vWD needing to reduce inflammation

I'm getting arthritis in my hands. My parent who has it has deformed hands and I don't want that. It's getting worse.

I'm seeing a rheumatologist who keeps prescribing/recommending medications and supplements that aren't safe for vWD and says there is nothing else available. They say the only thing that can slow this down is anti-inflammatories.

I have <10% the normal vWD factor levels and vWD2a. I can't afford to be taking anything that's going to make it worse.

Is there any medication or supplement that you use that reduces inflammation? I am not seeking recommendations for pain, just inflammation. It appears everything that reduces inflammation also interferes with clotting.

I take a steroid for inflammation 3 days per month already as prescribed.

I will, of course, research and seek medical advice for anything before I take it. I am just wondering what you all use so I have something to research.

TIA🌺

reddit.com
u/imaginenohell — 1 day ago

I just had the most glorious nap with no shivers⛄

It was magical.✨

For years, I have had such difficulty managing my body temp while laying down, and it interrupts my sleep.

No amount of blankets really worked. The shivering when I first laid down was legit uncomfortable, on the edge of painful even.

I got the biggest heating pad I could find, but it turns off every 2 hrs, so I woke up to turn it back on. And I don't think it was really keeping me as warm as I thought.

Finally, duh, I realized I could just get a twin sized electric blanket to cover myself only and my partner wouldn't be disturbed. It has plenty of extra fabric so my feet and neck are nice and warm, and it has so many settings to let me adjust the warmth. It was only like $25.

Well. Let me tell you. It was the oddest feeling of normal! I forgot what this feeling was like. It was almost like floating, I was so happy.💕 I had the best nap. I can't wait until tonight.

reddit.com
u/imaginenohell — 2 days ago
▲ 229 r/advocacy+4 crossposts

TAKE ACTION: Keep a religious veto out of the annual defense bill

Act: Click, personalize and send: FFRF Action Fund | TAKE ACTION: Keep a religious veto out of the annual defense bill

TLDR: An amendment to the military budget has been proposed that would:

  1. Allow military chaplains to refuse more duties, like refuse service to a LGBTQ member or member of another religion (The foundation of professional chaplaincy is caring for everyone nonjudgmentally.)
  2. Shields military chaplains from consequences of their behavior.

Our military members deserve better.

More information: A radical Texas congressman is using the annual defense bill to hand military chaplains a blanket religious veto over their duties and to shield them from any consequence for pushing religion on the troops they're meant to serve. The full House is about to vote on it.

 Rep. Keith Self has attached Amendment 237 to the National Defense Authorization Act (NDAA), the must-pass bill that funds the military every year. His proposal couldn't pass as a standalone bill, so he's pushing it through as part of legislation that Congress can't easily vote down. It has cleared the House Rules Committee and is headed for a floor vote.

 The amendment does two things. First, the amendment expands and entrenches a chaplain's ability to refuse duties that conflict with their beliefs. Chaplains already have conscience protections under current Pentagon policy, but the amendment goes far more broadly. Conscience protections would apply to any “task or action,” allowing chaplains to decline to counsel or refer a service member whose identity or choices they disapprove of, leaving those service members with nowhere to turn. Second, the amendment shields a chaplain's preaching and conduct from “censorship, undue restriction, or fear of retribution,” and makes any service member who interferes subject to court-martial.

Please take action and urge your representative to vote no on Amendment 237 and keep it out of the NDAA.

u/imaginenohell — 3 days ago

Do you experience awe?

I experience awe in nature and feelings of Ralph Waldo Emerson style transcendence in it. I experience the same feeling with awesome works of art and architecture.

I’m realizing that everyone doesn’t. Do you?

reddit.com
u/imaginenohell — 11 days ago
▲ 9 r/advocacy+1 crossposts

Submit a public comment to HUD by 6/28/2026 on proposal to strip safety protections

https://preview.redd.it/j9dvn6awbb8h1.png?width=1536&format=png&auto=webp&s=cd27be34727ec840b083a367c747136fea777409

Click here to submit your comment: Pride in Action – UUSC

Comments close Monday, June 28.

Please submit unique public comments to the Department of Housing and Urban Development opposing a proposed rule that would strip safety protections from federally funded shelters for transgender, nonbinary, two-spirit, and intersex people.

Again do not copy and paste someone else's comment. Identical comments get bundled and counted as one. Suggestions are provided at the link.

What HUD Is Proposing

On April 28, 2026, the Department of Housing and Urban Development (HUD) proposed a revision to its Equal Access Rule that would roll back protections meant to ensure the safety of any trans person seeking HUD-funded support.

