u/plantyplant559

Got a rollator this week and went to town with stickers! Put mod podge over it so the stickers don't get ruined immediately.

Next up is decorating my wheelchair.

The hairline of this wig isn't as deep as my own hair. With my other wig, I cut it too close to the hairline, but on this section it kind of worked out to just look like my own hair was showing through. I'm afraid to do that with this wig and mess up the lace. What are my options? What can I do here to make it look better? I'm growing out my hair, so shaving/ cutting it isn't an option for me.

This is my 2nd wig and I'm in love. This wig is soft, bouncy, and sleek. I love how soft the hair is compared to my other wig.

This is the dark brown color, and it looks much lighter in sunlight.

The lace melts down pretty well, and the hairline, I think, looks realistic. I dont have tweezers so I can't pluck it anyway.

The cap is big on my head, as every hat and wig ever seems to be, but it straps down tightly. This means I have to use lace melt, but it did the trick and you can hardly see it. Definitely not HD lace, but for $40, that's fine.

Overall love it so far. I've tried curling it but it doesn't want to take, so I'll have to play with that some more.

I am planning on thinning the ends, but it's already on the thin side, so it won't need much.

TLDR: Mold was likely my root cause of MECFS. After moving out I've gotten a lot better and went for a 1/2 mile walk yesterday.

I found out in late December that I tested extremely high for mycotoxins. This led me and my husband to check the house for mold/ tell the landlord and it turns out there was mold in the attic.

Despite me being severe/ mod-severe, we found a new place to live and moved into a brand new apartment closer to family.

I felt better within 3 days.

Since then it's been 2.5 months. I've doubled my daily step count. I started exercising very slowly (like glute bridges, chill stuff like that). Haven't had PEM since moving week. My MCAS is improving and I was able to have strawberries for the first time in 2 years.

And yesterday, I went for a walk. There's a gorgeous grassy field with a path near my house, and I've wanted to walk it since moving. I walked very slowly. I'll take more breaks next time. But, I feel just fine. No hint of PEM. Just normal muscle fatigue.

Just wanted to share with people who get it.

I posted this poem today on Insta for friends and family to see. I thought it might resonate with many of you.

Poem text:

I spent the better part of two years

burying parts of myself,

tucking them in like children into coffins.

I'm sorry dear,

there's no room for you here.

I mourned the life I had

and would have had,

the moments I missed

and was missing every time I had to lie

perfectly still

dark as night

and quiet as the dead

to fix these future wounds.

Month after month I dropped mental flowers

into the graves of the parts of myself

I lost,

too weary to hold a real funeral,

I just cried in his arms

at every loss.

Never could I allow myself

in that endless night

to imagine an end other than darkness.

I buried the hopes of healing

and the thoughts of forever,

in an attempt to prevent more loss.

Imagine my surprise when one day I woke

and there was light

that didn't burn my skin like a cancer.

Imagine my surprise when I pulled the burial cloth off the mirror

and for the first time in years,

found myself looking back.

One by one I've begun digging up the parts

long laid to rest.

The work is tiresome,

slow,

uncertain,

scary.

I've allowed myself to once again dream

of who I was,

of who I am,

of who I might be again.

But I'll never forget how it felt

alone in the dark with nothing

but my hollow thoughts.

I'll never forget that any one of us could be swallowed whole,

and it's completely out of our control.

Just ordered this after the Sensationnel wig I ordered was much too light.

Is this brand legit? It looks great, I love the color, but I'm curious if anyone has tried their wigs and liked them? The name has me and my husband laughing.

https://a.co/d/0jeZFdou

I'll come do my own review once I get it in a few days.

I was able to go out into nature and go like 100 feet up a sloped trail! It felt amazing. I'll make it further next time.