u/somethingwonderful71

So I was on 10 mgs of prozac and Buspar for years, and about a year ago, they quit working. I had a concussion at the time, so maybe that was part of it, but for a good 6 months, I tried all kinds of psych meds to no avail for my depression and anxiety, and had awful side effects -- major headaches, nerve pain, increased neuropathy, etc. One of my docs said psych meds can be really bad for folks with Lyme. Well, I have had Lyme for many, many years, and I did fine on the 10/10, and now I am on 1 mg of Ativan at night, but it does nothing for the depression. I will have to use Methylene Blue likely, and I know they wanted me off of prozac for that, but this is really hard to get through without something helping my brain, perspective, etc. My doc said he really had not seen seratonin syndrome but I know it is not anything you want to play with.

I just want to know if there is anything you have taken that helped your mood because this is a lot to go through. Like is there a med that is easier on us folks with all this???

So, I am not able to leave my place while it is remediated, except for when I have to be out absolutely- containment will necessitate this. Will an Airpura work well for the mVOCs I am smelling all over the house? I am in a 1,100-square-foot townhome split up and down stairs. Water-damaged species were found in the attic, which is closed, but the entrance is very close to my bedroom, where tape samples were taken (odor seems to be worse there and stagnant due to the location). Just wanting to know if I can get the mVOCS out of here, and whether it will be healthier to be here with the machines. Certainly, this will cost less than renting a place, which is hard to find around here. Thanks!

Pardon me for my ignorance. I have Lyme, coinfections, EBV, and I am having mold remediated soon in my home.

I did not realize my headaches and nerve pain on my scalp were MCAS. I have dairy, gluten, egg, and coconut sensitivities, and I am not sure what to do about food. Please tell me everyone is overwhelmed when they start, as this is insanely overwhelming, and it feels like it is out of our control. Please tell me how you get a grip on it when you can't eat anything you like, etc. So now chocolate, coffee, etc., are out, and I am having to treat Lyme, and I just need some perspective and light at the end of this tunnel. Now I am understanding why my body went nuts when my doc tried different psych meds for depression and anxiety (insane headaches, and my stomach went nuts), and this all slowly geared up. It seems the meds for Lyme, etc., have caused it to go into high gear. I will set up a doctor's appointment tomorrow, as I am not sure how to handle all this. I am exhausted and can barely think straight.

I am on ketotifin (night) makes me feel druged 1 mg - my need more -- allegra and cemetidine. Not to mention the constipation.

I look forward to hearing your perspective. Thanks in advance!

Water damage species found in attic - likely because neighbor did not flash her roof properly into my townhome. There is moisture in walls in several places.

Mold tester said that my contents are fine given her air samples. I have read otherwise that I need someone or myself to test using ERMI/HERTSMI-2 dust samples. Is this true? My neuro symptoms are off the charts. I have MCAS, Lyme, Bart, Babs and Elichia as well as EBV. Thanks for the help!

I have gotten more sensitive being on antibiotics and a strong protocol of them. I have tried to make GAPS broth and sometimes I have the energy and sometimes I don't. EBV and living with mold behind walls are not helping. MCAS is going rogue.

What do I do to rebuild gut - cannot take glutamine.

Would appreciate any feedback. Am working to have mold remediated soon. Thank you!

Water damage species found in attic - likely because neighbor did not flash her roof properly into my townhome. There is moisture in walls in several places.

Mold tester said that my contents are fine given her air samples. I have read otherwise that I need someone or myself to test using ERMI/HERTSMI-2 dust samples. Is this true? My neuro symptoms are off the charts. I have MCAS, Lyme, Bart, Babs and Elichia as well as EBV. Thanks for the help!

I just found out I have mold in my home again. How to LLMDs treat mold? I am getting the source hopefully taken care of Wednesday and then remediation starts after that. Thank you....

Can anyone tell me what this might be? Thank you

It seems my fatigue has intensified on this med. How long does this last? Thank you....

Hi, I have EBV as well so I am EXHAUSTED. I have tried the GAPS diet and it is too much effort for me.

I can manage cooking chicken and veggies etc but would IQ bars and coconut milk be okay too as this has become too much with treatment that is knocking me off my arse.

I would love to hear others' experience here. Thank you!

I have read that the cinnamon clove and oregano oil is great (how do you take this??? with or without food) Are there any others that are as good? I have also read Biocidin is good and I ordered Serapeptase today. Help please!! Thanks!

So I have EBV (PCR positive), Bart (fish positive), Babs (suspected) Lyme (relapsing species) and it appears Erlichia (current positive). All Lyme and co's Igenex positive. I am being treated with antibiotics for all.

I am most concerned about the neuropathy symptom. Did it go away for you all with adequate treatment? Thank you ....

Does anyone have an answer to this and did it happy to make your neuropathy worse? Thanks!

I am being treated with cerftin, Azith, and Ivermectin (Lyme Bart and Babs) and my neuropathy in feet and legs is getting worse.

I also have some EBV we are going to treat soon. And soon to add Rifampin. Is it normal for an increase in neuropathy in feet and legs -- is is scaring me. Thanks!

Hi can anyone tell me if an MCAS headache can go all around your head to the top of your skull into cheeks and jaw-- It is so weird and uncomfortable.

Can someone help here? How do you handle being abandoned by those that used to support you when they don't understand, don't believe etc. It is really awful. I would love to know how others cope as I imagine this is fairly common with chronic illness. Thank you

So, now I am dealing with Lyme, Bart, Babs, MCAS and now EBV.

I also have a concussion (with recent hits - ugh)

I am starting a low histamine GAPS diet tomorrow.

I am trying to determine if IV Blood Ozone would help the EBV.

Does anyone have experience? If I could knock this down (EBV) I think it would help the concussion heal.

I would appreciate any experiences here that may help. Thanks!

Has anyone been on this combo? My doc wants to start first with Famvir(Famciclovir ). I would love to hear of anyone's success. Thank you!