Key proposed changes include:

  • Removal of protections against housing discrimination on the basis of sexual orientation and gender identity
  • Allowing providers to demand “evidence to confirm the sex of an individual seeking service”
  • Redefinition of “sex” to enable discrimination against trans, gender expansive and intersex people
  • Attempts to override state, local and tribal protections
  • Imposition of requirements that make it difficult for providers to do their jobs and serve the people they are committed to supporting
reddit.com
u/imaginenohell — 16 days ago
▲ 5 r/meetup

How do I print out a tabletop Meetup sign?

Meetup used to provide a pdf sign you could print out with their logo on it and your group name.

The purpose of this is simple--so people can find you when they arrive at the event.

Where in blazes did it go? I spent a long time Googling and searching the Meetup website, and it seems to be ~poof~ 🫠 gone.

I emailed Support...no reply.

Seems like a really crucial thing to delete.

reddit.com
u/imaginenohell — 16 days ago
▲ 1.1k r/advocacy+4 crossposts

Today is the last day to comment on the National Park Service website about what you think of Donald Trump's proposed Arch. Please take the time to share your opinion with them.

parkplanning.nps.gov
u/Culpability2025 — 20 days ago
▲ 14 r/advocacy+1 crossposts

Ask Hobbs to block Oak Flat mining

https://preview.redd.it/8hih5odj8o6h1.png?width=1500&format=png&auto=webp&s=3084cc086c541f009715e754e0ce914bb8feca68

Issue

  • Overview of issue: Protect Oak Flat - Association on American Indian Affairs; https://www.apache-stronghold.com/
  • Oak Flat is a beautiful, sacred place.
  • Resolution Copper wants to dump a mountain of toxic waste in Dripping Spring Valley at Skunk Camp, destroying sacred Indigenous burial sites of the O’odham and threatening all life that is downstream on the Gila River and endangering all where the wind blows. 
  • A federal court has refused to responsibly extend protection to sacred Oak Flat while cases of religious freedom, tribal rights and environmental protection are heard. 
  • The federal administration has illegally attempted the transfer of sacred Oak Flat to the foreign mining interest, Resolution Copper.
  • Resolution Copper is acting as if they own sacred Oak Flat.
  • Governor Hobbs has the authority to block this.

Action Needed

Here is one option if you're religious--sign on to this letter.

Otherwise--contact Gov. Hobbs.

reddit.com
u/imaginenohell — 25 days ago
▲ 1.8k r/advocacy+1 crossposts

TAKE ACTION: Help STOP Todd Blanche from becoming U.S. Attorney General!

We need your help to keep one of Trump’s lackeys from becoming Attorney General!

On June 8, President Trump nominated Todd Blanche for the role of United States Attorney General. His nomination raises serious concerns about the independence of the Justice Department, the weaponization of law enforcement for ideological purposes and the growing influence of Christian nationalist ideology within the federal government. That’s why we’re calling on YOU now — Please take this chance to tell your senator to REJECT Blanche!

During his time at the Department of Justice, Blanche has been a staunch advocate of Christian nationalism. As chair of Trump’s so-called “Task Force to Eradicate Anti-Christian Bias,” he oversaw the release of a report littered with falsehoods, such as the idea that “the Biden administration’s actions devastated the lives of many Christian Americans” and that “our nation’s origin and system of government bear the imprint of a Christian worldview and ethic.” This rhetoric advances a revisionist view of American history that undermines the constitutional principle of state-church separation.

Blanche has also led the administration’s crusade against the Southern Poverty Law Center (SPLC), culminating in a criminal indictment by the Department of Justice, an attack which FFRF condemned. He accused the SPLC of “manufacturing racism to justify its existence,” and called the longtime civil rights champion a “fraudulent organization.”

These are just some of the reasons Blanche is a bad fit for this position. As U.S. AG, Blanche would inevitably abuse his position to further Trump’s corruption, advance a Christian nationalist worldview and attack civil rights groups that dare to oppose the current administration. Don’t let this opportunity to share your thoughts with your senators about Blanche go to waste!

TAKE ACTION

ffrfaction.org
u/FreethoughtChris — 26 days ago

Post a public comment about the proposed arch structure

People are starving.

We “can’t afford” to monitor the national blood supply for viruses.

We “can’t afford” to provide citizens with healthcare, dental, hearing and eye care.

We “can’t afford” to provide basic schooling, aid to farmers, etc.

But we can afford an ugly arch?

https://wtop.com/dc/2026/06/nps-wants-public-comments-on-trumps-proposed-triumphal-arch/ has the details and link to post comments.

u/imaginenohell — 26 days ago

Uninstall Copilot (AI)

Why: AI is really bad for the environment, as you've heard. Here's an article if you want more information on that.

