for, og de på forhånd ved, at henvisningen bliver afvist.

Hvorfor er vi endt her, og hvad kan vi gøre for at skabe bedre vilkår både for patienterne og for de læger, der står med opgaverne?

Hvordan kan det være, at man ender hos Valida Health i stedet for egen læge til behandling af lavt testosteron?

Har I erfaringer med dem?