How to act: One of many ways to reduce your use of AI is to delete Copilot from your Windows computer. That takes <10 minutes and here are the instructions at the 3:30 mark: How Do I Get Rid of Copilot Everywhere?

The video has more instructions on how to remove it elsewhere.

https://preview.redd.it/lv9jtnb4s46h1.png?width=660&format=png&auto=webp&s=39b1f1de31eb551fd6a4797fec221983e2cdb397

reddit.com
u/imaginenohell — 27 days ago

No Kings June 14

Multiple events available across AZ: Volunteer Opportunities, Events, and Petitions Near Me · No Kings on Mobilize

This is an alternative to watching the mango menace's gross birthday party that he's throwing himself at our expense.

Rise Up, Sing Out is just one of the event types:

>On June 14, join us for Rise Up, Sing Out: A Concert for the First Amendment — an uplifting evening of music, community, and action. Hosted by the Committee for the First Amendment (CFA), this special livestream event will feature an all-star lineup including Jane Fonda, Patti Smith, Bette Midler, Rufus Wainwright, Joy Reid, Wilson Cruz, Broadway Inspirational Voices, and more.

>Together, we’ll celebrate the freedoms guaranteed by the First Amendment — including the freedoms of speech, religion, press, assembly, and protest — and the people power that protects them. Communities across the country will gather for local watch parties to livestream the 90-minute concert...

u/imaginenohell — 1 month ago
▲ 188 r/50501Movement+1 crossposts

🚨Open for public comment: Proposed rule--Attack on American science

https://preview.redd.it/4x313y1hhx4h1.png?width=237&format=png&auto=webp&s=df7ae8490d5eafd10f6e48b30b6ec519563ffe67

Leave your public comment here: Stand up for Science | Add Your Voice to Stop OMB's Attack on American Science

OMB’s latest proposed rule, “Regulation for Federal Financial Assistance,” would require all scientific grants to be approved by political appointees, stealing approval power from career experts in their fields. Funding would be required to align with “Administration policies and priorities.” (A great summary can be found here. Bottom line: Political appointees and "President Sharpie's" anti-science agenda should not be a factor in deciding which scientific research happens.)

Any member of the public can submit comments on these regulations and comments can be as short or as long as you’d like. There is not a limit on comments, however 100 of the same comment count as one comment. Please note, the comment should be PERSONALIZED by you in order to be counted. Do not copy other people's comments!!!

Please share with everyone you know - we should be able to get 1000s of comments on this. It only takes a few seconds to click and type a public comment on it.

reddit.com
u/imaginenohell — 1 month ago
▲ 8 r/advocacy+1 crossposts

Add your public comment: Stop OMB's Attack on American Science

https://preview.redd.it/rtgn9xtrgx4h1.png?width=237&format=png&auto=webp&s=148e175d1997176057dec9e97fe7d1c546d94db2

Leave your public comment here: Stand up for Science | Add Your Voice to Stop OMB's Attack on American Science

OMB’s latest proposed rule, “Regulation for Federal Financial Assistance,” would require all scientific grants to be approved by political appointees, stealing approval power from career experts in their fields. Funding would be required to align with “Administration policies and priorities.” (Brief overview can be found here).

Any member of the public can submit comments on these regulations and comments can be as short or as long as you’d like. There is not a limit on comments, however 100 of the same comment count as one comment. Please note, the comment should be PERSONALIZED by you in order to be counted.

reddit.com
u/imaginenohell — 1 month ago

Let's pass the National Popular Vote Compact in AZ

If states representing a minimum of 48 more electoral votes pass this interstate compact, our president will be elected by the popular vote. Everyone's vote will count equally.

Let's figure out a way to get this passed in Arizona. (It previously passed the House.) It appears one party proposes it every single year and the legislature never takes it to a vote--how can we support those proposing it?

It will take a lot of work to get our legislature to take it to a vote. They won't do it without a lot of pressure.

We would need to start a pressure campaign now to get it done in the next few years.

Who's with me and where do we start, besides the usual letter writing/calling our legislators? We need something BIGGER.

I looked into a ballot initiative but do not happen to have a spare $10,000,000 for the legal fees when the opponents sue...and that seems like an unrealistic fundraising goal for an individual.

https://preview.redd.it/cszb151skv4h1.png?width=858&format=png&auto=webp&s=afa41e64810d51475ae8be5566e5caebebae37d9

Background information:

reddit.com
u/imaginenohell — 1 month ago